Transition in young adults with spina bifida: a qualitative study

Authors:
RIDOSH M., et al
Journal article citation:
Child: Care, Health and Development, 37(6), November 2011, pp.866-874.
Publisher:
Wiley

Young adults with spina bifida are at-risk because of the complexity of their condition and social challenges. This qualitative study investigated the transition to adulthood for those with the condition and explored the needs and life skills required during the transition process. Interviews were completed with 10 participants, aged 18 to 25 years. The interview questions focused on specific dimensions of the transition experience related to the ecological model. Findings revealed three themes underlying different dimensions of the young adults' transition experiences. The themes included: struggling for independence; limiting social interactions and experiences with stigma; and building inner strength. The study contributed to a better understanding of the challenges of transition to achieve self-management and social development for young adults with spina bifida. Findings in the life stories highlighted issues that necessitate increased advocacy and interventions from professionals within the health and social system. Implications for practice are discussed.

Subject terms:
independence, self-advocacy, spina bifida, service transitions, young adults;
Content type:
research
Location(s):
United States
Link:
Journal home page
ISSN online:
1365-2214
ISSN print:
0305-1862

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