Search results for ‘Subject term:"diseases"’ Sort:
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Epidemiologia
- Publisher:
- Multidisciplinary Digital Publishing Institute
Epidemiologia is an international, scientific, peer-reviewed, open access journal on epidemiologic research published quarterly online by MDPI. Coverage on Social Care Online from this journal is limited to relevant systematic reviews only. (Edited publisher abstract)
Journal of Public Health
- Publisher:
- Oxford
This Journal focuses on current theory and practice within public health. It publishes readable papers of high scientific quality. The journal looks in depth at the causes of disease and how to prevent ill-health and promote good health. Disease trends are also monitored, as are outbreaks of environmental hazards. The journal also covers planning, provision, and evaluation of health services. Coverage on Social Care Online from this journal is limited to relevant systematic reviews only.
Schizophrenia: disease, syndrome, or dimensions?
- Author:
- CARPENTER William T.
- Journal article citation:
- Family Process, 46(2), June 2007, pp.199-206.
- Publisher:
- Wiley
Schizophrenia has the status of a clinical syndrome and may comprise a number of specific disease entities. This construct is similar to dementia, in which several diseases have been defined within the syndrome. Alternatively, schizophrenia may be a single disease entity with quite variable manifestations across cases. Kraepelin proposed dementia praecox as a disease entity, and Bleuler proposed
Carer reported experiences: supporting someone with a rare disease
- Authors:
- McMULLAN Julie, et al
- Journal article citation:
- Health and Social Care in the Community, 30(3), 2022, pp.1097-1108.
- Publisher:
- Wiley
This exploratory study aimed to gain an understanding of carer reported experiences derived specifically from persons caring for someone with a rare disease. The survey took place online on the SmartSurvey platform from November 2019 to January 2020. The facilitated workshop took place in Bangor Carnegie Library, Northern Ireland. To be eligible to participate in the online survey respondents had to be adults caring for someone with a rare disease. Fifty-seven respondents took part, 15.8% male, 84.2% female. Thirty-two attendees were part of the facilitated workshop. While carers reported several positive aspects of their caring role, the majority of comments highlighted challenges such as sub-optimal interactions with healthcare professionals, insufficient (or absent) emotional, psychological and social support, lack of financial support and lack of awareness of existing support services. It is important that strategies are put in place to ensure that carers are given the time they need to care for themselves, and that awareness is raised of what support options are available for carers of people with a rare disease(s) from health and social care providers, charities or support groups.
The role of social work in supporting people affected by Creutzfeldt-Jakob disease (CJD): a scoping review
- Authors:
- MANTHORPE Jill, SIMCOCK Peter
- Journal article citation:
- British Journal of Social Work, 49(7), 2019, pp.1798-1816.
- Publisher:
- Oxford University Press
Social work practice in England and the wider UK is curiously under-informed about its own practice in supporting people affected by Creutzfeldt–Jakob disease (CJD). This paper reports the findings of a scoping review undertaken in 2018 of what is known about social work support for people with CJD and their families. Conceptual and thematic analysis of the limited literature identified in the review enabled us to develop a consensus on reported themes: rapid decline and the need for quick responses; families’ need for support; and the use of case studies and case reports. The review identified significant gaps in the evidence, particularly as the literature currently published pre-dates the contemporary legal framework for social work practice in England. We therefore argue that there is clear scope for further research, investigating the specific social work role in supporting people affected by CJD, potentially providing the profession with greater confidence about its potential contribution, and evidence of its potential and actual effectiveness. (Publisher abstract)
Lupus and community-based social work
- Authors:
- SCHUDRICH Wendy, GROSS Diane, ROWSHANDEL Jessica
- Journal article citation:
- Social Work in Health Care, 51(7), August 2012, pp.627-639.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article describes a service that is available to help those suffering from systemic lupus erythematous (SLE), a chronic autoimmune disease that disproportionately strikes women of colour. SLE patients frequently experience physical, emotional, and social challenges that often result in unmet biopsychosocial needs. Because of the nature of the disease and the needs of patients, agencies serving SLE patients that engage in community-based social work can positively impact their clients' lives. The S.L.E. Lupus Foundation participates in a myriad of community-based social work practices to help address the needs of their clients. These services include helping economically disadvantaged patients access appropriate services within their communities, building awareness about SLE in society, connecting with government officials at all levels, and collaborating with health care organisations to serve those affected by SLE. Specific examples of community-based activities at the S.L.E. Lupus Foundation are discussed.
Social inequalities in female mortality by region and selected causes of death, England and Wales, 2001-03
- Authors:
- LANGFORD Ann, JOHNSON Brian, AL-HAMAD Alaa
- Journal article citation:
- Health Statistics Quarterly, 44, Winter 2009, pp.7-26.
- Publisher:
- Office for National Statistics
... disease, around five times as high for ischaemic heart disease and all digestive diseases, and six times as high for respiratory diseases.
The habitus of hygiene: discourses of cleanliness and infection control in nursing work
- Authors:
- BROWN Brian, et al
- Journal article citation:
- Social Science and Medicine, 67(7), October 2008, pp.1047-1055.
- Publisher:
- Elsevier
This paper reports upon a qualitative interview study of 22 matrons, infection control staff and operating theatre staff who were questioned about their working lives and the role they played in the control of healthcare acquired infections such as MRSA virus in the UK. A theoretical framework drawing upon the work of Bourdieu is deployed as his notion of habitus captures the combination of practical work, physical disposition and ways of looking at the world which are displayed in the interview accounts of labour in the healthcare field. Three themes emerged from the analysis: first, the ‘securitization’ of healthcare work, concerned with control, supervision, ‘making sure’ and the management of risk through inspection, audit and the exercise of responsibility; second, the sense of struggle against doctors who were seen to represent a threat to the carefully organized boundaries, through such alleged violations as not washing their hands, wandering between theatre and canteen areas in soiled clothing and thinking the rules did not apply to them; third, in a ‘back to basics’ theme participants emphasised the fundamentals of what they saw to be nursing work and were concerned with cleanliness and practically based training – the habitus of hygiene itself. This was formulated in nostalgic terms with reminiscences about basic training earlier in the participants' careers. The preoccupation with hygiene and its ‘basic’ processes can be seen as a way of managing uncertainty, accumulating a certain kind of symbolic capital and constructing and maintaining boundaries in the healthcare field. It also makes for self-governing, self-exploiting individuals who accrue responsibility to themselves for implementing the ‘habitus of hygiene’.
‘He is now like a brother, I can even give him some blood’ – relational ethics and material exchanges in a malaria vaccine ‘trial community’ in The Gambia
- Authors:
- GEISSELER P. Wenzel, et al
- Journal article citation:
- Social Science and Medicine, 67(5), September 2008, pp.696-707.
- Publisher:
- Elsevier
This paper explores social relations within the ‘trial community’ (staff and volunteers) of a Malaria Vaccine Trial (MVT), implemented by the Medical Research Council (MRC) in The Gambia between 2001 and 2004. It situates ethical concerns with medical research within the everyday life of scientific fieldwork. Based upon discussions with volunteers and staff, processes of mediation between scientific project and study population, and between formal ethics, local ethical debates and everyday practice is explored. Material contact and substantial transactions, notably of blood and medicine, are central to the construction of the MVT. These transactions are guided by a concrete and relational form of ethics, which contrasts with the abstract and vertical formal ethical principles underwriting the scientific study protocol. The success of the MVT owed much to these kinship-like ethics. One possible conclusion from these observations is that research ethics should be understood, not just as a quasi-legal frame but also as an open, searching movement, much in the same way that kinship is not merely a juridical institution and a prescriptive frame of rules, but a network made through relational work. However, this conclusion raises new problems: by contrasting formal, abstract principles to intimate, immediate relations, and economic justice to personal morality, we accept that the order of medical research is moved further out of the public and political, and into the domains of either quasi-legal claims or of private morality. Irrespective of the undeniable importance of clear-cut rules and of good face-to-face relations, a third essential foundation of medical research ethics is the democratically constituted public sphere, including equitable health services, and transparent institutions to facilitate open debate and regulate particular interests. Ultimately, the ethics of global science can rely neither on principles nor trust but requires citizenship and democratic government.
The Grim Reaper's road map: an atlas of mortality in Britain
- Authors:
- SHAW Mary, et al
- Publisher:
- Policy Press
- Publication year:
- 2008
- Pagination:
- 238p.
- Place of publication:
- Bristol
This impressive full-colour atlas, with over 100 colour-coded and accessible maps, uniquely presents the geography of death in Britain. The first atlas published on this subject for over two decades, this book presents data from more than 14 million deaths over a 24-year period in Britain. The maps detail over 100 separate categories of cause of death, including various cancers, suicides, assault by firearms, multiple sclerosis, pneumonia, hypothermia, falls, and Parkinson's disease, and show how often these occurred in different neighbourhoods. Accompanying each map is a detailed description and brief geographical analysis - the number of people who have died due to each cause, the average age of death and ratio of male to female deaths are listed. Taken as a whole, these provide a comprehensive overview of the geographical pattern of mortality in Britain. This atlas will be essential reading for academics and students of social medicine, sociology of health and illness and epidemiology. It will also be valuable for anyone who wants a better understanding of patterns of mortality within Britain, including medical and healthcare practitioners, policy makers and researchers.