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Selling your soul to the devil: an autoethnography of pain, pleasure and the quest for a child
- Author:
- NEVILLE-JAN Ann
- Journal article citation:
- Disability and Society, 19(2), March 2004, pp.113-127.
- Publisher:
- Taylor and Francis
In this article the author presents an autoethnography in the form of a quest narrative linked as a self-reflexive text to her continuing research of children and adults with spina bifida. The story centers on the themes of chronic illness, pain and sexuality, highlighting gaps in the literature related to these topics. She narrates her story as a manifesto for women with physical impairments to break their silence and talk about their sexuality. She recommends autoethnography as a method of understanding disability as embodied.