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Reflections on writing and exhibiting learning disability history: commentary on “Spina Bifida and Hydrocephalus: Our Heritage”
- Authors:
- JARRETT Simon, GROVE Nicola Clare
- Journal article citation:
- Tizard Learning Disability Review, 22(3), 2017, pp.132-135.
- Publisher:
- Emerald
Purpose: The purpose of this paper is to comment on the article “Spina Bifida and Hydrocephalus: Our Heritage – the role of heritage exhibitions in tackling social isolation.” Design/methodology/approach: This provides some further reflection and points for discussion on topics arising from the themes in the original article. Findings: Issues are raised about the medicalisation of conditions and the ways in which a social and cultural model of disability challenges preconceptions and assumptions about personhood and victim status. Reference is made to the broader context of hidden histories and the ways in which people with learning disabilities are now taking active roles in reclaiming the story of their lives in the past and now. Originality/value: The paper aims to raise awareness of critical issues of learning disability history prompted by the original paper. (Publisher abstract)
Selling your soul to the devil: an autoethnography of pain, pleasure and the quest for a child
- Author:
- NEVILLE-JAN Ann
- Journal article citation:
- Disability and Society, 19(2), March 2004, pp.113-127.
- Publisher:
- Taylor and Francis
In this article the author presents an autoethnography in the form of a quest narrative linked as a self-reflexive text to her continuing research of children and adults with spina bifida. The story centers on the themes of chronic illness, pain and sexuality, highlighting gaps in the literature related to these topics. She narrates her story as a manifesto for women with physical impairments to break their silence and talk about their sexuality. She recommends autoethnography as a method of understanding disability as embodied.