Search results for ‘Subject term:"spina bifida"’ Sort:
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Your child and hydrocephalus: a practical guide for families
- Author:
- ASSOCIATION FOR SPINA BIFIDA AND HYDROCEPHALUS
- Publisher:
- Association for Spina Bifida and Hydrocephalus
- Publication year:
- 2004
- Pagination:
- 98p.
- Place of publication:
- Peterborough
This practical guide for parents and family members tackles the major areas of child development with advice and suggestions for parents of children with hydrocephalus. The main areas the book covers includes physical development – how to help your child develop physical skills; developing language – how your child can become a successful communicator; psychological development - the possible effects of hydrocephalus and strategies to manage them; and growing up.
Severe emotional disturbance in children and adolescents: psychotherapy in applied contexts
- Author:
- FLYNN Denis
- Publisher:
- Brunner-Routledge
- Publication year:
- 2004
- Pagination:
- 258p.,bibliog.
- Place of publication:
- Hove
This book conveys the experiences of severely emotionally disturbed children in detailed accounts of psychoanalytic psychotherapy, and explores the life and death struggles against severe self-harm to body and mind by the most distressed sections of adolescents. Chapters cover subjects including: the inpatient therapeutic setting; family rehabilitation after physical abuse; the adoptive father; and work with adolescent inpatients with spina bifida.
Factors associated with self-worth in young people with physical disabilities
- Author:
- ANTLE Beverley J.
- Journal article citation:
- Health and Social Work, 29(3), August 2004, pp.167-175.
- Publisher:
- Oxford University Press
Reports on a cross-sectional study examining the correlates of global self-worth for 85 young people (ages 8 to 23) with spina bifida (present at birth) or spinal cord injury (acquired). Significant correlations were found between perceptions of self-worth and age, and perceived social support from close friends and from parents. Regression analysis revealed that parental support was a stronger predictor of self-worth than gender, age, or diagnosis (onset of disability). Implications for social work practice are discussed.
Selling your soul to the devil: an autoethnography of pain, pleasure and the quest for a child
- Author:
- NEVILLE-JAN Ann
- Journal article citation:
- Disability and Society, 19(2), March 2004, pp.113-127.
- Publisher:
- Taylor and Francis
In this article the author presents an autoethnography in the form of a quest narrative linked as a self-reflexive text to her continuing research of children and adults with spina bifida. The story centers on the themes of chronic illness, pain and sexuality, highlighting gaps in the literature related to these topics. She narrates her story as a manifesto for women with physical impairments to break their silence and talk about their sexuality. She recommends autoethnography as a method of understanding disability as embodied.