Search results for ‘Subject term:"social model"’ Sort:
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Valuing the place of young people with learning disabilities in the arts
- Author:
- GODDARD Jennifer
- Journal article citation:
- Child Care in Practice, 21(3), 2015, pp.238-255.
- Publisher:
- Taylor and Francis
This paper charts the course of a group of young people with learning disabilities using theatre to explore ways in which they can express the emotions and dilemmas they face in transitioning from young people 'participating' in their world to more actively engaging in arts leadership roles. A comparison is drawn with Swedish models of disability arts, which tend towards a relative or weaker social model of disability - more akin to the World Health Organisation’s International Classification of Functioning, Disability and Impairment than the model used to in the United Kingdom - which it is argued is more suited to inclusion of young people with learning disabilities. Questions of facilitation, co-creation and participation are examined in light of this comparison. (Edited publisher abstract)
Reluctant participation – the experiences of adolescents with disabilities of meetings with social workers regarding their right to receive personal assistance
- Authors:
- HULTMAN Lill, PERGERT Pernilla, FORINDER Ulla
- Journal article citation:
- European Journal of Social Work, 20(4), 2017, pp.509-521.
- Publisher:
- Taylor and Francis
The aim of this study was to improve understanding of the experiences of adolescents with disabilities concerning meetings that affect their possibility to receive personal assistance in Sweden. Qualitative inductive content analysis was used to describe their experiences. Overall adolescents were found to be reluctant to participate in meetings. Two main approaches could be discerned – taking part and taking part by proxy. The adolescents who took part in meetings tried to adapt their self-presentation to fit with the social workers’ requirements by presenting their worst self, giving requested information, using support and raising their voices. The adolescents who choose to participate by proxy were either being involved or not being involved. Being involved implied involvement before and/or after the meeting. The meaning of participants’ strategies was examined through a social constructivist lens. The results indicate that ‘performing disability’ during the meetings is a prerequisite for obtaining personal assistance. In its current form adolescents’ participation is reduced to tokenism and this raises questions about how to implement a child perspective. (Publisher abstract)
“The things that are inside of you are horrible”: children and young men with Duchenne Muscular Dystrophy talk about the impact of living with a long-term condition
- Authors:
- ABBOTT David, CARPENTER John
- Journal article citation:
- Child Care in Practice, 21(1), 2015, pp.67-77.
- Publisher:
- Taylor and Francis
Duchenne muscular dystrophy (DMD) is an inherited, progressive and life-limiting neuromuscular disease that affects boys. During their lives, they experience a series of medical and surgical interventions. Research reported in this paper took place in England with 37 young men living with DMD and their families and explored their experiences of growing up, school, work, friends and family. In accordance with the social model of disability, this research was initially reluctant to dwell on the physiological aspects of living with a long-term, degenerative condition. The authors focused on social model concerns about the disabling barriers to the participants' participation in society, the disabling responses of professionals and barriers to achieving their aspirations. However, young people with DMD also wanted to talk about how living with the condition caused them considerable pain and discomfort. They also explained the emotional impact of medical and surgical interventions. They reported very few opportunities to discuss these matters with family members or professional. Possible reasons for the absence of discussion about these issues are explored and the authors reflect on the consequences for both the young person and their family. The authors suggest that a reluctance to tackle the thorny issue of “body” and “impairment” in social science research with disabled children and young people means that important aspects of childhood disability are under-explored. (Edited publisher abstract)