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A comparison of reports of caregiver burden between foster family care providers and staff caregivers in other settings: a pilot study
- Authors:
- MCCALLION Philip, NICKLE Tara, McCARRON Mary
- Journal article citation:
- Dementia: the International Journal of Social Research and Practice, 4(3), August 2005, pp.401-412.
- Publisher:
- Sage
There has been increasing concern about the impact of dementia symptoms on the lives and on the care being provided for persons with intellectual disability (ID) in out-of-home settings. One such setting that has received little attention is foster family care homes. These settings in the USA replicate family living and while some supports and resources are provided, they are not designed to meet intensive care needs. As a preliminary step in understanding family experiences and to expand the range of interest in Alzheimer’s disease (AD) in persons with ID beyond traditional out-of-home settings, a pilot study was initiated that included aging persons with ID and symptoms of AD who were living in foster family care settings in two regions of New York State as well as more traditional out-of-home care subjects. Comparisons of matched samples on subjective and objective burden measures suggest that there are few differences in experiences. The limitations of these findings are considered and recommendations made for future, related research.