This webinar discussed ‘dialogue and deliberation’. It focused specifically on engagement by NHS England and Improvement’s London region who have worked in partnership with residents to help shape policy and their response to the pandemic. The webinar focused on why citizen engagement is crucial to COVID-19 recovery and how Integrated Care Systems (ICSs) could benefit from adopting the same
(Edited publisher abstract)
This webinar discussed ‘dialogue and deliberation’. It focused specifically on engagement by NHS England and Improvement’s London region who have worked in partnership with residents to help shape policy and their response to the pandemic. The webinar focused on why citizen engagement is crucial to COVID-19 recovery and how Integrated Care Systems (ICSs) could benefit from adopting the same approach. This is one of a series of Integrated Care Webinars for 2020/21 – the series offers all 42 Sustainability and Transformation Partnerships (STPs) and ICSs the opportunity to learn from good practice, connect with other systems and offer practical solutions to issues that systems may be facing as part of their ICS journey and in their response to COVID-19.
(Edited publisher abstract)
Mental Health Review Journal, 22(2), 2017, pp.111-123.
Publisher:
Emerald
Purpose: The purpose of this paper is to explore how those engaged in service user involvement (SUI) initiatives perceive involvement and recovery; whether involvement is related to their recovery process and, if so, how.
Design/methodology/approach: An exploratory qualitative method, social constructionist grounded theory, was adopted throughout the research process. Nine semi-structured interviews were undertaken with participants who self-defined as having current or previous mental health problems and who were engaged in SUI initiatives.
Findings: Most participants identified explicit links between their own experiences of SUI and recovery. These links represented a connection between the characteristics they perceived to be inherent to involvement and their personal definitions of recovery. In contrast, experiences of consultation and involvement as patient service users was limited and identified as an area for improvement. The core of the tentative grounded theory constructed suggests that individuals found in involvement elements which were concordant with and supported their own definitions of recovery and which were not apparent in their experiences as patients.
Research limitations/implications: The small sample and narrow constituency of participants limit the nature of the claims made by the study.
Practical implications: This study highlights the value of involvement in promoting recovery and indicates the merit of promoting meaningful involvement across the spectrum of the service user experience.
(Edited publisher abstract)
Purpose: The purpose of this paper is to explore how those engaged in service user involvement (SUI) initiatives perceive involvement and recovery; whether involvement is related to their recovery process and, if so, how.
Design/methodology/approach: An exploratory qualitative method, social constructionist grounded theory, was adopted throughout the research process. Nine semi-structured interviews were undertaken with participants who self-defined as having current or previous mental health problems and who were engaged in SUI initiatives.
Findings: Most participants identified explicit links between their own experiences of SUI and recovery. These links represented a connection between the characteristics they perceived to be inherent to involvement and their personal definitions of recovery. In contrast, experiences of consultation and involvement as patient service users was limited and identified as an area for improvement. The core of the tentative grounded theory constructed suggests that individuals found in involvement elements which were concordant with and supported their own definitions of recovery and which were not apparent in their experiences as patients.
Research limitations/implications: The small sample and narrow constituency of participants limit the nature of the claims made by the study.
Practical implications: This study highlights the value of involvement in promoting recovery and indicates the merit of promoting meaningful involvement across the spectrum of the service user experience.
(Edited publisher abstract)
Subject terms:
user participation, recovery, mental health problems, service users, user views;
Journal of Mental Health, 29(4), 2020, pp.464-472.
Publisher:
Taylor and Francis
Place of publication:
London
Background: There is extensive literature documenting the nature of recovery in mental health in adult populations, but there is very little exploring its nature and meaning for young people. Aims: To gain a detailed understanding from the perspective of young people about the concept of recovery in young people’s mental health. Method: Semi structured interviews were conducted with 23 young people. Interviews were transcribed verbatim and analysed using thematic analysis. Results: Themes emerging from the interviews included young people’s dynamic conceptualisations of recovery, awareness of others views of recovery, polarised goals of recovery, and facilitators and barriers of recovery. Conclusions: To be relevant for young people, the mental health recovery model must incorporate individual needs, developmental considerations and fluctuations in goals. It must also be embedded within the young person’s ecological system such as family, friends and school, and be focussed around an explicit and collaborative recovery discussion with the young person.
(Publisher abstract)
Background: There is extensive literature documenting the nature of recovery in mental health in adult populations, but there is very little exploring its nature and meaning for young people. Aims: To gain a detailed understanding from the perspective of young people about the concept of recovery in young people’s mental health. Method: Semi structured interviews were conducted with 23 young people. Interviews were transcribed verbatim and analysed using thematic analysis. Results: Themes emerging from the interviews included young people’s dynamic conceptualisations of recovery, awareness of others views of recovery, polarised goals of recovery, and facilitators and barriers of recovery. Conclusions: To be relevant for young people, the mental health recovery model must incorporate individual needs, developmental considerations and fluctuations in goals. It must also be embedded within the young person’s ecological system such as family, friends and school, and be focussed around an explicit and collaborative recovery discussion with the young person.
(Publisher abstract)
Subject terms:
child and adolescent mental health services, young people, mental health problems, user participation, user views, recovery;
Journal of Mental Health, 28(4), 2019, pp.427-435.
Publisher:
Taylor and Francis
Place of publication:
London
Background: Although recovery-oriented services have been conceptualised to improve personal recovery, related research often focuses on measures of clinical recovery. Identifying the relationships between personal recovery, clinical recovery, and psychosocial variables will inform service components and outcome measurement in recovery-oriented services. Aims: This study sought to determine the connection between personal recovery and two sets of potential contributors: psychosocial variables (i.e., empowerment, resilience, and consumer involvement) and functional indicators of clinical recovery. Method: These relationships were examined by analysing survey data collected from 266 consumers who are receiving public mental health services in the United States. Results: Empowerment, resilience and psychological involvement were associated with personal recovery. Clinical recovery did not uniquely contribute to personal recovery once psychosocial factors were accounted for. Interactions revealed that the relationship between psychological involvement and personal recovery was stronger for those who had been recently hospitalised, and for those with relatively greater resilience. Conclusions: Results indicate that personal recovery is an essential outcome measure for recovery-oriented services that cannot be replaced by clinical recovery outcome measurement. Additionally, empowerment, resilience, and consumer involvement are key components of recovery, which suggests that services and outcome measures should prioritise incorporation of these construct
(Edited publisher abstract)
Background: Although recovery-oriented services have been conceptualised to improve personal recovery, related research often focuses on measures of clinical recovery. Identifying the relationships between personal recovery, clinical recovery, and psychosocial variables will inform service components and outcome measurement in recovery-oriented services. Aims: This study sought to determine the connection between personal recovery and two sets of potential contributors: psychosocial variables (i.e., empowerment, resilience, and consumer involvement) and functional indicators of clinical recovery. Method: These relationships were examined by analysing survey data collected from 266 consumers who are receiving public mental health services in the United States. Results: Empowerment, resilience and psychological involvement were associated with personal recovery. Clinical recovery did not uniquely contribute to personal recovery once psychosocial factors were accounted for. Interactions revealed that the relationship between psychological involvement and personal recovery was stronger for those who had been recently hospitalised, and for those with relatively greater resilience. Conclusions: Results indicate that personal recovery is an essential outcome measure for recovery-oriented services that cannot be replaced by clinical recovery outcome measurement. Additionally, empowerment, resilience, and consumer involvement are key components of recovery, which suggests that services and outcome measures should prioritise incorporation of these construct
(Edited publisher abstract)
Subject terms:
severe mental health problems, recovery, empowerment, resilience, outcomes, user participation;
British Journal of Social Work, 48(7), 2018, pp.2096-2113.
Publisher:
Oxford University Press
Co-production is gaining ground as a key dimension of public policy reform across the globe. This paper argues in favour of social welfare shaped by the principles of co-production and suggests that the promotion of democratic relationships is more likely to enable the agency and recovery of victim-survivors of childhood sexual abuse. The paper, based on an autoethnographical approach, is likely
(Edited publisher abstract)
Co-production is gaining ground as a key dimension of public policy reform across the globe. This paper argues in favour of social welfare shaped by the principles of co-production and suggests that the promotion of democratic relationships is more likely to enable the agency and recovery of victim-survivors of childhood sexual abuse. The paper, based on an autoethnographical approach, is likely to be of relevance to social care practitioners who work with a range of marginalised people, particularly in liberal states that promote organisational cultures shaped disproportionately by risk. Cultures of risk, it is argued, promote power balances and othering—arguably an institutional perpetuation of the original abuse. Co-production, on the other hand, has the potential to legitimise expertise by experience, enabling victim-survivors to be reinstated as citizens with associated rights of participation. The paper subsequently draws out some of the benefits of co-production for practitioners whose professional engagement may be stifled. The authors suggest that co-production potentially points towards practice based on the valuing of expertise by experience and social solidarity.
(Edited publisher abstract)
Subject terms:
co-production, empowerment, child sexual abuse, survivors, recovery, service users, user participation;
British Journal of Social Work, 45(S1), 2015, pp.i45-i61.
Publisher:
Oxford University Press
This paper draws on findings from an Australian study of mental health service users' perspectives on service user participation to examine the challenges for translating recovery policy into practice. It considers the ways in which national mental health policies and developing welfare reforms reflect and/or contradict the highly personal mode of recovery important to service users; though they seemingly signal potential wins for service user empowerment, they are accompanied by losses for those who do not fit neatly into clinical categorisations. The service users (n = 11) and service providers (n = 6) interviewed for this exploratory qualitative study revealed that recovery was a lifelong process of fluctuating capacity and described a system poorly equipped and often unwilling to move beyond tokenistic modes of participation. The analysis of service user perspectives against the backdrop of policy reform reveals the ongoing tensions between personal and clinical definitions of recovery.
(Publisher abstract)
This paper draws on findings from an Australian study of mental health service users' perspectives on service user participation to examine the challenges for translating recovery policy into practice. It considers the ways in which national mental health policies and developing welfare reforms reflect and/or contradict the highly personal mode of recovery important to service users; though they seemingly signal potential wins for service user empowerment, they are accompanied by losses for those who do not fit neatly into clinical categorisations. The service users (n = 11) and service providers (n = 6) interviewed for this exploratory qualitative study revealed that recovery was a lifelong process of fluctuating capacity and described a system poorly equipped and often unwilling to move beyond tokenistic modes of participation. The analysis of service user perspectives against the backdrop of policy reform reveals the ongoing tensions between personal and clinical definitions of recovery.
(Publisher abstract)
Subject terms:
recovery, user participation, mental health problems, mental health services, decision making, empowerment, policy;
BESTER Karen Louise Bester, MCGLADE Anne, DARRAGH Eithne
Journal article citation:
Journal of Mental Health Training Education and Practice, 17(1), 2022, pp.48-60.
Publisher:
Emerald
Purpose: “Co-production” is a process in health and social care wherein service users and practitioners work in partnership. Recovery colleges (RCs) are educational establishments offering mental health education; a cornerstone feature is that courses are designed and delivered in parity by both mental health practitioners and “peers” – people with lived experience of mental illness. This paper felt they were more person-centred. RCs can model good co-productive practices to their host organisations. The review concluded, with some caveats, that RC co-production was of high fidelity. Originality/value: RC research is growing, but the body of evidence remains relatively small. Most of what exists examine the impact of RCs on individuals’ overall recovery and mental health; there is a limited
(Edited publisher abstract)
Purpose: “Co-production” is a process in health and social care wherein service users and practitioners work in partnership. Recovery colleges (RCs) are educational establishments offering mental health education; a cornerstone feature is that courses are designed and delivered in parity by both mental health practitioners and “peers” – people with lived experience of mental illness. This paper aims to consider, through the identification of key themes, whether co-production within RCs is operating successfully. Design/methodology/approach: The paper is a systematic review of qualitative literature. Relevant concept groups were systematically searched using three bibliographic databases: Medline, Social Care Online and Scopus. Articles were quality appraised and then synthesised through inductive thematic analysis and emergent trends identified. Findings: Synthesis identified three key themes relating to the impact of co-production in RCs: practitioner attitudes, power dynamics between practitioners and service users, and RCs’ relationships with their host organisations. As a result of RC engagement, traditional practitioner/patient hierarchies were found to be eroding. Practitioners felt they were more person-centred. RCs can model good co-productive practices to their host organisations. The review concluded, with some caveats, that RC co-production was of high fidelity. Originality/value: RC research is growing, but the body of evidence remains relatively small. Most of what exists examine the impact of RCs on individuals’ overall recovery and mental health; there is a limited empirical investigation into whether their flagship feature of parity between peers and practitioners is genuine.
(Edited publisher abstract)
Subject terms:
co-production, recovery, systematic reviews, mental health, user participation, mental health professionals, literature reviews, mental health education, recovery approach;
Journal of Substance Use, 26(5), 2021, pp.497-504.
Publisher:
Taylor and Francis
Background: Digital interventions can be tailored to the individual and allow automated collection of data. Computer-assisted therapy program ‘Breaking Free Online’ (BFO) is delivered within ‘Change Grow Live’ (CGL) services to support people in recovery from substance misuse. This paper reports baseline data from 5792 participants engaging with BFO at CGL, and post-treatment outcomes from 1489
(Edited publisher abstract)
Background: Digital interventions can be tailored to the individual and allow automated collection of data. Computer-assisted therapy program ‘Breaking Free Online’ (BFO) is delivered within ‘Change Grow Live’ (CGL) services to support people in recovery from substance misuse. This paper reports baseline data from 5792 participants engaging with BFO at CGL, and post-treatment outcomes from 1489 (26%), and describes how baseline characteristics and BFO engagement were associated with outcomes. Methods: Participants completed a baseline assessment, engaged with BFO and completed a post-treatment assessment. Wilcoxon tests examined changes from baseline to post-treatment and linear regression examined associations between baseline service user characteristics, BFO engagement and outcomes. Results: Participants who did not provide post-treatment data had more severe mental health and biopsychosocial impairment at baseline. Outcomes were associated with baseline characteristics including substance use and dependence, biopsychosocial impairment, age and BFO engagement. Outcomes were significantly positively associated with the number of techniques in BFO completed, indicating a ‘dose-response’. Conclusions: Findings indicate positive outcomes for CGL service users who engaged with BFO through to post-treatment outcomes assessment stage. Stratifying BFO to those most likely to engage may improve treatment outcomes. Some groups may benefit from receiving BFO as ‘computer-assisted therapy’ with Practitioner support.
(Edited publisher abstract)
Subject terms:
substance misuse, recovery, digital technology, intervention, outcomes, evaluation, therapies, online services, user participation;
Mental Health and Social Inclusion, 23(2), 2019, pp.76-80.
Publisher:
Emerald
Purpose: The purpose of this paper is to introduce a programme of workshops facilitated on inpatient wards in NSFT which promote recovery through the discussion of spiritual themes. Design/methodology/approach: An introduction to the design principles of the workshops followed by service user narrative. Findings: The contributions by service users demonstrate how addressing their spirituality promotes recovery. Originality/value: This is the first-time workshops on spirituality have been given a structure in a linked series of topics and then evaluated by service users.
(Edited publisher abstract)
Purpose: The purpose of this paper is to introduce a programme of workshops facilitated on inpatient wards in NSFT which promote recovery through the discussion of spiritual themes. Design/methodology/approach: An introduction to the design principles of the workshops followed by service user narrative. Findings: The contributions by service users demonstrate how addressing their spirituality promotes recovery. Originality/value: This is the first-time workshops on spirituality have been given a structure in a linked series of topics and then evaluated by service users.
(Edited publisher abstract)
Subject terms:
hospitals, NHS trusts, case studies, recovery, recovery approach, groupwork, spirituality, service users, user participation;
Mental Health and Social Inclusion, 23(1), 2019, pp.47-52.
Publisher:
Emerald
Purpose: The purpose of this paper is to co-produce the meaning of the word recovery and highlight the challenges to recovery in a secure inpatient setting. Design/methodology/approach: A conversational narrative between a service user and psychologist focussed on the topic of recovery. Findings: It is a reflective account, therefore no findings are required. Originality/value: This is a co-produced paper highlighting a service user’s and psychologist’s perspectives on recovery.
(Edited publisher abstract)
Purpose: The purpose of this paper is to co-produce the meaning of the word recovery and highlight the challenges to recovery in a secure inpatient setting. Design/methodology/approach: A conversational narrative between a service user and psychologist focussed on the topic of recovery. Findings: It is a reflective account, therefore no findings are required. Originality/value: This is a co-produced paper highlighting a service user’s and psychologist’s perspectives on recovery.
(Edited publisher abstract)
Subject terms:
co-production, recovery, mental health, service users, user views, user participation, participatory research, health professionals, psychology;