... cognitive and linguistic ability to be able to participate and varying continence needs. The responses are disused in terms of defining dignity, coping strategies, professional care, communication, personal care, choice and privacy. The views provide evidence of user perceptions of continence services and their preferences; the emphasis being on sensitivity, timeliness, loss of self worth and good
The overall objectives of this two year project were to identify and validate person-centred attributes of dignity in relation to continence, to develop reflective guidelines for the provision of dignified care in this setting and to produce recommendations for best practice. Phase one of the three part study reported here examines attributes of dignified bladder and bowel care using a literature search and interviews with older people in nursing homes and hospitals. The literature search focused on three main areas, dignity and older people, dignity and continence, and dignity and care. This revealed that knowledge is limited to broad descriptions of the pathways care should take to achieve dignity; little is understood about how dignified care can actually be undertaken and achieved, particularly from a user perspective. Qualitative research then explored what dignified care meant to older people. Residents of two nursing homes and patients in an acute hospital setting were included from London and Kent (two contrasting areas in terms of socio-economic profiles and healthcare provision). Thirty three interviews were achieved. Those included were aged over 65 years, had sufficient cognitive and linguistic ability to be able to participate and varying continence needs. The responses are disused in terms of defining dignity, coping strategies, professional care, communication, personal care, choice and privacy. The views provide evidence of user perceptions of continence services and their preferences; the emphasis being on sensitivity, timeliness, loss of self worth and good communication.
Subject terms:
incontinence, person-centred care, privacy, user views, dignity;
Psychiatric Bulletin, 29(6), June 2005, pp.207-209.
Publisher:
Royal College of Psychiatrists
As part of the total experience of hospital admission, it is important to ensure that ward rounds are efficient and acceptable to patients. Self-completed questionnaires relating to the conduct of the ward round were given to a consecutive series of 100 in-patients admitted to four psychiatric wards serving one half of the population of Cornwall. Twenty-two patients disliked being seen in their own bedrooms, 54 disliked large ward rounds and three-quarters liked having an exact appointment time. There was a group of patients who felt particularly anxious before or during the ward round. It is important to reconsider the conduct of the ward round, and in so doing to balance the preferences of the patient with the needs of the multidisciplinary team.
As part of the total experience of hospital admission, it is important to ensure that ward rounds are efficient and acceptable to patients. Self-completed questionnaires relating to the conduct of the ward round were given to a consecutive series of 100 in-patients admitted to four psychiatric wards serving one half of the population of Cornwall. Twenty-two patients disliked being seen in their own bedrooms, 54 disliked large ward rounds and three-quarters liked having an exact appointment time. There was a group of patients who felt particularly anxious before or during the ward round. It is important to reconsider the conduct of the ward round, and in so doing to balance the preferences of the patient with the needs of the multidisciplinary team.
Subject terms:
patients, psychiatric care, privacy, user views, health professionals;
... identifies severely detrimental, far reaching consequences for children, whose private and intimate lives are made public and in which they had no choice, including serious depression, self-harm and suicide. It demonstrates that the right to privacy is paramount to children, together with a duty for adults and the media to gain children’s informed consent before publishing information about them.
(Edited publisher abstract)
This report sets out the findings of a consultation with 11 young people about their views on media access to family court hearings, the use of pictures of babies, children and young by the media, the impact on children and young people of media reporting of cases, reporters’ access to family court documents, and on publication of judgments and identification of children involved. The report identifies severely detrimental, far reaching consequences for children, whose private and intimate lives are made public and in which they had no choice, including serious depression, self-harm and suicide. It demonstrates that the right to privacy is paramount to children, together with a duty for adults and the media to gain children’s informed consent before publishing information about them. The report concludes that the framework for this area of legal policy has to be considered against the commercial imperatives of the contemporary media and not an ideologically driven agenda about public education, which the press itself does not claim to fulfil.
(Edited publisher abstract)
Subject terms:
mass media, Family Courts, privacy, children, child protection, young people, user views;
Ageing and Society, 30(6), August 2010, pp.1073-1088.
Publisher:
Cambridge University Press
... was inevitable but would bypass some carers who saw themselves as too old. Carers expressed a general enthusiasm for the benefits of ICT, but usually not for themselves, and they identified several key challenges including: establishing an appropriate balance between, on the one hand, privacy and autonomy and, on the other: maximising safety; establishing responsibility for and ownership of the equipment
Dementia is one of the greatest contemporary health and social care challenges, and novel approaches to the care of its sufferers are needed. New information and communication technologies (ICT) have the potential to assist those caring for people with dementia, through access to networked information and support, tracking and surveillance. This project sought to investigate the perspectives of carers of people with dementia about these new technologies. Semi-structured interviews were used to identify and explore in depth the views of 34 carers of people with dementia, and a group discussion with 9 carers for respondent validation was also held. The carers' actual use of new ICT was limited, although they thought a gradual increase in the use of networked technology in dementia care was inevitable but would bypass some carers who saw themselves as too old. Carers expressed a general enthusiasm for the benefits of ICT, but usually not for themselves, and they identified several key challenges including: establishing an appropriate balance between, on the one hand, privacy and autonomy and, on the other: maximising safety; establishing responsibility for and ownership of the equipment and who bears the costs; the possibility that technological help would mean a loss of valued personal contact; and the possibility that technology would substitute for existing services rather than be complementary.
Subject terms:
information technology, privacy, user views, assistive technology, carers, dementia;
... cope with undignified experiences are discussed within the predominant domains of dignity, choice and care, communication and care, privacy, and hygiene and comfort. The final stage of the project will be to develop guidelines for reflective practice, implement them and evaluate them using a validation process with continence and dignity experts.
This report describes Phase 2 of a two year project. Phase 1 provided a foundation for the work by looking at attributes of dignified bladder and bowel care using a literature review supported by interviews. Phase 2 was in two stages, and sought to develop and refine person-centred attributes of dignity in continence care through observation and validation in nursing home and hospital settings. Stage 1 developed and piloted a detailed structured observation schedule for measuring the quality of care, using the attributes identified in Phase 1. However, direct observation proved unfeasible and was changed to a post event qualitative validation approach. The challenges of, and rationale for, this methodological change are discussed. Stage 1 involved interviews with 10 individuals aged 65 plus with varying faecal/urinary continence needs living in a nursing home or as hospital inpatients in London or Kent. Stage 2 validated the observed attributes to check they were complete, reflective of and compatible with the patient experience using semi-structured interviews with four participants in Kent; well below the planned number of 20. The views of interviewees and the strategies they use to help them cope with undignified experiences are discussed within the predominant domains of dignity, choice and care, communication and care, privacy, and hygiene and comfort. The final stage of the project will be to develop guidelines for reflective practice, implement them and evaluate them using a validation process with continence and dignity experts.
Subject terms:
incontinence, person-centred care, privacy, user views, coping behaviour, dignity;
This report provides a selection of interim findings based on in-depth interviews with 35 children and young people. The study is funded by the Children’s Commissioner for England and aims to provide information from children and young people to assist policy makers and practitioners when considering their needs and rights in complex questions about media access to family courts, and issues of transparency in the family justice system. The research addresses both recent changes to the Rules (April 2009) permitting media into family hearings, and further issues raised by aspects of Part 2 of the Children, Schools and Families Bill – family courts, regarding sensitive information and information pertaining to the identity of children and families. At this interim stage, the findings indicate some serious problems are likely to arise for children, clinicians and thus family courts, with significant implications for children’s safety and well-being.
This report provides a selection of interim findings based on in-depth interviews with 35 children and young people. The study is funded by the Children’s Commissioner for England and aims to provide information from children and young people to assist policy makers and practitioners when considering their needs and rights in complex questions about media access to family courts, and issues of transparency in the family justice system. The research addresses both recent changes to the Rules (April 2009) permitting media into family hearings, and further issues raised by aspects of Part 2 of the Children, Schools and Families Bill – family courts, regarding sensitive information and information pertaining to the identity of children and families. At this interim stage, the findings indicate some serious problems are likely to arise for children, clinicians and thus family courts, with significant implications for children’s safety and well-being.
Subject terms:
mass media, privacy, publicity, user views, young people, children, Family Courts;
Counselling and Psychotherapy Research, 6(3), September 2006, pp.169-174.
Publisher:
Wiley
This study used a Consensual Qualitative Research methodology to explore the motivations and experiences of young people who utilize the Internet for counselling over other counselling media. Semi-structured online group interviews (focus groups) were conducted with 39 participants from the Kids Help Line, a 24-hour national telephone and counselling service located in Australia. Analysis revealed five domains relevant to the adolescents’ motives and experiences and the frequency of categories within and across cases were analyzed to generate and understand themes and patterns. Specific motivators and barriers are identified and discussed, as are implications for practice and continued research.
This study used a Consensual Qualitative Research methodology to explore the motivations and experiences of young people who utilize the Internet for counselling over other counselling media. Semi-structured online group interviews (focus groups) were conducted with 39 participants from the Kids Help Line, a 24-hour national telephone and counselling service located in Australia. Analysis revealed five domains relevant to the adolescents’ motives and experiences and the frequency of categories within and across cases were analyzed to generate and understand themes and patterns. Specific motivators and barriers are identified and discussed, as are implications for practice and continued research.
Subject terms:
helplines, internet, mental health problems, privacy, user views, young people, counselling;
In this American study the authors researched elders' perceptions of quality of life in nursing homes using focus groups. Analysis revealed four major themes important to residents: generativity, spiritual well-being, homelike environment, and privacy. Themes were used to analyze the disparity between the American Nursing Home Reform Act's goal of dual emphasis on quality of care and quality
In this American study the authors researched elders' perceptions of quality of life in nursing homes using focus groups. Analysis revealed four major themes important to residents: generativity, spiritual well-being, homelike environment, and privacy. Themes were used to analyze the disparity between the American Nursing Home Reform Act's goal of dual emphasis on quality of care and quality of life outcomes, and the dominance of quality of care in the treatment of frail elders living in nursing homes. The authors argue that policies and procedures must be developed that promote decisional control in everyday matters of an older person's life. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580).
Subject terms:
nursing homes, older people, privacy, quality of life, residents, spirituality, user views;
... to relaxation and sleep; in lounge, being excluded from the group can be a source of negative feelings. Lack of well-being in the bathroom is related to feelings of incapacity and to violations of privacy. Practical implications of findings are discussed with regard to the role of health care assistants, nurses and activities co-ordinators in the promotion of residents’ well-being.
(Edited publisher abstract)
The aim of the present paper is to analyse the well-being of elderly people in institutions, particularly in relation to the use of space in the Nursing Home (NH). Little research has been done on how older people experience the environment of the NH. Semi-structured interviews were conducted with 18 Nursing Home residents between the ages of 67 and 90. The findings indicate that the informants’ expressions of well-being belong to two main categories: “Well-being in public and private spaces” “Lack of Well-being in public and private spaces”. Two comprehensive themes were identified as relevant to a better understanding of the residents’ expressions of well-being: Emotional states, Own/Others’ behaviours and activities. From results emerged that in residents’ room, peacefulness is fundamental to relaxation and sleep; in lounge, being excluded from the group can be a source of negative feelings. Lack of well-being in the bathroom is related to feelings of incapacity and to violations of privacy. Practical implications of findings are discussed with regard to the role of health care assistants, nurses and activities co-ordinators in the promotion of residents’ well-being.
(Edited publisher abstract)
Subject terms:
wellbeing, older people, nursing homes, residential care, service users, user views, privacy, relationships;
Looking at views from 51 children, young people and adults (9-23 years, majority aged 11-17) interviewed for the Office of the Commissioner for Children between November 2009 - January 2010, about media access to Family Courts in England. The article is written in the context of the lack of research on children/young people’s views on this issue, Part 2 of the Child School and Families Act, recent changes (following the election) at the Lord Chancellor and Ministry of Justice and the CAFCASS attitude of accepting/supporting ‘the position of the current Lord Chancellor and Minister of Justice. Vignettes of ‘real’ cases are published in the ‘11milllion’ report (March 2010) and this paper discusses its findings under headings of ‘reporters in court’, ‘publishing information from cases and judgements’, ‘children’s safety and welfare and issues of ethical integrity’, ‘views about children’s rights to privacy’, ‘children and young people’s views about the press’, ‘educating the public’, ‘naming social workers, guardians, family court advisors and doctors in newspaper stories, and allowing reporters to read their reports’, and ‘evidence-based policy’. Recommendations, such as a call for independent review are explored.
Looking at views from 51 children, young people and adults (9-23 years, majority aged 11-17) interviewed for the Office of the Commissioner for Children between November 2009 - January 2010, about media access to Family Courts in England. The article is written in the context of the lack of research on children/young people’s views on this issue, Part 2 of the Child School and Families Act, recent changes (following the election) at the Lord Chancellor and Ministry of Justice and the CAFCASS attitude of accepting/supporting ‘the position of the current Lord Chancellor and Minister of Justice. Vignettes of ‘real’ cases are published in the ‘11milllion’ report (March 2010) and this paper discusses its findings under headings of ‘reporters in court’, ‘publishing information from cases and judgements’, ‘children’s safety and welfare and issues of ethical integrity’, ‘views about children’s rights to privacy’, ‘children and young people’s views about the press’, ‘educating the public’, ‘naming social workers, guardians, family court advisors and doctors in newspaper stories, and allowing reporters to read their reports’, and ‘evidence-based policy’. Recommendations, such as a call for independent review are explored.
Subject terms:
mass media, privacy, user views, young adults, young people, access to information, case studies, CAFCASS, children, Family Courts;