Search results for ‘Subject term:"prader-willi syndrome"’ Sort:
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Skin-Picking in individuals with Prader-Willi syndrome: prevalence, functional assessment, and its comorbidity with compulsive and self-injurious behaviours
- Authors:
- DIDDEN Robert, KORZILIUS Hubert, CURFS Leopold M G
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 20(5), September 2007, pp.409-419.
- Publisher:
- Wiley
Individuals with Prader-Willi syndrome (PWS) are at increased risk for mental health and behaviour problems, such as skin-picking and compulsive behaviours. Prevalence and functional assessment of skin-picking, and its association with compulsive behaviour and self-injury, were investigated in a large group of individuals with PWS (n = 119) from the Netherlands. Data on demographic characteristics, skin-picking and compulsive and self-injurious behaviours were collected by questionnaires. Behavioural function of skin-picking was assessed by administering the Questions About Behavioral Function scale. Skin-picking was found in 86% of the sample, and correlated positively with compulsive behaviours. No associations were found between skin-picking and other variables. Functional assessment suggest that in most cases (i.e. 70%) skin-picking primarily had non-social functions. Skin-picking and compulsive behaviours are common in PWS. In most cases, skin-picking may be maintained by contingent arousal reduction. Controlled studies on behavioural treatment are lacking. Implications for treatment selection are discussed.
Beyond the veneer: a guide to the essential features of residential care and supported living for adults with Prader-Willi Syndrome; for purchasers, providers, parents and carers
- Editor:
- WATERS Jackie
- Publisher:
- Prader-Willi Syndrome Association UK
- Publication year:
- 1997
- Pagination:
- 25p.,bibliog.
- Place of publication:
- Derby
Presents an overview of the characteristics of Prader-Willi syndrome and goes on to look at the need for residential or supported care in adult life. Examines options for accommodation, the framework of residential care or supported living appropriate to PWS, and summarises the essential characteristics of the care package.
Prader—Willi syndrome compulsive and ritualistic behaviours: the first population-based survey
- Authors:
- CLARKE D.J., et al
- Journal article citation:
- British Journal of Psychiatry, 180, April 2002, pp.358-362.
- Publisher:
- Cambridge University Press
Obsessive-compulsive disorder has been reported in association with Prader-Willi syndrome. This study reports the nature and prevalence of compulsive and similar symptoms associated with Prader-Willi syndrome in a population ascertained as completely as possible The results suggest that ritualistic and compulsive behaviours occur more frequently in association with Prader-Willi syndrome than among people with intellectual disability and significant obesity.
Enabling carers to access specialist training in breakaway techniques: a case study
- Authors:
- GREEN T., WRAY J.
- Journal article citation:
- Journal of Learning Disabilities for Nursing Health and Social Care, 3(1), March 1999, pp.34-38.
This article explores the experience of one family, whose child had Prader-Willi Syndrome and severe behavioural difficulties, and the process undertaken to access specialist training in 'Breakaway' training. Prader-Willi syndrome has been associated with a range of behavioural difficulties including hyperphagia and food preoccupation, temper tantrums, stubbornness, lability, impulsivity, argumentativeness, depression, anxiety and repetitive behaviours. To ensure safety of both the parents and the child, access to training in 'Breakaway techniques' for the carers was procured, at the carers request. This paper concentrates upon the difficulties encountered during this process, both for the family and the professionals involved.