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Our conference, our say
- Author:
- SMITH Ruth
- Journal article citation:
- Children Now, 13.09.06, 2006, pp.22-23.
- Publisher:
- Haymarket
The author reports on Ealing Council's 'Powerful Voices' conference which ensures that children participate in the services that affect them. The conference is unusual in that all the presentations are conducted by the children and young people themselves.
“Yes they are listening but do they hear us?” reflections on the journey of the Barnardo's participation project
- Author:
- MURRAY Rosemary
- Journal article citation:
- Child Care in Practice, 21(1), 2015, pp.78-90.
- Publisher:
- Taylor and Francis
The Barnardo's Participation Project, previously known as the Disabled Children and Young People's Participation Project, was established by Barnardo's (Northern Ireland) in 2002. The aim of the Project was to develop ways of involving children and young people with disabilities in decision-making in relation to health and social care and children's services planning processes. Since its inception, hundreds of children and young people, with a range of physical and learning disabilities, sensory impairments and autism as well as life-limiting conditions, have participated in the Project. This paper describes how the Project has evolved over the years in response to emerging issues identified by the members as well as the demands of changing organisational and political contexts. Reflecting on the journey of the Project, the paper identifies the factors that contribute to successful participation practice and the challenges to participatory practice in recent years. As the title of this article suggests, the Project has found that children and young people with disabilities are skilled in recognising the difference between tokenistic consultation and meaningful participation. Within policy there is a strong emphasis on service user involvement; however, the principles of good participation practice require specific knowledge and attention. Good participation practice requires policy-makers and professionals to realign themselves with the rights of children and young people to have their say. The value of true, meaningful participation is evidenced by seeking and acting on their views about issues that affect their lives.
Learning to listen: consulting children and young people with disabilities
- Author:
- LEWIS Maddy
- Publisher:
- Save the Children UK
- Publication year:
- 2001
- Pagination:
- 52p.
- Place of publication:
- London
Disabled young people have the same rights as everybody else, but their needs often have to be met differently. For instance, all young people have the right to have a say in decisions that affect them. It can be hard enough for a non-disabled teenager to get adults to understand them, but for a young person who isn't able to speak or write things down, it can be impossible unless others find alternative ways of communicating with them - for example, through body language or special equipment. Many disabled young people's needs aren't properly met because the mainstream idea that social exclusion means not having a job, training or qualifications doesn't necessarily apply to them. The isolation felt by many disabled young people will only disappear when adults - from parents and teachers to doctors and government policy-makers - learn how to consult and listen to them.
Will it ever get sorted?: full report of consultation with disabled children and young people in Hammersmith and Fulham
- Author:
- HAMMERSMITH AND FULHAM. Social Services Department
- Publisher:
- Hammersmith and Fulham. Social Services Department
- Publication year:
- 2002
- Pagination:
- 60p.
- Place of publication:
- London
Describes the consultation with disabled children and young people in Hammersmith and Fulham. Models of participation are described including training young disabled people in research skills, encouraging understanding about local community and learning about local authority, service planning and decision making. Key aims were for young people (16 – 20 ) lead and develop projects in their local community, and for the project to include participation by other young disabled people in the running of the project.
Involving young people in health service development
- Author:
- SOCIAL POLICY RESEARCH UNIT
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2002
- Pagination:
- 4p.
- Place of publication:
- York
Summarises research findings from a project to investigate how the NHS consults with chronically ill and disabled young people and to identify factors to support and promote young patients' involvement in service development. The project surveyed 99 health authorities and 410 NHS Trusts in England, and identified 27 projects involving young patients with a chronic illness of physical disability. Data were analysed quantitatively and qualitatively. Six of the projects were examined in greater depth. Discusses levels of involvement; benefits of involvement; and consultation methods.
Listening to the views, wishes and feelings of disabled children and young people in the Quality Protects era
- Author:
- KHAN John
- Publisher:
- Council for Disabled Children
- Publication year:
- 2001
- Pagination:
- 41p.
- Place of publication:
- London
Real consultation with children and young people with communication or learning disabilities still poses major challenges for professionals. It has been demonstrated that communication is possible, indeed essential, even when children have complex communication difficulties. Consultation with children and young people should not be viewed as an optional extra, but as an integral aspect where services impact on the lives of young people. As part of the Quality Protects programme the Council for Disabled Children has been working closely with numerous local authorities to find ways of involving disabled children and young people, not in only in their own statutory care reviews, but also in the development of the services they receive.
Getting the hump with HImPs
- Authors:
- UNDERDOWN Angela, SEXTY Carol
- Journal article citation:
- Health Service Journal, 27.1.00, 2000, pp.22-24.
- Publisher:
- Emap Healthcare
Reports on a nationwide survey which shows that, despite some good initiatives, most Health Authorities are failing to prioritise the needs of children and young people in health improvement programmes.
Ambiguity and user involvement: issues arising in assessments for young people and their carers
- Author:
- DAY Peter R.
- Journal article citation:
- British Journal of Social Work, 24(5), October 1994, pp.577-596.
- Publisher:
- Oxford University Press
Reviews issues for service users and professional staff arising from contemporary community care policies emphasizing user involvement. Against the background of a key expression of these policies, the Disabled Persons' Act of 1986, methods of providing assessments involving young people with learning disabilities are analysed. Problems identified for further study included difficulties arising for young people due to lack of experience and immaturity, the low expectations of their parents or carers, problems arising from the culture of services and how assessments may be developed which provide seriously disabled users themselves with ways of expressing their wants and needs.