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An accessible website to boost independence in young people with physical impairments
- Authors:
- JAMES Carrie, DRINAN Kathie, HYKIN Julie
- Journal article citation:
- Nursing Times, 30.11.10, 2010, pp.15-16.
- Publisher:
- Nursing Times
The Queen's Nursing Institute Fund for Innovation awarded the health transition team in Walsall £7,500 to fund their transitional website project, The website supports young people with physical impairments to access a wide range of information independently. This article offers information to those who wish to improve practice and work innovatively.
Family needs of parents of children and youth with cerebral palsy
- Authors:
- PALISANO R. J., et al
- Journal article citation:
- Child: Care, Health and Development, 36(1), January 2010, pp.85-92.
- Publisher:
- Wiley
Understanding the needs of families of children and youth with cerebral palsy (CP) is important for family-centred services. This study aimed to identify differences in the number and types of family needs expressed by parents based on the age and gross motor function level of their children with CP, identify the most frequent family needs, and identify needs that differ on gross motor function level. 501 parents of children and youth with CP completed a modified version of a Family Needs Survey and a demographic questionnaire. Children's gross motor function level was classified using the Gross Motor Function Classification System. Family needs, including information, community services and finances, differed in number according to gross motor function level. Parents of children/youth using wheeled mobility expressed the most family needs, while those with children/youth who walk without restrictions expressed the fewest. Parents of children and youth using wheeled mobility were more likely to express the need for help in paying for home modifications, equipment, services and locating sitters, respite care providers and community activities. The gross motor function level of children/youth with CP has implications for families’ needs and coordination of services. Family needs for future planning suggest that health professionals should assist families to prepare for key periods in the lives of their children with CP.