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Selling your soul to the devil: an autoethnography of pain, pleasure and the quest for a child
- Author:
- NEVILLE-JAN Ann
- Journal article citation:
- Disability and Society, 19(2), March 2004, pp.113-127.
- Publisher:
- Taylor and Francis
In this article the author presents an autoethnography in the form of a quest narrative linked as a self-reflexive text to her continuing research of children and adults with spina bifida. The story centers on the themes of chronic illness, pain and sexuality, highlighting gaps in the literature related to these topics. She narrates her story as a manifesto for women with physical impairments to break their silence and talk about their sexuality. She recommends autoethnography as a method of understanding disability as embodied.
No African renaissance without disabled women: a communal approach to human development in Cape Town South Africa
- Author:
- LORENZO Theresa
- Journal article citation:
- Disability and Society, 18(6), October 2003, pp.759-778.
- Publisher:
- Taylor and Francis
Disabled women who live in wooden shacks in the peri-urban areas of Khayelitsha in Cape Town, South Africa, participated in storytelling workshops over a two-and-a-half-year period. They shared experiences of what helped or hindered their social and economic development since becoming disabled. The workshops were part of a participatory action research (PAR) study of the Division of Occupational Therapy, University of Cape Town, together with Disabled People South Africa (DPSA) and the Zanempilo Health Trust [formerly South African Christian Leadership Assembly (SACLA) Primary Health Care Project]. The findings revealed the struggles and sadness, as well as the strengths and spirit that the women experienced within their every day context at an individual, family and community level. The women spoke strongly about meeting physical, emotional, and spiritual needs (human development) as the means to social and economic development. The discussion reflects on the many paradoxes of disability encapsulated in the essence of interdependence of Ubuntu. Three themes discussed are building emotional resourcefulness: nurturing children and families in disability issues; and renewing spirituality and Ubuntu in disability and development programmes. In conclusion, managing the paradoxes of disability, the creation of a new individual and collective identity, and the capacity to change are proposed as the way forward.
Practitioner social work research in action
- Editors:
- BROAD Bob, FLETCHER Colin
- Publisher:
- Whiting and Birch
- Publication year:
- 1993
- Pagination:
- 194p.,bibliog.
- Place of publication:
- London
Contains research findings, as well as accounts of the development and adaptation of relevant research methods. Chapters are grouped into 4 types of practitioner research: investigation; appraisal; innovation; and state of the art reviews. Includes papers on: placing people with learning difficulties in employment; emergency social service duty systems; women in social services management; perceptions of a children's observation and assessment centre; problem drinkers on probation; dealing with clients with mental health problems; assessment of user needs; applying life history work; recognising elder abuse; the tutorial system in social work education; the adoption of children with learning difficulties; and an agenda for practitioner research.