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The Northern Ireland Disability Council annual report for 1998-1999 laid by the Department of Health and Social Services before the Assembly ...
- Author:
- NORTHERN IRELAND DISABILITY COUNCIL
- Publisher:
- Stationery Office
- Publication year:
- 1999
- Pagination:
- 36p.
- Place of publication:
- Belfast
Contains information on: the role and functions of the Northern Ireland Disability Council; the changing environment; monitoring the law; public consultations; and issues raised.
Supporting disabled children and their families in Northern Ireland: a research and policy review
- Authors:
- KELLY Berni, MONTEITH Marina
- Publisher:
- National Children's Bureau
- Publication year:
- 2003
- Pagination:
- 12p.
- Place of publication:
- London
Research has provided valuable information on how support services in Northern Ireland can be targeted to meet the needs of disabled children and their families, some of which is based on the views of these children and their parents who are most able to identify the types of services they require. It is imperative that this knowledge is incorporated into the delivery and development of support services in Northern Ireland. Research suggests that parents experience poorly coordinated systems and inadequate services especially at particular stages, such as diagnosis or post-school transitions. Respite care services hold potential benefits for disabled children and their families but need to be more flexible, comprehensive, family based and focused on the needs and wishes of disabled children. There is a need to develop more integrated recreational, social and leisure opportunities for disabled children to help combat their social exclusion.
Improving the well-being of disabled young people
- Authors:
- KELLY Grace, KELLY Bernie, MACDONALD Geraldine
- Publisher:
- Queen's University Belfast. Institute of Child Care Research
- Publication year:
- 2016
- Pagination:
- 127
- Place of publication:
- Belfast
Drawing on the views of 37 young disabled people in Northern Ireland, this report looks at how they feel about their own well-being and how they experience everyday life. The report identifies common triggers for positive and negative feelings and highlights opportunities for improving well-being. Participants were between 10 and 24 years of age and included young people with physical and learning and communication difficulties. The report provides an overview of the policy landscape, discusses the concept of subjective well-being, the role it plays in contributing to the quality of life and ways of measuring subjective well-being. Drawing on interviews, the report discusses the findings in the following areas: the extent to which adolescents are satisfied with their life; how their experiences contribute to the conditions that can enhance or diminish well-being; and the factors that young people feel are most important for building their capability to enjoy a happy and fulfilled life. Key messages include: the need to protect disabled young people and their families from poverty; the importance of formal sources of participation for social interaction in improving well-being; and how involvement of young people with particular needs in the design stages of programmes can overcome barriers to participation. (Edited publisher abstract)
Disabled children and young people in out-of-home-care: summary report
- Authors:
- KELLY Berni, DOWLING Sandra, WINTER Karen
- Publishers:
- Queens University Belfast, Northern Ireland. Office of the First Minister and Deputy First Minister
- Publication year:
- 2016
- Pagination:
- 68
- Place of publication:
- Belfast
This report summarises the key findings of an Office of the First Minister and Deputy First Minister (OFMDFM) funded study to examine the over-representation of disabled children and young people in out-of-home care in Northern Ireland (NI). It summarises the findings of a review of literature on out-of-home care for disabled children and young people and looks at the demographic profile of disabled children in out-of-home care, those fully looked after and those looked after for short breaks. Drawing on the findings of interviews and analysis of case files, it presents findings on the needs and experiences of fully looked after disabled children, as well as the views of their birth parents, carers and social workers. The research found evidence of good professional practice, including examples of partnerships with families and integrated working. Areas identified for development and improvement include: early intervention and family support; investment in relationships and support whilst in care; inequality in services access, for example CAMHS; investment in a broader range of placement options and increased opportunity for permanence; improvement in multi-disciplinary and multi-sector working; promoting children's participation in services. (Edited publisher abstract)
The circumstances, experiences and aspirations of young people with disabilities making the transition to adulthood: part II of a three year project entitled the welfare of children and young people in Northern Ireland
- Authors:
- MONTEITH Marina, SNEDDON Helga
- Publisher:
- Northern Ireland. Queen's University of Belfast. Department of Social Work. Cent
- Publication year:
- 1999
- Pagination:
- 75p.,bibliog.
- Place of publication:
- Belfast
Part II of a three part study. Reports on a focused investigation regarding young people with disabilities making and dealing with the transition to adulthood. Describes the experiences of the young people in terms of: leaving school and undertaking further education, work training, or employment; independent living and personal autonomy; social interaction and community participation; and adult roles within the family. Explores the aspirations of the young people for their future as adults. Examines their experiences of social work services and explores their social care needs. Finally, considers the implications of the needs, circumstances, and aspirations of young disabled people for the implementation of the Children (NI) Order 1995.
On patient satisfaction in cerebral palsy care
- Authors:
- BAMFORD David, GRIFFITHS Huw, KERNOHAN George
- Journal article citation:
- British Journal of Social Work, 27(4), August 1997, pp.605-614.
- Publisher:
- Oxford University Press
To investigate the capacity for all-round service provision in Northern Ireland, this article describes the results of a survey to obtain both quantitative and qualitative data on the degree of social and health care support for families with a child affected by cerebral palsy. Results suggest that, while clinical medical care is generally good, the role of social support in health care management seems poorly defined, fragmented and variable.
The users committee: empowering users in a day centre
- Author:
- KILLEN Helene
- Journal article citation:
- Social Action, 2(3), 1995, pp.7-8.
- Publisher:
- Whiting and Birch
Describes a centre based eight week groupwork programme, leading to the formation of a user group and explores some implications for users staff and agency. The day centre is based in a small market town near Belfast and services a group of adults with a variety of disabilities and learning difficulties.
What the future holds: older people caring for adult sons and daughters with disabilities
- Authors:
- DILLENBURGER Karola, MCKERR Lyn
- Publisher:
- Changing Ageing Partnership
- Publication year:
- 2009
- Pagination:
- 150p., bibliog.
- Place of publication:
- Belfast
This report is based on interviews with 29 parents reporting on 27 adult sons and daughters with disabilities in which issues were explored in relation to present life circumstances, support from family and service providers, levels of health and impairment, and futures planning. Findings expose high levels of commitment and love for sons and daughters in the face of, at times, severe disabilities and carers’ ill health. Carers also experienced twice the level of psychological stress than the general population. They faced worry and loneliness, experienced severe lack of statutory support, and reported near non-existence of futures planning, especially in cases with highest levels of impairment.