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Adapted bikes – what children and young people with cerebral palsy told us about their participation in adapted dynamic cycling
- Authors:
- PICKERING Dawn M., et al
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 8(1), 2013, pp.30-37.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: Children and young people with Cerebral Palsy have limited opportunities for participation and there has been limited research to explore this concept. Adapted dynamic cycling (ADC) is one activity that can enable them to participate in the community. The aim of this paper is to report the views and experiences of children and young people with CP and their families regarding their participation in ADC. Methods: This was part of a mixed methods study of which the qualitative findings are reported here. Iterative creative methods were developed which involved semi-structured interviews and diaries about the ADC experience. Results: The themes that emerged were the staff and the environment at the cycling hire project, the facilitators and barriers to ADC, the technical set up of the bike and the impact on the child and family in terms of developments over time, future aspirations, learning cycling skills, social participation and health benefits. Conclusions: The data showed that children’s experiences of ADC were fun and enjoyable. This fun exercise should be incorporated into a physiotherapy programme as part of the child or young person with CP’s rehabilitation. Policy makers and parents may find the information useful to increase the child’s participation.
Primary-care based participatory rehabilitation: users’ views of a horticultural and arts project
- Authors:
- BARLEY Elizabeth A., ROBINSON Susan, SIKORSKI Jim
- Journal article citation:
- British Journal of General Practice, 62(595), February 2012, pp.88-89.
- Publisher:
- Royal College of General Practitioners
Sydenham Garden is a primary care based horticultural and arts rehabilitation project for people with significant mental or physical illness. The project comprises a garden, a nature reserve, and weekly arts groups. Users are referred to the project by local professionals, such as general practitioners. The aim of this study was to determine the views of the users on participation in the project. In-depth interviews were held with 16 participants. Thematic analysis of the transcripts revealed 6 themes: joining and motivations; improved wellbeing; relationships; ownership; being outdoors; and transferrable skills. The findings were overwhelmingly positive. On referral to the project, the users reported considerable need and social isolation. The project promoted wellbeing by providing purposeful and enjoyable activity and interest, improved mood and self-perceptions, and providing escape from life’s pressures. Many users developed transferable skills and gained nationally recognised qualifications. The opportunity for social contact was especially valued.
Work after stroke: focusing on barriers and enablers
- Authors:
- LOCK Sarah, et al
- Journal article citation:
- Disability and Society, 20(1), January 2005, pp.33-47.
- Publisher:
- Taylor and Francis
Previous research on work after stroke has used quantitative methods and a medical model approach to identify factors that influence return to work. This study uses an inclusive, qualitative methodology (focus groups) to begin to explore stroke survivors' own perspectives about what helps and hinders paid or voluntary work after stroke. The research was conducted in partnership with Different Strokes, a British organisation of stroke survivors. Five focus group discussions were held with 37 stroke survivors and 12 of their supporters. Data was analysed using an adapted Framework approach to identify themes within and across individuals and groups. Factors representing barriers to or enablers of work were identified in four key themes: rehabilitation process, employer agency, social structural and personal. The study found evidence of social oppression via infrastructure, institutional structures and practices, and some individuals' attitudes. Alongside this, some supportive individuals, practices and strategies were identified.
A qualitative study of the perceptions of individuals with disabilities concerning health and rehabilitation professionals
- Author:
- CRISP Ross
- Journal article citation:
- Disability and Society, 15(2), March 2000, pp.355-367.
- Publisher:
- Taylor and Francis
This Australian study examines the perceptions of persons with disabilities concerning their interaction with health and rehabilitation professionals.
Living with brain injury: a guide for families and caregivers
- Editors:
- ACORN Sonia, OFFER Penny
- Publisher:
- University of Toronto Press
- Publication year:
- 1998
- Pagination:
- 190p.
- Place of publication:
- Toronto
Practical text aimed at people with brain injury and their friends, families and carers. Includes chapters on: what brain injury is; a survivor's view; the rehabilitation team; hospital and after; case management; long term adjustment following significant brain injury; psychosocial effects; children and young people with brain injuries; couple issues; brain injury and the family system; leisure and recreation; and the family as caregiver.
Voices and choices: young people who use assisted ventilation; their health and social care, and education
- Author:
- NOYES Jane
- Publisher:
- Stationery Office
- Publication year:
- 1999
- Pagination:
- 105p.,list of orgs.,bibliog.
- Place of publication:
- London
Examines the experience of being a young person dependent on a ventilator. Goes on to look at: the policy context; children's rights; the research study and the young people and their families who participated; and who the report is aimed at. Chapter two is on young people in hospital and looks at: NHS service provision; social services; rehabilitation; play; education; families; memories of hospitalisation; long term impact; and good practice. Chapter three covers getting home from hospital, including: discharge planning; involving young people; working with parents; multi agency working; care packages; adapting the family home; complaining; and good practice. Chapter four is on living at home and deals with: coming home; emergency planning; employed carers; coordinating care and negotiating boundaries; staying healthy; friends and hobbies; and equipment and supplies. Chapter five looks at starting school and the support needed. Chapter six is on growing up, including young people's views and experiences, sexuality, and the role of parents. Chapter seven focuses on young people who do not live with their parents. Concludes with a chapter on rights, social security, and education, leisure and cultural activities.