Search results for ‘Subject term:"physical disabilities"’ Sort:
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Disability
- Author:
- THORNTON Patricia
- Journal article citation:
- Research Matters, 19, April 2005, pp.17-22.
- Publisher:
- Community Care
Reports on research carried out at Loughborough University which set out to construct budget standards for disabled people with different levels and types of need, based on the group's own judgements on the minimum requirements for an acceptable and equitable quality of life. The research had three phases, each involving five focus groups with disabled people with a mix of ages and socio-economic backgrounds.
Shaping quality of life with nursing assistance. a grounded theory approach to nursing care for people with physical disabilities and interactions with carers in long-term care
- Authors:
- HELBIG Roman, METZING Sabine, LATTECK Anne-Dorte
- Journal article citation:
- Journal of Long-Term Care, January 2022, pp.1-14. Online only
- Publisher:
- King's College London
- Place of publication:
- London
Context: Although the number of people with physical disabilities who need nursing support is increasing, there is a lack of empirical knowledge about how they experience necessary care support. This knowledge is a prerequisite for enabling self-determination in the provision of care and for providing care based on needs and requirements. People with physical disabilities live in residential institutions and their own homes with the support of care services, and they are dependent on permanent nursing assistance. Objective: This qualitative grounded theory study describes the importance that people with physical disabilities ascribe to the provision of care and how they organise their cooperation with caregivers. Methods: Twenty-seven problem-centred interviews with people who had a permanent physical disability and a need for care were analysed using the grounded theory approach. Findings: People with physical disabilities and a need for care want to enhance their quality of life with assistance. Quality of life is influenced by their wishes regarding assistance, acceptance of the physical disability, (previous) experience with assistance and the possibility of actively influencing the implementation of necessary assistance. The development and maintenance of a friendly relationship with professional carers represent a strategy for achieving quality of life. Limitations: This study focuses on people with physical disabilities who receive care from a professional service. Questions about the influence on family carers remain unanswered. Implications: For successful social participation, people with physical disabilities should be supported by nursing professionals to identify and express their priorities and needs. (Edited publisher abstract)
Living with impairment: learning from disabled young people's biographies
- Authors:
- CURTIN Michael, CLARKE Gill
- Journal article citation:
- British Journal of Occupational Therapy, 68(9), September 2005, pp.401-408.
- Publisher:
- Sage
This study investigates the life stories of a small number of disabled young people through their biographies. Nine young people who had a motor impairment, three girls and six boys aged between 10 and 14 years, were recruited through two segregated special schools. Each young person participated in several open interviews and was encouraged to tell his or her life story, collaborating in the co-construction of his or her own biography. Once the biographies were completed, they were thematically analysed. Four themes emerged from the analysis: family, friends, education and living with an impairment. The focus of this article is on the last theme. The findings indicate that the young people were positive about their lives even though they implied that it was a struggle at times, primarily due to the negative perceptions that the general public had of disabled people. They did not consider that their medical and therapy interventions contributed to their feeling different, but saw these interventions as important to maintaining and improving their function. They accepted that they had an impairment, but did not see this as a reason for not getting on with their lives.
A qualitative study comparing the experiences of tilt-in-space wheelchair use and conventional wheelchair use by clients severely disabled with multiple sclerosis
- Authors:
- DEWEY Ann, RICE-OXLEY Margaret, DEAN Taraneh
- Journal article citation:
- British Journal of Occupational Therapy, 67(2), February 2004, pp.65-74.
- Publisher:
- Sage
Explores and compares the experiences of tilt-in-space wheelchair use and conventional wheelchair use in severely disabled clients with multiple sclerosis and significant spasticity. The research design was a descriptive qualitative approach, using in-depth audio-taped interviews in clients' homes carried out over a 9-month period. A total of 23 clients (7 tilt-in-space wheelchair users and 16 conventional wheelchair users) were recruited from three adjacent district wheelchair services in South-East England. The majority of tilt-in-space wheelchair users (6 out of 7) reported that their chairs were comfortable compared with only half of those in conventional wheelchairs (8 out of 16). The positive aspects of tilt-in-space wheelchair provision included comfort, improved postural support, enhanced seating stability, relief of pressure and being able to rest sitting out of bed for prolonged periods, often for more than 6 hours a day. The negative aspects of tilt-in-space wheelchairs included their bulky size and lack of manoeuvrability compared with conventional wheelchairs. All the wheelchair users had experienced difficulty with transport and many had relied on family and friends to help with the purchase of expensive adapted vehicles.
I am in control: research into users' views of the Wiltshire Independent Living Fund
- Author:
- WILTSHIRE AND SWINDON USERS' NETWORK
- Publisher:
- Wiltshire Community Care Involvement Network
- Publication year:
- 1996
- Pagination:
- 30p.
- Place of publication:
- Devizes
Research report presenting user views of the Wiltshire Independent Living Fund (WILF). Looks at effects on quality of life and at the opportunities WILF has given them to purchase their own care with appropriate support.
From control to choice
- Author:
- HEATON Tony
- Journal article citation:
- Community Care, 5.3.92, 1992, pp.22-23.
- Publisher:
- Reed Business Information
A service user comments critically on a Quality of Life seminar organised by the north west ADSS which was designed to help improve services for disabled people, and service users were invited to voice their opinions and be consulted by service providers.
Improving the well-being of disabled young people
- Authors:
- KELLY Grace, KELLY Bernie, MACDONALD Geraldine
- Publisher:
- Queen's University Belfast. Institute of Child Care Research
- Publication year:
- 2016
- Pagination:
- 127
- Place of publication:
- Belfast
Drawing on the views of 37 young disabled people in Northern Ireland, this report looks at how they feel about their own well-being and how they experience everyday life. The report identifies common triggers for positive and negative feelings and highlights opportunities for improving well-being. Participants were between 10 and 24 years of age and included young people with physical and learning and communication difficulties. The report provides an overview of the policy landscape, discusses the concept of subjective well-being, the role it plays in contributing to the quality of life and ways of measuring subjective well-being. Drawing on interviews, the report discusses the findings in the following areas: the extent to which adolescents are satisfied with their life; how their experiences contribute to the conditions that can enhance or diminish well-being; and the factors that young people feel are most important for building their capability to enjoy a happy and fulfilled life. Key messages include: the need to protect disabled young people and their families from poverty; the importance of formal sources of participation for social interaction in improving well-being; and how involvement of young people with particular needs in the design stages of programmes can overcome barriers to participation. (Edited publisher abstract)
A youth perspective on life with a disability
- Authors:
- MACKELPRANG Romel W., ALTSHULER Sandra
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 3(3), 2004, pp.39-51.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The last three decades have produced societal changes for people with disabilities. Legislative mandates and legal decisions led to increased access and made discrimination illegal. Institutions that warehoused people with disabilities have closed. Children and youth with disabilities now have greater opportunities to attend mainstream schools and otherwise participate in their communities. Have the sweeping changes affected the self-perception of youth with disabilities? Ninety youth with disabilities provided information for this article about their emotional well being and their beliefs about living with a disability. Overall, youth in the study reported that they were happy with themselves and their lives, helping dispel myths that life with a disability is burdensome. Research implications and suggestions for further study are provided. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580)
New kinds of care new kinds of relationships: how purchasing services affects relationships in giving and receiving personal assistance
- Authors:
- GLENDINNING Caroline, et al
- Journal article citation:
- Health and Social Care in the Community, 8(3), May 2000, pp.201-211.
- Publisher:
- Wiley
Draws on interviews with users of direct payments and focus group discussions with the personal assistants (PAs) who assist them with personal and daily living activities. It discusses the benefits and the drawbacks of directly employing such assistance, from the perspectives of both the purchasers and the providers of these services. The article shows that direct payments can enable disabled people to purchase a much wider range of flexible help, better continuity, greater control and an enhanced quality of life, compared with conventional services.
Quality of life and quality of services relationships: experiences of people with disabilities
- Authors:
- MARQUIS Ruth, JACKSON Robert
- Journal article citation:
- Disability and Society, 15(3), May 2000, pp.411-425.
- Publisher:
- Taylor and Francis
'Quality of life' experiences for people with disabilities who are highly dependent on services that are delivered in home-based environments are strongly influenced by the nature of their interactions with service workers. This paper discusses findings of a study involving 14 agencies in Western Australia, which provide living environment services for young people with disabilities and older adults, to gain insight into service users' daily experiences and their perceptions of quality in receiving services.