Search results for ‘Subject term:"physical disabilities"’ Sort:
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Use of mental health and support services among families of children with disabilities: discrepant views of parents and paediatricians
- Authors:
- UREY Jon R., VIAR Vicki
- Journal article citation:
- Mental Handicap Research, 3(1), 1990, pp.81-88.
- Publisher:
- BIMH Publications
Reports on research carried out in the USA.
Make it mainstream
- Author:
- WATES Michele
- Journal article citation:
- Community Care, 25.9.03, 2003, pp.40-41.
- Publisher:
- Reed Business Information
Reports on a study which highlights how disabled parents want more access to formal support and services. The Disabled Parents Network surveyed existing groups and networks supporting parents with chronic illness, physical and sensory impairments, those with learning difficulties or with mental health needs. The consultation included 120 returned questionnaires, nine focus group meetings and informal interviews. Over 150 disabled parents were involved. The research highlighted the need for a more coordinated approach to provide holistic provision for families.
Quality in services for disabled children and their families: what can theory, policy and research on children's and parents' views tell us?
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Children and Society, 15(4), September 2001, pp.237-252.
- Publisher:
- Wiley
This article seeks to define 'quality' in services for disabled children and their families. Theoretical models are initially reviewed and then considered in relation to key policy guidelines, empirical data drawing upon parents' and children's experiences of 'quality' in services are presented. Demonstrates the many different levels within the concept of 'quality' and highlights the importance of recognising and respecting that children and parents frequently value different aspects of 'quality'.
Children with disabilities: a review report undertaken on behalf of Essex Social Services Department
- Author:
- HILL RIchard
- Publisher:
- NCH Action for Children
- Publication year:
- 1997
- Pagination:
- 48p.,bibliog.
- Place of publication:
- London
Review of services for disabled children and their families in South West Essex.
Home and away: parents' view on respite care in Nottinghamshire
- Authors:
- GREWAL Inderjit, SMITH Isaac, BERRY Stewart
- Publisher:
- Nottinghamshire. Social Services Department
- Publication year:
- 1992
- Pagination:
- 50p.,tables.
- Place of publication:
- Nottingham
Parents with physical disabilities and perinatal services: defining parents’ needs and their access to services
- Authors:
- MERCERAT Coralie, SAIAS Thomas
- Journal article citation:
- Disability and Society, 36(8), 2021, pp.1261-1284.
- Publisher:
- Taylor and Francis
Parents with physical disabilities face challenges in their relationships with perinatal and early childhood services. This paper aims to better understand the experiences and needs of parents with physical disabilities regarding perinatal and early childhood services in the public healthcare system in Quebec, Canada. This paper also describes how adequately current services meet the needs of these individuals. Thirteen interviews were conducted with ten mothers and three fathers with physical disabilities. Results indicate challenges in various phases of the parental experience: the decision to have a child and conception; pregnancy follow-up; delivery; postnatal care and parental practices. The main issues reported by participants involved access to information and professionals’ attitudes. Participants also emphasized the importance of keeping control over the parenting process. As there is a growing interest in the questions surrounding parents with disabilities in Quebec, this study can provide useful insights for community organizations and political stakeholders. (Edited publisher abstract)
The effectiveness of occupational therapy for children with developmental coordination disorder: a review of the qualitative literature
- Authors:
- MORGAN Ruth, LONG Tony
- Journal article citation:
- British Journal of Occupational Therapy, 75(1), January 2012, pp.10-18.
- Publisher:
- Sage
The aim of this review was to further evidence-based practice by identifying motor interventions judged to be effective by children with developmental coordination disorder (DCD) and their parents. Six databases were searched for qualitative studies with school-age children with DCD and their parents in order to understand which occupational therapy interventions are most effective for decreasing core symptoms and improving occupational outcomes. The Model of Human Occupation was used to structure the discussion and to illustrate how a model can be used to guide the therapeutic reasoning process about future intervention decisions. For many families, intervention that addressed everyday occupations and the social consequences for children with DCD was of the utmost importance. Both child-centred and parent-centred interventions for DCD were valued but allowing children to be active in goal setting was considered vital. Most parents wanted to maximise their child's social participation and motivation whereas children were more concerned about their ability to engage in self-care and play activities. The authors conclude that there is a need for practitioners to incorporate the priorities of parents and children in order to optimise the outcomes of intervention. Parental and teacher education was highly valued by parents to help manage the uncertainty and worry associated with raising a child with DCD.
Supporting disabled children and their families in Northern Ireland: a research and policy review
- Authors:
- KELLY Berni, MONTEITH Marina
- Publisher:
- National Children's Bureau
- Publication year:
- 2003
- Pagination:
- 12p.
- Place of publication:
- London
Research has provided valuable information on how support services in Northern Ireland can be targeted to meet the needs of disabled children and their families, some of which is based on the views of these children and their parents who are most able to identify the types of services they require. It is imperative that this knowledge is incorporated into the delivery and development of support services in Northern Ireland. Research suggests that parents experience poorly coordinated systems and inadequate services especially at particular stages, such as diagnosis or post-school transitions. Respite care services hold potential benefits for disabled children and their families but need to be more flexible, comprehensive, family based and focused on the needs and wishes of disabled children. There is a need to develop more integrated recreational, social and leisure opportunities for disabled children to help combat their social exclusion.
Disclosing childhood impairment and the consequences for parent/professional relationships
- Author:
- LAWSON John
- Journal article citation:
- Practice: Social Work in Action, 16(4), December 2004, pp.273-281.
- Publisher:
- Taylor and Francis
Focuses on parents caring for a disabled child, experiences of the disclosure of their child's impairment and its impact on relationships between them and professionals. Considers when the perceptions of when it is best to learn of their babies impairment, issues surrounding the quality of disclosure and the role social work can perform to support parents caring for a disabled child. Suggests that parents' experiences tend to be negative and they considered that services were not meeting their needs and that social workers need to be aware of the legacy this can have and how it may influence their capacity to develop positive relationships with parents of disabled children. The focus of the article arose from findings of a research study which looked into the experiences of parents caring for a disabled child at home and the role played by special schools in their lives. The sample comprised 27 self-identifying parents from within a larger postal survey.
They have to be special
- Author:
- MORRIS Jenny
- Journal article citation:
- Community Care, 8.1.04, 2004, p.36.
- Publisher:
- Reed Business Information
Earlier this year Amaze, a Brighton based voluntary organisation, brought together a group of parents whose children are at residential special schools to write an information booklet on choosing a school. Looks at what parents want.