Search results for ‘Subject term:"physical disabilities"’ Sort:
Results 1 - 8 of 8
SCIE research briefing 18: being a father to a child with disabilities: issues and what helps
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Place of publication:
- London
SCIE research briefings summarise the knowledge base in a particular area and act as signpost to more in-depth material. The topic of this briefing is the fathers of children with disabilities, impairments or chronic illness. The children's disabilities include physical or sensory impairments, learning disability, and chronic conditions such as asthma, arthritis, diabetes and congenital heart disease. This briefing focuses on fathers' experiences of their child's disability and their resulting needs. The briefing is divided into sections: what does the research show; organisational knowledge; policy community knowledge; practitioner knowledge; research knowledge; user and carer knowledge; and useful links.
The impact of assistive equipment on intimacy and sexual expression
- Author:
- TAYLOR Bridget
- Journal article citation:
- British Journal of Occupational Therapy, 74(9), September 2011, pp.435-442.
- Publisher:
- Sage
Despite the expression of sexuality being an important quality of life domain, it continues to receive scant attention from occupational therapists. The author describes sexuality as a holistic concept that involves more than the sexual act. She conducted conversational interviews with 13 people with motor neurone disease living in England, and 10 of their partners. The aims of the research were to: understand the impact of life limiting illness on the expression of sexuality and intimacy for people with MND and their partners; to understand the meaning of sexuality and intimacy for these individuals; and to identify recommendations for health care practice. The study employed Heideggerian phenomenological principles which value the subjective experiences of individuals and support the view that the researchers subjectivity cannot be set aside but must be accounted for within the analysis. The findings provide evidence for the value of touch in people's lives and shed light upon the impact that assistive equipment has on intimacy, sexual expression and maintaining emotional and physical connection between couples. None of the people interviewed had previously been given the opportunity to discuss these issues with their occupational therapist. The author suggests that there is a place in occupational therapy practice for discussing the value of emotional and physical connection for individuals in the context of any equipment provided.
The community equipment needs of disabled children and their families
- Author:
- SOCIAL POLICY RESEARCH UNIT
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2003
- Pagination:
- 4p.
- Place of publication:
- York
Summarises the findings of a study on the levels of use of community equipment by disabled children and their families, and the extent of met and unmet need. A postal survey of over 3,000 families with a severely disabled child was carried out to collect information about types of impairment, and equipment use. The sample was drawn from the Family Fund Trust database. Organisations and individuals involved in community equipment provision to families with a disabled child were also consulted.
Information that informs rather than alienates families with disabled children developing a model of good practice
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Health and Social Care in the Community, 10(2), March 2002, pp.74-81.
- Publisher:
- Wiley
The provision of information and the importance of keeping families informed is frequently viewed as a significant factor within both the concept of empowerment and the facilitation of enabling and participatory processes for service users and their families. This article looks at how parents would like to receive this information and also discusses the empowering potential of user-friendly information. The article draws on data collected from a focus group discussions with parents caring for children with a range of disabilities or chronic illness. In particular it examines the criteria by which parents judge the quality of information and their ideas as to what constitutes good practice, especially in terms of how information is presented, its content and the way it is delivered. Using these ideas and criteria, the paper begins to develop a model of good information practice that is both three-dimensional and personally interactive.
Quality services for disabled children
- Author:
- SOCIAL POLICY RESEARCH UNIT
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2002
- Pagination:
- 4p.
- Place of publication:
- York
Summaries findings of a study exploring the concept of quality in services as defined by disabled or chronically sick children and young people and their families. The project, Sharing Value, was funded by the Community Fund and carried out in partnership with the Family Fund Trust and Barnardo's. Quality in services was discussed in four groups of parents (21 parents in total) and three groups of disabled children (27 children in total) over a series of meetings. The groups then drew up key quality service indicators. A database of quality services was one of the outcomes of the project.
Involving young people in health service development
- Author:
- SOCIAL POLICY RESEARCH UNIT
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2002
- Pagination:
- 4p.
- Place of publication:
- York
Summarises research findings from a project to investigate how the NHS consults with chronically ill and disabled young people and to identify factors to support and promote young patients' involvement in service development. The project surveyed 99 health authorities and 410 NHS Trusts in England, and identified 27 projects involving young patients with a chronic illness of physical disability. Data were analysed quantitatively and qualitatively. Six of the projects were examined in greater depth. Discusses levels of involvement; benefits of involvement; and consultation methods.
Having a say in health: involving young people with a chronic illness or physical disability in local health services development
- Authors:
- LIGHTFOOT Jane, SLOPER Patricia
- Journal article citation:
- Children and Society, 17(4), September 2003, pp.277-290.
- Publisher:
- Wiley
Increasing attention is being paid to involving users in local NHS service development, and to involving young people as users in their own right. However, we know little about the views and experiences of young participants, especially those with a chronic illness or physical disability, which could inform more effective approaches to their involvement. The paper reports on research investigating the views of young patients and staff who have taken part in NHS service development projects, and suggests a range of issues for consideration when involving young patients in future.
Inclusive integration: how whole person care can work for adults with disabilities
- Author:
- BROADBRIDGE Angela
- Publisher:
- Institute for Public Policy Research
- Publication year:
- 2014
- Pagination:
- 36
- Place of publication:
- Manchester
This report focusses on meeting the needs of working-age disabled adults as health and social care services are increasing integrated. It provides an empirical evidence base to demonstrate how whole person care (which is about making the connections between physical health, mental health and social care services) can be used to effectively meet these needs. The report also draws on the findings of a focus group with 12 disabled adults and carers on desired outcomes from the integration of health and social care services. Interviews with social care and voluntary sector professionals, commissioners and local authority policy to see if they are willing to include working-age disabled adults' needs in plans for future integration. The report looks at how working-age disabled adults have different needs and outcomes from older people and identifies the health inequalities they face in day-to-day life. Ten dimensions of health inequality are identified including housing, employment, financial security and quality of life. The report makes seven recommendations to inform the service response, including: taking a long term view of managing long-term conditions, viewing whole person care as a 10-year journey with matched by stable funding; debates on funding gap in social care should give consideration to the needs of working-age disabled adults; shifting resources from case management to community coordinated care to support prevention and providing a single point of contact for health and social care needs; service integration should take place across a much wider range of services to meet the needs of disabled people. (Edited publisher abstract)