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Adapted bikes – what children and young people with cerebral palsy told us about their participation in adapted dynamic cycling
- Authors:
- PICKERING Dawn M., et al
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 8(1), 2013, pp.30-37.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: Children and young people with Cerebral Palsy have limited opportunities for participation and there has been limited research to explore this concept. Adapted dynamic cycling (ADC) is one activity that can enable them to participate in the community. The aim of this paper is to report the views and experiences of children and young people with CP and their families regarding their participation in ADC. Methods: This was part of a mixed methods study of which the qualitative findings are reported here. Iterative creative methods were developed which involved semi-structured interviews and diaries about the ADC experience. Results: The themes that emerged were the staff and the environment at the cycling hire project, the facilitators and barriers to ADC, the technical set up of the bike and the impact on the child and family in terms of developments over time, future aspirations, learning cycling skills, social participation and health benefits. Conclusions: The data showed that children’s experiences of ADC were fun and enjoyable. This fun exercise should be incorporated into a physiotherapy programme as part of the child or young person with CP’s rehabilitation. Policy makers and parents may find the information useful to increase the child’s participation.
Stop press!: how the press portrays disabled people
- Authors:
- COOKE Caroline, DAONE Liz, MORRIS Gwilym
- Publisher:
- SCOPE
- Publication year:
- 2000
- Pagination:
- 40p.
- Place of publication:
- London
Television and the newspapers also have a strong influence on the way we think, so it is important to be aware of the language used in press reports. This often carries subtle messages about the subject that we may not even realise are there. Scope, the charity that works with people who have cerebral palsy, carried out an eight-week study of local and national papers in 1991. It found that there was a clear pattern to disability stories. For example, there were no disabled sports stories in the sports pages of any national newspaper, except for one story about a disabled horse-rider. However, disabled sports people who 'managed to take part in sport 'despite their disability did appear in other sections of the paper. There was very little coverage of the way society treats people with disabilities. And there were very few stories written by or for people with disabilities, despite the fact that there are over 8 million disabled adults in the UK.
Celebrating diversity: Scope annual review 2002/03
- Author:
- SCOPE
- Publisher:
- SCOPE
- Publication year:
- 2003
- Pagination:
- 13p.
- Place of publication:
- London
Annual report. Scope’s membership, consisting of disabled people, their families, carers and representatives of over 250 affiliated groups, elect members of Executive Council, which also has co-opted trustees.The Council is supported by 13 Partnership Committees around England and Wales, the majority of which are chaired by local disabled people. The Committees, supported by Community Teams, contribute to the outcomes of the organisation's national work and also establish their own plans to support over 1,000 groups and organisations that address needs identified by disabled people locally. Scope's schools and college are supported by seven governing bodies, made up of parents, community representatives and staff. At least 3.4% of Scope staff state they are disabled.
'I value what you have to say'. seeking the perspective of children with a disability, not just their parents
- Authors:
- GARTH Belinda, ARONI Rosalie
- Journal article citation:
- Disability and Society, 18(5), August 2003, pp.561-576.
- Publisher:
- Taylor and Francis
The UN Convention on the Rights of the Child acknowledges the right for children to express opinions about issues affecting them and the right to have these views heard. There has been an increase in the number of international studies including children as informants in research, but there is noticeably less published research including children as informants in Australia if they have a disability. Rather, there has been a reliance on parents/carers for insight into their child's experiences. In this article the authors present the results of a qualitative pilot study where they interviewed parents and their children who have cerebral palsy about their perceptions and experiences of communication in the medical consultation. The authors found that the views of children and parents were different, further reiterating the need to seek the perceptions of children as well as their parents.
On patient satisfaction in cerebral palsy care
- Authors:
- BAMFORD David, GRIFFITHS Huw, KERNOHAN George
- Journal article citation:
- British Journal of Social Work, 27(4), August 1997, pp.605-614.
- Publisher:
- Oxford University Press
To investigate the capacity for all-round service provision in Northern Ireland, this article describes the results of a survey to obtain both quantitative and qualitative data on the degree of social and health care support for families with a child affected by cerebral palsy. Results suggest that, while clinical medical care is generally good, the role of social support in health care management seems poorly defined, fragmented and variable.
Some of the implications on caring for a child or adult with cerebral palsy
- Author:
- PIMM Paul L.
- Journal article citation:
- British Journal of Occupational Therapy, 59(7), July 1996, pp.335-341.
- Publisher:
- Sage
Many studies have suggested that the presence of a child or adult with a disability in a family can have a significant impact upon family members, in particular the primary caregiver. Research findings have indicated that there may be social isolation, lack of awareness of services, poor service delivery and psychiatric disorders among parents. This article, part of a larger research undertaking, presents some key survey findings from a study of mothers and fathers of children and adults with cerebral palsy. The parents evaluated the caring process and their satisfaction with the professionals involved in service delivery. The prevalence of psychiatric morbidity among the parents is also reported. The findings indicate that the mental well-being of many fathers and even more mothers was severely affected by the caring process. High levels of parental dissatisfaction with some professionals are reported.