Search results for ‘Subject term:"physical disabilities"’ Sort:
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Working with disabled people in consultation and research
- Authors:
- BARNES Di, KENDALL Marilyn
- Journal article citation:
- Research Policy and Planning, 19(1), 2001, pp.17-24.
- Publisher:
- Social Services Research Group
When a consultation exercise is designed with disabled people, the result will be influenced by all the participants' experience of consultation and their knowledge and understanding of research. The exercise will also be a product of particular place and time. These influences are explored in a case study carried out by the authors in partnerships with disabled people; they adopted a pluralistic and flexible approach to consultation, which gave information as well as sought it, and included a commitment to developing community skills with an eye on succession.
The story of Belle, Minnie, Louise and the Sovjets: throwing light on the dark side of an institution
- Authors:
- ROETS Griet, Van HOVE Geert
- Journal article citation:
- Disability and Society, 18(5), August 2003, pp.599-624.
- Publisher:
- Taylor and Francis
This post-modernist story is composed as a narrative analysis of the lived experiences of Belle and Louise - two women with 'learning difficulties' and the authors' ethnographic field notes while doing narrative inquiry. The narratives mirror a shared construction of meaning and broaden our understanding--throwing light on the dark side of an institution. The narrative analysis points out a clear illustration of power dynamics and discourses in their lives, and shows how the women boast of resilience and offer (hidden) resistance. This paper particularly illuminates the individual, personal and even private celebration of activism and self-empowerment of Belle and Louise. Their vivid stories take us on an enthralling journey, getting to know their world through their eyes.
Children's hospices: a lifeline for families?
- Authors:
- ROBINSON Carol, JACKSON Pat
- Publisher:
- National Children's Bureau
- Publication year:
- 1999
- Pagination:
- 94p.,tables,bibliog.
- Place of publication:
- London
Examines the role of children's hospices in the provision of care for disabled children who are medically frail and who require some element of nursing care. The majority of admissions in the study are short term to provide parents with a break. Looks at: the children who use hospices and what kind of care they receive; why families use the services, their views and experiences; and the impact of hospice care on professionals supporting them. Also examines how hospices are regulated. Illustrated throughout with case studies. Concludes with recommendations for future policy and good practice.
CREDO east: evaluation report
- Author:
- BYERS Richard
- Publisher:
- CREDO East
- Publication year:
- 2006
- Pagination:
- 22p., appendices
- Place of publication:
- Rugby
Based in the east of England, CREDO east is a charitable organisation that works with teenagers who have multiple impairments and who require high levels of support to live their lives as they wish. The author was commissioned by CREDO east to evaluate their work in order to inform future planning. The research centred on four young people, all of whom had Circles of Support initiated and facilitated by CREDO east. Most of them also participated in CREDO east’s community activities and events. Data were gathered through interviews with three of the young people, family members, and Circle members, some of whom were also involved professionals. Questionnaires were also sent to professionals to obtain their views more generally on the work of CREDO east and its impact. Responses were overwhelmingly positive. CREDO east was said to have given young people and families a voice, opened up a range of opportunities for young people and their families, and developed community support networks that are powerful, creative and sustainable. Young people and family members valued CREDO east’s independence very highly. Professionals were also very positive about CREDO east and its work although they reported that there were sometimes tensions between the work of CREDO east and budgetary and procedural constraints that they themselves experienced. The author concludes that in the future CREDO east should continue to develop personalised initiatives while also expanding their capacity to engage more significantly with services, professionals and larger numbers of service users.
CareFully: a handbook for home care assistants
- Author:
- BELL Lesley
- Publisher:
- Age Concern
- Publication year:
- 1999
- Pagination:
- 270p.,list of orgs.
- Place of publication:
- London
Provides key advice for home care workers in promoting independence. Topics covered include: the importance of core values; the health of older people; taking care of yourself; basic skills of home care assistants; receiving home care - the user's perspective; and providing a service for the new