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Disability research by disabled and non-disabled people: towards a rational methodology of research production
- Authors:
- TREGASKIS Claire, GOODLEY Dan
- Journal article citation:
- International Journal of Social Research Methodology, 8(5), December 2005, pp.363-374.
- Publisher:
- Taylor and Francis
This paper explores some of the problems and opportunities that may derive from the development of working relationships between disabled and non-disabled researchers. First a number of key barriers that face disabled researchers from the outset of research are sketched out. In seeking to identify good research practice that can challenge such barriers, it is suggested that enabling modes of research production may often be uncovered through a careful examination of the working relationships between members of research teams. This approach is illustrated through a discussion of a range of relational issues that have impacted upon the authors’ own research partnership: (i) Relating in research: Tackling fears and issues around self-disclosure; (ii) Psychoanalytic sensitivity: Privileging ontological experience and reflexivity; (iii) Towards a feminist ethics of care: Challenging methodological individualism; and (iv) Interdependence in research: towards enriched analysis. In terms of advancing an agenda for inclusive disability research, it is believed that making explicit the complexity of disabled/non-disabled research relationships like this is one practical way in which general assumptions of a binary disabled/non-disabled split may be challenged, whilst simultaneously recognizing that equitable working partnerships can only derive from the equal valuing of difference.
Researching disability issues
- Authors:
- MOORE Michael, BEAZLEY Sarah, MAELZER June
- Publisher:
- Open University Press
- Publication year:
- 1998
- Pagination:
- 106p.,bibliog.
- Place of publication:
- Buckingham
Designed to present a clear guide to carrying out research on disability issues. Aims to demonstrate the value of critical attention to social, rather than medical starting points for researching disability, through reviewing a variety of studies which look at different aspects of disabled people's lives. Different quantitative and qualitative methodological frameworks are considered, ranging from analysis of observation data to conversation-based data. Presents examples of the dilemmas which face researchers and connects these ideas to individual personal action. Places the pivotal role of disabled people in research as central throughout.
Emancipatory research methodology and disability: a critique
- Authors:
- DANIELLI Ardha, WOODHAMS CAROL
- Journal article citation:
- International Journal of Social Research Methodology, 8(4), October 2005, pp.281-296.
- Publisher:
- Taylor and Francis
This paper questions the prescription of emancipatory participatory research for studying disability espoused by some disability researchers and activists. It argues that the advocacy of participatory and emancipatory research can be criticised on several grounds including problems of internal inconsistency and contradiction, an overly selective use of the works of feminist researchers and that research using such an approach could constitute an exercise of power that potentially marginalises some voices and potentially oppresses some disabled people and researchers. Ultimately, it is suggested, the emancipatory paradigm may serve to undermine the generation of knowledge that can be used by disabled people for self-emancipation. The paper concludes that rather than prescribe emancipatory research as the only legitimate methodology for disability research, disability writers should, as feminists have in researching gender, adopt a more pluralist and eclectic approach to theorising and researching disability.
Finding out things
- Author:
- THOMPSON John
- Publisher:
- Venture Press
- Publication year:
- 2003
- Pagination:
- 34p.
- Place of publication:
- Birmingham
Examines the issues in disability research with users and their carers. Research methods, user involvement and outcomes are considered.
Researching others: epistemology, experience, standpoints and participation
- Authors:
- FAWCETT Barbara, HEARN Jeff
- Journal article citation:
- International Journal of Social Research Methodology, 7(3), July 2004, pp.201-218.
- Publisher:
- Taylor and Francis
This article examines the possibility and challenges of carrying out research, especially qualitative and ethnographically-orientated research, into areas such as gender, disability, ethnicity and racialization, without the researcher having direct experience of those specific social divisions and oppressions. Discussion of these questions is framed by four differential understandings of the concept of 'otherness' and linked with debates in the areas of research methodology, epistemology, ontology and research practices. Issues of experience, 'standpoint' and participation are specifically focused on. The resulting discussion leads to the conclusion that in 'researching others' attention has to be paid to historical context and to the maintenance of a critical relation to the research topic. A sustaining focus on the self-reflexivity of the researcher as author and the continual interrogation of the social bases of knowledge, together with a detail understanding of political agendas, are also important. In paying attention to these aspects of research, materialism and critical discourse analysis are to be seen as part of the same broad socio-political project rather than as opposing and mutually exclusive perspectives.
Disabled by design
- Author:
- BENNETT Una
- Journal article citation:
- Disability and Society, 17(7), December 2002, pp.809-823.
- Publisher:
- Taylor and Francis
This paper describes and analyses the author's attempts to engage in a user-led design/research process.
Developing an interactive approach in social work research: the example of a research study on head injury
- Author:
- HIGHAM P.E.
- Journal article citation:
- British Journal of Social Work, 31(2), April 2001, pp.197-212.
- Publisher:
- Oxford University Press
The paper examines the processes of a research project about the continuing care needs of head-injured people in order to illustrate an interactive approach in social work research. Influenced by the social work values of empowerment and working in partnership, the key function of the interactive approach include a multidisciplinary research team analysing the research topic through different disciplinary perspectives, and selecting research methods and dissemination strategies that promote interactive relationships amongst researchers, respondents and sponsors. Social work practice supplies transferable knowledge, values and skills for the interactive approach. The skill of negotiation is used to mitigate unequal distributions of power between researchers and respondents. The paper concludes that the interactive approach is a distinctive characteristic of social work research that deserves wider recognition.
Service users
- Author:
- BERESFORD Peter
- Journal article citation:
- Research Matters, 11, April 2001, pp.58-60.
- Publisher:
- Community Care
Reviews research which examines service users' involvement in, and their perspective on, service provision and policy and practice.
Normalisation emancipatory research and inclusive research in learning disability
- Author:
- WALMSLEY Jan
- Journal article citation:
- Disability and Society, 16(2), March 2001, pp.187-205.
- Publisher:
- Taylor and Francis
This article traces the influence of two major sets of ideas: normalisation/srv, and the social model of disability on inclusive research in learning disability. The argument is that normalisation set the agenda for learning disability research for two or more decades. Inclusive researchers continue to apply normalisation thinking to work with people with learning difficulties, particularly in assuming the role of advocate. Latterly, a number of researchers have tried to rise to the challenges posed by emancipatory research, particularly in attempting to find ways to put people with learning difficulties in control. Whilst some ideas from emancipatory research have been applied in learning disability, there are debates in the disability literature that have not been addressed in learning disability research to date. The result is that inclusive research in learning disability is in danger of being marginalised, both in the context of disability studies and in the context of the broad sweep of learning disability research.
Practical guidelines for organising and running focus groups with older people
- Author:
- QUINE Susan
- Journal article citation:
- Generations Review, 8(4), December 1998, pp.4-6.
- Publisher:
- British Society of Gerontology
This article outlines specific guidelines for running focus groups with older people, including recruitment strategies, issues regarding the appropriate form of address to use, and organisational ways of managing physical disabilities.