User involvement is a much-used term in the disability field. Presents research that shows that the aims of service managers and service users are often still in conflict.
User involvement is a much-used term in the disability field. Presents research that shows that the aims of service managers and service users are often still in conflict.
Subject terms:
literature reviews, management, physical disabilities, social care provision, user participation, user views, empowerment;
Positive Publications/ Anglia Polytechnic University, Faculty of Health and Social Work
Research on service user involvement in community care planning and service provision shows some advances but still many fundamental problems and misconceptions about the process. Provides selected findings of some of the research and highlights key points on empowerment.
Research on service user involvement in community care planning and service provision shows some advances but still many fundamental problems and misconceptions about the process. Provides selected findings of some of the research and highlights key points on empowerment.
Subject terms:
literature reviews, physical disabilities, planning, service users, user participation, care management, care planning, empowerment;
The project seeks out and highlights good practice in the delivery of accessible housing with support in the community. This initial study considers the background to the provision of housing with support in the community and what is generally considered to represent good practice. It examines the context within which housing and community care policy interact, bringing together previous research findings and good practice advice. Contents include: definition of disability; key housing concepts in relation to disabled people; the demographic context; housing an support issues; interagency cooperation; user involvement; finance; service provision for black disabled people; criteria of good practice.
The project seeks out and highlights good practice in the delivery of accessible housing with support in the community. This initial study considers the background to the provision of housing with support in the community and what is generally considered to represent good practice. It examines the context within which housing and community care policy interact, bringing together previous research findings and good practice advice. Contents include: definition of disability; key housing concepts in relation to disabled people; the demographic context; housing an support issues; interagency cooperation; user involvement; finance; service provision for black disabled people; criteria of good practice.
Subject terms:
housing, interagency cooperation, literature reviews, needs, physical disabilities, social care provision, supported housing, user participation, access to services, black and minority ethnic people, community care, demographics, financing, good practice;
Disability and Society, 16(7), December 2001, pp.949-968.
Publisher:
Taylor and Francis
This literature review collates and analyses existing knowledge about the perceptions held by disabled and non-disabled children, and young people from black and Asian families concerning issues of disability and impairment. This review discusses the oppression faced by black and Asian disabled children, and concludes that their experience is unique and different from that of white disabled children. Accordingly, it emphasises the need for further research about the subjective experience of black and Asian disabled children in order to meet their particular needs.
This literature review collates and analyses existing knowledge about the perceptions held by disabled and non-disabled children, and young people from black and Asian families concerning issues of disability and impairment. This review discusses the oppression faced by black and Asian disabled children, and concludes that their experience is unique and different from that of white disabled children. Accordingly, it emphasises the need for further research about the subjective experience of black and Asian disabled children in order to meet their particular needs.
Subject terms:
literature reviews, needs, physical disabilities, racism, service users, user participation, user views, young people, black and minority ethnic people, children, discrimination;
Northern Ireland. Department of Health and Social Services. Social Services Insp
Publication year:
1995
Pagination:
6p.
Place of publication:
Belfast
Paper outlining the background to a literature review on the support needs of physically and sensorily disabled adults. The review highlights the need for services to promote independent living, the importance of equal opportunities for disabled people, and the need for disabled people to be involved in determining the support services to be provided.
Paper outlining the background to a literature review on the support needs of physically and sensorily disabled adults. The review highlights the need for services to promote independent living, the importance of equal opportunities for disabled people, and the need for disabled people to be involved in determining the support services to be provided.
Subject terms:
independence, literature reviews, needs, physical disabilities, policy formulation, social policy, social care provision, user participation, visual impairment, cutbacks, deafness, equal opportunities;
Northern Ireland. Department of Health and Social Services. Social Services Insp
Publication year:
1995
Pagination:
147p.
Place of publication:
Belfast
Literature review of major publications and research, 1985-95, of social support needs of physically and sensorily disabled adults; and to take account of international and national developments.
Literature review of major publications and research, 1985-95, of social support needs of physically and sensorily disabled adults; and to take account of international and national developments.
Extended abstract:
NOCON Andrew, et al. The social support needs of physically and sensorily disabled adults: a literature review. Northern Ireland. Department of Health and Social Services. Social Services Inspectorate, 1995.
Summary
Literature review of major publications and research, 1985-95, of social support needs of physically and sensorily disabled adults; and to take account of international and national developments.
Context
Review was commissioned by SSI Northern Ireland to inform a task group developing strategies for physically and sensorily disabled adults.
Contents
Chapters address
background
independent living
involving users
organisational tasks
provision of appropriate services
sensory disability
the wider social context
Discussion
New community care arrangements and the demands of the disability movement have potential to improve the care that disabled people receive from personal social services. However, specialist social workers may be drawn into generic care management and professional staff may be unwilling to share power.
Findings
User-directed personal assistance schemes have enabled disabled people to determine what assistance is to be provided, how, when and by whom, and have been shown to be cheaper than services provided by the statutory sector.
Partnership with users calls for a major cultural shift within organisations. Examples of over-investment show that such a shift is possible and can yield valuable results. Users nevertheless need appropriate support, facilities and training if they are to be enabled to contribute fully to the planning process.
Organisational tasks required are a population needs assessment on which to base the provision of appropriate services; an integrated approach by health and personal social services; education and training for professional staff; and outcomes evaluation to establish how well services are meeting users' needs and achieving policy goals.
Existing services have shortcomings, including unsuitable goals and timing, long waits for equipment, imposing of professionals' views, and inappropriate services for young people, older people and people from ethnic minorities.
Services for sensorily disabled people have been especially poor, with little known about needs and inadequate responses by agencies.
Disabled people require more support to gain access to mainstream provision in housing, employment, transport, education and access to buildings, as well as greater financial support to cope with their additional costs. The most successful approaches to equality of opportunity for disabled people involve universally accessible provision and a corporate inter-agency approach.
Conclusion
Accessing needs and providing more appropriate services requires listening to disabled people's views, the involvement of disabled people in individual needs assessment and broader service planning, and major change within tight budgets at the same time as a demanding new set of organisational responsibilities. The challenge is underpinned by the basic principle of a concept of independent living, equal opportunities and a voice in determining how needs are to be met.
See also executive summary
Annotated bibliography 155 refs plus 308 refs
Subject terms:
independence, literature reviews, needs, physical disabilities, policy formulation, social policy, social care provision, user participation, visual impairment, cutbacks, deafness, equal opportunities;