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Learning from experience: involving black disabled people in shaping services
- Authors:
- EVANS Rachel, BANTON Martin
- Publisher:
- Council of Disabled People
- Publication year:
- 2001
- Pagination:
- 94p.,bibliog.
- Place of publication:
- Leamington Spa
This report presents the findings of a one year research project, which explored one organisation's experiences in developing the involvement of black disabled people. Undertaken by the Council of Disabled People Warwickshire (CDP), and organisation run and controlled by disabled people, the aims of the research were to learning from CDP's experience to date by: examining definitions of involvement and exploring what involvement means for black people working in different ways with CDP; and reflect on what has and has not worked for CDP in developing the involvement of black disabled people.
Involving disabled people in services: a document describing good practice for planners, purchasers and providers; a report to the Social Work Services Inspectorate for Scotland
- Authors:
- HERD Dougie, STALKER Kirsten
- Publisher:
- HMSO/Great Britain. Scottish Office. Social Work Services Inspectorate
- Publication year:
- 1996
- Pagination:
- 49p.
- Place of publication:
- Edinburgh
Sets out good practice in involving disabled people in service provision and provides advice which will help purchasers, planners, and providers to involve users more effectively in planning and providing services.
The right remit
- Authors:
- BEWLEY Catherine, GLENDINNING Caroline
- Journal article citation:
- Community Care, 7.4.94, 1994, pp.26-27.
- Publisher:
- Reed Business Information
For community care plans to be drawn up it is essential that users are consulted. Although disabled people are being involved in plans, the authors' research raises questions about how representatives of disabled people are chosen and highlights the negative effects of asking people questions which are inappropriate to their situation. Newer organisations of disabled people, advocacy groups and black and ethnic minority community groups are less likely to belong to more established networks and therefore will miss out on consultation.
Reaching the ‘hard to reach’: strategies to recruit black and minority ethnic service users with rare long-term neurological conditions
- Authors:
- HOPPITT Thomas, et al
- Journal article citation:
- International Journal of Social Research Methodology, 15(6), 2012, pp.485-495.
- Publisher:
- Taylor and Francis
Little is known about health and social care experiences of patients with rare long-term neurological conditions such as Huntington’s disease, motor neuron disease, Charcot Marie Tooth disease, dominantly inherited ataxias, progressive supranuclear palsy, post polio syndrome and multiple system atrophy. Added to this black and minority ethnic service users have historically been described as ‘hard to reach’ for research. Evidence suggests that a variety of recruitment methods need to be used if this situation is to change. This study employed a range of recruitment strategies to involve patients in one-to-one interviews about their experiences of health and social care. The recruiter was of Indian origin. Strategies included community (places of worship, local media, voluntary organisations), clinically based strategies and snowballing. Fifteen participants were recruited altogether, but ultimately all came from neurology clinics and disease-specific charities. The authors conclude that despite community-based strategies generating interest and a willingness to be involved, the rare nature of these conditions resulted in a lack of recruits from these strategies. It is suggested that stigma, especially with regard to genetic conditions may have played a part. Researchers may need to plan and prioritise strategies carefully in order to maximise recruitment and utilise resources efficiently dependent on the nature of the research.
Different paths: connecting services: a guide to better practice in meeting the housing needs of black and minority ethnic disabled people and D/deaf people
- Authors:
- BUTT Jabeer, DHALIWAL Sukhwant
- Publisher:
- Habinteg Housing Association
- Publication year:
- 2005
- Pagination:
- 54p.
- Place of publication:
- London
Presents a study into the housing experiences of black and minority ethnic disabled and D/deaf (disabled deaf) people. Through focus groups involving BME disabled and D/deaf service users and their carers and statutory, public and voluntary sector service providers it explores: how disabled and D/deaf people from BME communities access appropriate housing; the disadvantages and barriers participants identified as preventing them from securing suitable accommodation and services; the key issue of whether their needs are best met by responding to them as a distinct group – as opposed to perceiving them simply as members of ‘BME’ or ‘disabled’ communities; and opportunities for conferring greater choice and control to BME disabled and D/deaf people
Different paths: challenging services; a study of the housing experiences of black and minority ethnic disabled and D/deaf people
- Authors:
- BUTT Jabeer, DHALIWAL Sukhwant
- Publisher:
- Habinteg Housing Association
- Publication year:
- 2005
- Pagination:
- 54p.
- Place of publication:
- London
Presents a study into the housing experiences of black and minority ethnic disabled and D/deaf (disabled deaf) people. Through focus groups involving BME disabled and D/deaf service users and their carers and statutory, public and voluntary sector service providers in the London Boroughs of Brent, Camden and Waltham Forest, it explores: how disabled and D/deaf people from BME communities access appropriate housing; the disadvantages and barriers participants identified as preventing them from securing suitable accommodation and services; the key issue of whether their needs are best met by responding to them as a distinct group – as opposed to perceiving them simply as members of ‘BME’ or ‘disabled’ communities; and opportunities for conferring greater choice and control to BME disabled and D/deaf people.
Social service users' own definitions of quality outcomes
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2003
- Pagination:
- 4p.
- Place of publication:
- York
The Shaping Our Lives project, working in partnership with Black User Group (London), Service User Action Group (Wakefield), Ethnic Disabled Group Emerged (Manchester) and an alliance of user groups in Waltham Forest (London), looked at the application in practice of on-going work about what service users meant by 'user-defined outcomes'. Both the research and the development projects covered a range of experiences - including those of older people, mental health users, minority ethnic communities and disabled people and involving 66 users in all.
Involving black disabled people in shaping services
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2001
- Pagination:
- 4p.
- Place of publication:
- York
The involvement of users has been actively promoted within social care as a way of developing more appropriate and responsive services, bringing benefits to both service users and providers. There has, however, been a noticeable lack of involvement by black disabled people. Research undertaken by Rachel Evans and Martin Banton of the Council of Disabled People Warwickshire with support from Coventry University's Centre for Social Justice explored one organisation's experiences in developing the involvement of black disabled people. Presents the findings of the research.
Involving volunteers from underrepresented groups: findings
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1996
- Pagination:
- 4p.
- Place of publication:
- York
Survey evidence suggests that young people, older people, unemployed people, disabled people and people from black and other minority ethnic communities are underrepresented as volunteers in mainstream organisations. Researched carried out by the National Centre for Volunteering found that some organisations have addressed the barriers that face potential volunteers from these groups and secured their involvement through the adoption of practical measures and a real commitment to equality of opportunity.
Making contact: a report on methods of consultations with carers from minority ethnic communities
- Authors:
- ANWAR Saeed, HILL Peter
- Publisher:
- Oldham Disability Alliance
- Publication year:
- 1994
- Pagination:
- 18p.
- Place of publication:
- Oldham