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Ascertaining the prevalence of childhood disability
- Authors:
- HUTCHINSON T., GORDON D.
- Journal article citation:
- Child: Care, Health and Development, 31(1), January 2005, pp.99-107.
- Publisher:
- Wiley
The aim was to reapply 1985 Office of Population Census and Surveys (OPCS) disability survey methods, modified as necessary, to a sample of children to ascertain presence of disability, and then compare OPCS-based prevalence with prevalence based on carer's views and medical records. Medical records of 46% contained a diagnosis. Carers were always aware of this, although a single question did not always elicit their knowledge. OPCS-derived threshold disability criteria in categories of Hand function, Personal care, Consciousness and Continence gave prevalence results similar to medical records and carers. OPCS criteria yielded higher prevalence of disability in the areas of Locomotion (8%), Communication (14%) and Hearing (18%). Carers, OPCS and medical records disagreed markedly about prevalence of disabilities of Vision, probably because of the use of differing definitions. OPCS learning criteria were judged unsuitable and standard attainment targets (SATs) were substituted. These provided similar prevalence figures to carers and medical records. OPCS behaviour criteria were also unsuitable and were replaced by the General Health and Behaviour Questionnaire (GHBQ). This found an increased prevalence of problems compared with carers and doctors. Diagnostic labels have limited use when collecting data about disabled children. Doubt is cast on the validity of some of the 1985 OPCS threshold criteria, and reassessment is suggested before their future use. Further work is needed on the use of SATs and GHBQ in the benchmarking of disability. To collect population data it would be easier and at least equally effective (with caution in the case of Vision) to ask carers directly rather than applying descriptive thresholds and external judgements. Similar information could be obtained from medical records, however, they are likely to be out of date.
Disability and social participation in Europe
- Author:
- EUROPEAN COMMISSION. Eurostat
- Publisher:
- Office for Official Publications of the European Communities
- Publication year:
- 2001
- Pagination:
- 81p.
- Place of publication:
- Luxembourg
Aims to respond to the growing demand by Member States and the European Commission for internationally comparative statistics on the social situation of people with disabilities. Contents: self reported disability; social participation; sources of income and benefits; satisfaction, socialising and own perception of health.
Health and long term care use trajectory for older disabled women
- Author:
- MEHDIZADEH Shala A.
- Journal article citation:
- Gerontologist, 42(3), June 2002, pp.304-313.
- Publisher:
- Oxford University Press
Examines health and long-term care use trajectories of a sample of chronically disabled older women in the USA eligible for both Medicare and Medicaid by exploring their use data in order to understand and anticipate the increasing demand on the health and long-term care delivery systems as aging female baby boomers reach age 65 and older. A long-term care career was established for patients beginning with receiving long-term care in the community, followed by a transition stage in which care was received in the community and in a nursing home, and finally by a stage at which they entered and remained in a nursing home. As patients proceeded along their long-term care career and their health and disability status worsened, there appeared a clear shift in the kind of care needed from hospital and home care to nursing home care. There was also a shift in the major payer, from Medicare to Medicaid. As the baby boomers age, a much larger number of women will be disabled and need health and long-term care services.
Welsh health survey 1998: results of the second Welsh health survey
- Author:
- WALES. National Assembly. Statistical Directorate
- Publisher:
- Wales. National Assembly. Statistical Directorate
- Publication year:
- 1999
- Pagination:
- 96p.
- Place of publication:
- Cardiff
The aim of the Welsh Health Survey was to collect information on a cross-section of the population with a range of illnesses or disabilities and on similar groups of healthy people, without using any medical records. Its results provide a picture of the health and well-being of adults in Wales and their use of and satisfaction with health services. The dataset contains details of responses to the survey (which was conducted by means of a self-completion postal questionnaire, completed by almost 30,000 adults), with a separate record for each respondent. It includes details about respondents' general health, specific illnesses for which they had been treated, use of the health service and satisfaction with the service provided, self-perceived physical and mental well-being (using SF-36 health status questions), and details about respondents and their lifestyle.