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Some of the implications on caring for a child or adult with cerebral palsy
- Author:
- PIMM Paul L.
- Journal article citation:
- British Journal of Occupational Therapy, 59(7), July 1996, pp.335-341.
- Publisher:
- Sage
Many studies have suggested that the presence of a child or adult with a disability in a family can have a significant impact upon family members, in particular the primary caregiver. Research findings have indicated that there may be social isolation, lack of awareness of services, poor service delivery and psychiatric disorders among parents. This article, part of a larger research undertaking, presents some key survey findings from a study of mothers and fathers of children and adults with cerebral palsy. The parents evaluated the caring process and their satisfaction with the professionals involved in service delivery. The prevalence of psychiatric morbidity among the parents is also reported. The findings indicate that the mental well-being of many fathers and even more mothers was severely affected by the caring process. High levels of parental dissatisfaction with some professionals are reported.