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Family quality of life: a framework for policy and social service provisions to support families of children with disabilities
- Authors:
- WANG Mian, BROWN Roy
- Journal article citation:
- Journal of Family Social Work, 12(2), April 2009, pp.144-167.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article provides an overview of conceptualisation, measurement and application of family quality of life (FQoL). The authors delineate how this concept has been increasingly recognised by policy makers, researchers and practitioners in the context of family supports for families of children with intellectual and developmental disabilities. Policy, research and practice implications for the field of social work are discussed. The authors recommend that social workers and allied professionals should consider using a FQoL survey or scale to gain information about a family’s overall satisfaction with their family life across domains and should look for strengths and weaknesses in family domains among family members. In addition they should be aware that some families record satisfaction when they still need support. They should also consider likely future domain needs for the family and should look for ways to support the family, not just the child with a disability. They should recognise that there are large differences in satisfaction across FQoL domains. Finally, social workers should advocate in alliance with families for policy change toward the enhancement of FQoL for families of children with disabilities.
A youth perspective on life with a disability
- Authors:
- MACKELPRANG Romel W., ALTSHULER Sandra
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 3(3), 2004, pp.39-51.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The last three decades have produced societal changes for people with disabilities. Legislative mandates and legal decisions led to increased access and made discrimination illegal. Institutions that warehoused people with disabilities have closed. Children and youth with disabilities now have greater opportunities to attend mainstream schools and otherwise participate in their communities. Have the sweeping changes affected the self-perception of youth with disabilities? Ninety youth with disabilities provided information for this article about their emotional well being and their beliefs about living with a disability. Overall, youth in the study reported that they were happy with themselves and their lives, helping dispel myths that life with a disability is burdensome. Research implications and suggestions for further study are provided. (Copies of this article are available from: Haworth Document Delivery Centre, Haworth Press Inc., 10 Alice Street, Binghamton, NY 13904-1580)
The ownership option
- Author:
- WOOLRYCH Richard
- Journal article citation:
- Professional Social Work, November 1998, pp.18-19.
- Publisher:
- British Association of Social Workers
Home ownership can give people with disabilities the independence and quality of life they want. Reports that it can be a reality even for people on income support, and social workers should know the options available.
Human welfare and technology: papers from the Husita 3 conference on IT and the quality of life and services held in Maastricht, June 1993
- Editor:
- GLASTONBURY Bryan
- Publisher:
- Van Gorcum
- Publication year:
- 1993
- Pagination:
- 290p.,bibliog.
- Place of publication:
- Den Haag
Papers from a conference focusing on the use of information technology in the human services. In 3 sections: setting the scene; quality of life; and quality of services. Includes the following papers: client information systems and their built-in values; community computing - linking health and human service resources to the community; supporting independent living through Adaptable Smart Home; an application of video telephones to maintain the quality of life of elderly people with special needs; new technologies and the Americans with Disabilities Act; networking; assessment and training of people with disabilities using new technologies; collecting accurate information about child abuse; issues within emergency planning in the United Kingdom; implementing case management technology; and in search of hidden knowledge - retrieve more information from your client database.