Research Policy and Planning, 23(2), 2005, pp.111-122.
Publisher:
Social Services Research Group
This case study describes work carried out by Making Research Count (University of York) project with social services and health agencies to help them develop services for disabled parents. The structure combined the presentation of relevant research findings over one day with follow up consultation and an additional day's structured input after eight weeks to develop goal-focussed implementation strategies. Adult learning theory, systematic organisational theory and practice around management of change and the system for Analysing Verbal Interaction were used. The evaluation suggested that it achieved some success in facilitating research informed implementation strategies. A typology for measuring change is suggested.
This case study describes work carried out by Making Research Count (University of York) project with social services and health agencies to help them develop services for disabled parents. The structure combined the presentation of relevant research findings over one day with follow up consultation and an additional day's structured input after eight weeks to develop goal-focussed implementation strategies. Adult learning theory, systematic organisational theory and practice around management of change and the system for Analysing Verbal Interaction were used. The evaluation suggested that it achieved some success in facilitating research informed implementation strategies. A typology for measuring change is suggested.
Subject terms:
intervention, parents, parents with learning disabilities, physical disabilities, reflective practice, social services, social work, case studies, evidence-based practice;
Journal of Ethnic and Cultural Diversity in Social Work, 13(1), 2004, pp.1-18.
Publisher:
Taylor and Francis
Place of publication:
Philadelphia, USA
The level of self-advocacy skills in Asian American parents of young children with developmental disabilities was assessed. The relationship of self-advocacy skills with social support and with disabilitybased discrimination was investigated. Correlates of self-advocacy skills were explored. Asian American parents of young children with developmental disabilities in this study scored a significantly lower level of assertiveness and other self-advocacy skills than did their non-Asian American counterparts. The level of self-advocacy skills in Asian American parents was found to be positively correlated with the level of social support those parents had received, and negatively correlated with the level of disability-based discrimination against their children with developmental disabilities. Longer length of stay of Asian American parents in the United States was found to be associated with a higher level of self-advocacy skills. The practical implications of the findings of this study are discussed. (Copies of this article are available from: Haworth Document Delivery Centre Haworth Press Inc., 10 Alice Street Binghamton, NY 13904-1580)
The level of self-advocacy skills in Asian American parents of young children with developmental disabilities was assessed. The relationship of self-advocacy skills with social support and with disabilitybased discrimination was investigated. Correlates of self-advocacy skills were explored. Asian American parents of young children with developmental disabilities in this study scored a significantly lower level of assertiveness and other self-advocacy skills than did their non-Asian American counterparts. The level of self-advocacy skills in Asian American parents was found to be positively correlated with the level of social support those parents had received, and negatively correlated with the level of disability-based discrimination against their children with developmental disabilities. Longer length of stay of Asian American parents in the United States was found to be associated with a higher level of self-advocacy skills. The practical implications of the findings of this study are discussed. (Copies of this article are available from: Haworth Document Delivery Centre Haworth Press Inc., 10 Alice Street Binghamton, NY 13904-1580)
Subject terms:
learning disabilities, parent-child relations, parents, physical disabilities, self-advocacy, social work, Asian people, children, cultural identity, ethnicity;
Clinical Social Work Journal, 31(1), Spring 2003, pp.9-24.
Publisher:
Springer
Place of publication:
New York
This article, initiated by personal experience, looks at parental fear of attachment to children with conditions which put them at risk, the experiencing of grief at the loss of the “fantasy baby,” and the acceptance by the parents which enables the attachment to proceed. Reference is made to attachment issues in the case of adoption, styles of attachment, and some notion of reconstruction in therapy with ‘special needs' survivors where attachment has been insecure or the process has been attenuated by length of risk.
This article, initiated by personal experience, looks at parental fear of attachment to children with conditions which put them at risk, the experiencing of grief at the loss of the “fantasy baby,” and the acceptance by the parents which enables the attachment to proceed. Reference is made to attachment issues in the case of adoption, styles of attachment, and some notion of reconstruction in therapy with ‘special needs' survivors where attachment has been insecure or the process has been attenuated by length of risk.
Subject terms:
learning disabilities, parent-child relations, parents, physical disabilities, social work, special education, adopted children, adoption, attachment, children;
A woman with multiple sclerosis whose husband had drinking problems had been receiving day care for years, but increased care was needed. Considers the difficulties of deciding how much weight should be given to the client's wishes when assessing an acceptable level of risk.
A woman with multiple sclerosis whose husband had drinking problems had been receiving day care for years, but increased care was needed. Considers the difficulties of deciding how much weight should be given to the client's wishes when assessing an acceptable level of risk.
Subject terms:
multiple sclerosis, parents, physical disabilities, risk, social work, social care provision, day services, decision making, families;
British Journal of Social Work, 33(4), June 2003, pp.465-479.
Publisher:
Oxford University Press
This paper discusses the experience of South Asian carers of a person with cerebral palsy. Previous research in this area has failed to explore carers' perceptions of causation or their views on the quality of service support. Qualitative interviews were carried out with twenty carers in two localities in the north of England with the aim of providing in-depth contextualized data on their experiences over time, their attitudes towards cerebral palsy and their interactions with service provision. Results show that parents' views on causation differ markedly from explanations based on a medical, genetic model of cause. Parental attitudes towards cerebral palsy are shown to be influenced both by interactions with service professionals and by parents' ability to manage their situation. The absence of adequate material and emotional resources may foster a negative construction of disability by parents that, in turn, has detrimental effects on the individual with cerebral palsy. Parents' religious beliefs can act as a source of emotional support that helps them develop a constructive perspective on disability and deal with future uncertainty. The authors This paper discusses the experience of South Asian carers of a person with cerebral palsy. Previous research in this area has failed to explore carers' perceptions of causation or their views on the quality of service support. Qualitative interviews were carried out with twenty carers in two localities in the north of England with the aim of providing in-depth contextualized data on their experiences over time, their attitudes towards cerebral palsy and their interactions with service provision. Results show that parents' views on causation differ markedly from explanations based on a medical, genetic model of cause. Parental attitudes towards cerebral palsy are shown to be influenced both by interactions with service professionals and by parents' ability to manage their situation. The absence of adequate material and emotional resources may foster a negative construction of disability by parents that, in turn, has detrimental effects on the individual with cerebral palsy. Parents' religious beliefs can act as a source of emotional support that helps them develop a constructive perspective on disability and deal with future uncertainty.
This paper discusses the experience of South Asian carers of a person with cerebral palsy. Previous research in this area has failed to explore carers' perceptions of causation or their views on the quality of service support. Qualitative interviews were carried out with twenty carers in two localities in the north of England with the aim of providing in-depth contextualized data on their experiences over time, their attitudes towards cerebral palsy and their interactions with service provision. Results show that parents' views on causation differ markedly from explanations based on a medical, genetic model of cause. Parental attitudes towards cerebral palsy are shown to be influenced both by interactions with service professionals and by parents' ability to manage their situation. The absence of adequate material and emotional resources may foster a negative construction of disability by parents that, in turn, has detrimental effects on the individual with cerebral palsy. Parents' religious beliefs can act as a source of emotional support that helps them develop a constructive perspective on disability and deal with future uncertainty. The authors This paper discusses the experience of South Asian carers of a person with cerebral palsy. Previous research in this area has failed to explore carers' perceptions of causation or their views on the quality of service support. Qualitative interviews were carried out with twenty carers in two localities in the north of England with the aim of providing in-depth contextualized data on their experiences over time, their attitudes towards cerebral palsy and their interactions with service provision. Results show that parents' views on causation differ markedly from explanations based on a medical, genetic model of cause. Parental attitudes towards cerebral palsy are shown to be influenced both by interactions with service professionals and by parents' ability to manage their situation. The absence of adequate material and emotional resources may foster a negative construction of disability by parents that, in turn, has detrimental effects on the individual with cerebral palsy. Parents' religious beliefs can act as a source of emotional support that helps them develop a constructive perspective on disability and deal with future uncertainty.
Subject terms:
parental attitudes, parent-child relations, parents, physical disabilities, religions, social work, social care, social care provision, South Asian people, Asian people, carers, cerebral palsy, children, diagnosis, genetics;
Finds out how a social worker in a children with disabilities team in Hackney tackles the difficult issue of whether the needs of a child with cerebral palsy, epilepsy and learning difficulties could be met at home from a vulnerable mother who lacks parenting skills, but nonetheless provides love.
Finds out how a social worker in a children with disabilities team in Hackney tackles the difficult issue of whether the needs of a child with cerebral palsy, epilepsy and learning difficulties could be met at home from a vulnerable mother who lacks parenting skills, but nonetheless provides love.
Subject terms:
learning disabilities, mothers, needs, parental role, parents, parents with learning disabilities, physical disabilities, risk, social work, social workers, child development, children, decision making, families;
Child and Family Social Work, 3(4), November 1998, pp.239-246.
Publisher:
Wiley
This article addresses questions about the appropriate focus and direction of social work with disabled children, by triangulating parental views with those of social workers. Parents of nine disabled children were interviewed following the introduction of a specialist disability team in an inner city borough, following the implementation of the Children Act 1989. The parents' views reflect confusion and the need for emotional as well as material support, the last framed variously as counselling, advice and someone to listen. Social workers' comments on these findings, revealed a lack of confidence in their own abilities, a lack of clarity in their role and increasing disillusion with the services of their organisations.
This article addresses questions about the appropriate focus and direction of social work with disabled children, by triangulating parental views with those of social workers. Parents of nine disabled children were interviewed following the introduction of a specialist disability team in an inner city borough, following the implementation of the Children Act 1989. The parents' views reflect confusion and the need for emotional as well as material support, the last framed variously as counselling, advice and someone to listen. Social workers' comments on these findings, revealed a lack of confidence in their own abilities, a lack of clarity in their role and increasing disillusion with the services of their organisations.
Subject terms:
needs, parental attitudes, parents, physical disabilities, service users, social work, social care provision, social workers, user views, attitudes, children, families;