Aphasia is a language and communication difficulty that commonly follows stroke. Many people with aphasia have difficulty understanding written or spoken language and expressing themselves in speech or writing. It is estimated that there are at least 40,000 people with aphasia living in the UK. This report describes the findings of an ethnographic study of 20 people with severe aphasia. The aim of the study was to chart the detail of day-to-day life, the challenges faced by people with aphasia, their families and paid carers, and the degree to which statutory health and social services and other, voluntary sector and independent agencies, are meeting their support needs. Interviews were also conducted with primary carers and with health and social care professionals and other service providers. The report throws light on the social exclusion of this group of people and the challenges faced by carers and service providers. It indicates the potential for changing the experience of people with severe aphasia and highlights the urgent need for training and support for all those likely to come into contact with this group: family members, care home managers and staff, rehabilitation personnel and workers in the voluntary sector, as well as greater efforts to integrate and transform services so that needs and rights are identified and access to support is opened up.
Aphasia is a language and communication difficulty that commonly follows stroke. Many people with aphasia have difficulty understanding written or spoken language and expressing themselves in speech or writing. It is estimated that there are at least 40,000 people with aphasia living in the UK. This report describes the findings of an ethnographic study of 20 people with severe aphasia. The aim of the study was to chart the detail of day-to-day life, the challenges faced by people with aphasia, their families and paid carers, and the degree to which statutory health and social services and other, voluntary sector and independent agencies, are meeting their support needs. Interviews were also conducted with primary carers and with health and social care professionals and other service providers. The report throws light on the social exclusion of this group of people and the challenges faced by carers and service providers. It indicates the potential for changing the experience of people with severe aphasia and highlights the urgent need for training and support for all those likely to come into contact with this group: family members, care home managers and staff, rehabilitation personnel and workers in the voluntary sector, as well as greater efforts to integrate and transform services so that needs and rights are identified and access to support is opened up.
Subject terms:
physical disabilities, social exclusion, social care provision, speech impairment, stroke, user views, access to services, activities of daily living, carers, communication disorders, families, head injuries, health care;
GREAT BRITAIN. Office of the Deputy Prime Minister. Social Exclusion Unit
Publisher:
Great Britain. Office of the Deputy Prime Minister. Social Exclusion Unit
Publication year:
2003
Pagination:
147p.
Place of publication:
London
This report examines the links between social exclusion, transport and the location of services. It is particularly focused on access to those opportunities that have the most impact on life-chances, such as work, learning and healthcare. People may not be able to access services as a result of social exclusion. For example, they may be restricted in their use of transport by low incomes, or because bus routes do not run to the right places. Age and disability can also stop people driving and using public transport. Problems with transport provision and the location of services can reinforce social exclusion. They prevent people from accessing key local services or activities, such as jobs, learning, healthcare, food shopping or leisure. Problems can vary by type of area (for example urban or rural) and for different groups of people, such as disabled people, older people or families with children. The effects of road traffic also disproportionately impact on socially excluded areas and individuals through pedestrian accidents, air pollution, noise and the effect on local communities of busy roads cutting through residential areas.
This report examines the links between social exclusion, transport and the location of services. It is particularly focused on access to those opportunities that have the most impact on life-chances, such as work, learning and healthcare. People may not be able to access services as a result of social exclusion. For example, they may be restricted in their use of transport by low incomes, or because bus routes do not run to the right places. Age and disability can also stop people driving and using public transport. Problems with transport provision and the location of services can reinforce social exclusion. They prevent people from accessing key local services or activities, such as jobs, learning, healthcare, food shopping or leisure. Problems can vary by type of area (for example urban or rural) and for different groups of people, such as disabled people, older people or families with children. The effects of road traffic also disproportionately impact on socially excluded areas and individuals through pedestrian accidents, air pollution, noise and the effect on local communities of busy roads cutting through residential areas.
Subject terms:
older people, physical disabilities, policy formulation, poverty, social exclusion, social networks, transport, access to services, demographics, families, employment, equal opportunities, health care;
Disability and Society, 16(7), December 2001, pp.969-979.
Publisher:
Taylor and Francis
This article focuses upon the ways in which deaf and hard of hearing people are excluded from participation in society. Focuses on ordinary expectations that members of society have in terms of participating as citizens and performing socially sanctioned, adult roles. The roles of 'citizens', 'employee', 'parent' and 'patient' are discussed. The data illustrate the organisation and delivery of services can undermine, rather than facilitate, the performance of these roles. Argues that despite policy emphasis on social inclusion, current services and legislation fail to provide a firm basis for the full participation of deaf and hard of hearing people in British society.
This article focuses upon the ways in which deaf and hard of hearing people are excluded from participation in society. Focuses on ordinary expectations that members of society have in terms of participating as citizens and performing socially sanctioned, adult roles. The roles of 'citizens', 'employee', 'parent' and 'patient' are discussed. The data illustrate the organisation and delivery of services can undermine, rather than facilitate, the performance of these roles. Argues that despite policy emphasis on social inclusion, current services and legislation fail to provide a firm basis for the full participation of deaf and hard of hearing people in British society.
Subject terms:
needs, outcomes, patients, parental role, physical disabilities, rights, service users, social exclusion, social care provision, user participation, access to services, communication, employment, equal opportunities, health care, hearing impairment;
University of Kent. European Institute of Social Services
Publication year:
1993
Pagination:
401p.
Place of publication:
Canterbury
Detailed account of social services in the twelve member states of the European Community. Contains sections on: organisation, responsibility and finance for social services; preventative services; children and families; elderly people; people with disabilities; addictions; illnesses; AIDS/HIV; socially excluded people; young people; services for migrants; names and addresses of major public and private social services agencies.
Detailed account of social services in the twelve member states of the European Community. Contains sections on: organisation, responsibility and finance for social services; preventative services; children and families; elderly people; people with disabilities; addictions; illnesses; AIDS/HIV; socially excluded people; young people; services for migrants; names and addresses of major public and private social services agencies.
Subject terms:
HIV AIDS, immigration, learning disabilities, mental health, mental health problems, older people, physical disabilities, poverty, prevention, private health care, social exclusion, social services, voluntary organisations, young people, addiction, alcohol misuse, black and minority ethnic people, children, drug misuse, families, health care;