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Talking about aphasia: living with loss of language after stroke
- Authors:
- PARR Susie, et al
- Publisher:
- Open University Press
- Publication year:
- 1997
- Pagination:
- 157p.,bibliog.
- Place of publication:
- Buckingham
Looks at living with aphasia, a language impairment which can result from stroke. Draws on in-depth interviews with fifty aphasic people to explore the experience of aphasia from the dramatic onset of stroke and loss of language to the gradual revelation of its long term consequences.
Living with severe aphasia: the experience of communication impairment after stroke
- Author:
- PARR Susie
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2004
- Pagination:
- 81p.
- Place of publication:
- York
Aphasia is a language and communication difficulty that commonly follows stroke. Many people with aphasia have difficulty understanding written or spoken language and expressing themselves in speech or writing. It is estimated that there are at least 40,000 people with aphasia living in the UK. This report describes the findings of an ethnographic study of 20 people with severe aphasia. The aim of the study was to chart the detail of day-to-day life, the challenges faced by people with aphasia, their families and paid carers, and the degree to which statutory health and social services and other, voluntary sector and independent agencies, are meeting their support needs. Interviews were also conducted with primary carers and with health and social care professionals and other service providers. The report throws light on the social exclusion of this group of people and the challenges faced by carers and service providers. It indicates the potential for changing the experience of people with severe aphasia and highlights the urgent need for training and support for all those likely to come into contact with this group: family members, care home managers and staff, rehabilitation personnel and workers in the voluntary sector, as well as greater efforts to integrate and transform services so that needs and rights are identified and access to support is opened up.
Aphasia inside out: reflections on communication disability
- Editor:
- PARR Susie
- Publisher:
- Open University Press
- Publication year:
- 2003
- Pagination:
- 164p.,bibliog.
- Place of publication:
- Maidenhead
This book brings together a number of different perspectives on aphasia, a communication impairment that can follow a stroke. Contributors include people with personal experience of aphasia, as well as therapists, counsellors, educationalists, linguists and researchers who address issues of living with aphasia in their work. Whatever their perspective, whether personal, theoretical or professional, contributors reflect on and explore aspects of living with aphasia that have little place in conventional academic discourse. Accordingly, the chapters cover a range of issues, for example aphasia and the Internet, time and poetry. The book suggests new ways of thinking about aphasia, offers insights into the nature of the disabling barriers faced, and explores some creative possibilities open to people who live with communication disability.