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You're on the waiting list: families waiting for respite care services: fourth interim report
- Authors:
- ROBINSON Carol, STALKER Kirsten
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 1991
- Pagination:
- 37p.
- Place of publication:
- Bristol
Many families experience serious problems finding suitable services which can cater for both their child's complex health needs and their own need for significant levels of support. This paper highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.
Breaking news
- Author:
- HESLOP Pauline
- Journal article citation:
- Community Care, 13.11.03, 2003, p.36.
- Publisher:
- Reed Business Information
Reports on a study of how short-break services can prioritise children's views and give their families respite from caring.
Short-term care for children
- Author:
- ROBINSON Carol
- Journal article citation:
- Child and Family Social Work, 1(4), November 1996, pp.261-266.
- Publisher:
- Wiley
Research into short-term care services for children has largely concerned provision for disabled children and their families: a reflection of the greater development of services for disabled children than their non-disabled peers. Describes the range of services in the UK, identifies current gaps in provision as well as some of the factors that affect uptake and user satisfaction with services. It concludes with a summary of current issues of concern for practitioners and policy-makers, including the importance of making services more child-centred and attractive to a wider cross-section of families.
Getting better all the time: delivering and receiving quality services: proceedings from the Shared Care UK annual conference held on 19 September 1995 at Leicester University
- Author:
- NORAH FRY RESEARCH CENTRE
- Publisher:
- Norah Fry Research Centre
- Publication year:
- 1995
- Pagination:
- 93p.
- Place of publication:
- Bristol
Services include breaks (respite care) and the provision of support for disabled children and their families.
A question of quality: questionnaires and guidelines for telephone surveys of parent's and link carer's views in family based short term care services for children
- Editors:
- NEWITT Bernie, (ed.)
- Publisher:
- Shared Care Network
- Publication year:
- 1997
- Pagination:
- 21p.
- Place of publication:
- Bristol
Many children who use family-based short breaks have learning difficulties, other disabilities include physical disabilities, complex healthcare needs, HIV or sensory impairment. Short term breaks help to combat the isolation felt by disabled children, enabling them to meet new people and become part of a 'second family,' widening their social life and offering new experiences. Family-based short breaks also give parents of disabled children a chance to spend quality time with other children or do things which are difficult to do when caring full-time.
Quality counts: a review of quality assurance in family based short term care
- Authors:
- NEWITT Bernie, JONES Vicky, ROBINSON Carol
- Publisher:
- Shared Care Network,|Norah Fry Research Centre
- Publication year:
- 1997
- Pagination:
- 41p.
- Place of publication:
- Bristol
Short breaks (respite care) provide invaluable support for disabled children and their families. They offer opportunities for children to become more independent, widen their horizons and have new experiences. It gives them the chance to form real friendships outside their family. At the same time their families get a break from caring and a chance to recharge their batteries.
Better rewards: the cost and effectiveness of employing salaried support carers to reduce waiting lists for short-term care: research report
- Authors:
- HESLOP Pauline, BYFORD Sarah, WEATHERLY Helen
- Publisher:
- Shared Care Network,|Norah Fry Research Centre
- Publication year:
- 2002
- Pagination:
- 112p., bibliog.
- Place of publication:
- Bristol
The breaks described take place, not in institutions, but in the homes of carefully selected carers/families, in the child's own home or community setting.
Supporting disabled children and their families in Northern Ireland: a research and policy review
- Authors:
- KELLY Berni, MONTEITH Marina
- Publisher:
- National Children's Bureau
- Publication year:
- 2003
- Pagination:
- 12p.
- Place of publication:
- London
Research has provided valuable information on how support services in Northern Ireland can be targeted to meet the needs of disabled children and their families, some of which is based on the views of these children and their parents who are most able to identify the types of services they require. It is imperative that this knowledge is incorporated into the delivery and development of support services in Northern Ireland. Research suggests that parents experience poorly coordinated systems and inadequate services especially at particular stages, such as diagnosis or post-school transitions. Respite care services hold potential benefits for disabled children and their families but need to be more flexible, comprehensive, family based and focused on the needs and wishes of disabled children. There is a need to develop more integrated recreational, social and leisure opportunities for disabled children to help combat their social exclusion.
Support for family carers of children and young people with developmental disabilities and challenging behaviour
- Authors:
- McGILL P., PAPACHRISTOFOROU E., COOPER V.
- Journal article citation:
- Child: Care, Health and Development, 32(2), March 2006, pp.159-163.
- Publisher:
- Wiley
This study gathered information about perceptions of family carers of children and young people with developmental disabilities and challenging behaviour of the help, support and treatment received from services and professionals. A total of 66 family carers completed postal questionnaires on the nature of, and their satisfaction with, services, professional help and advice received in respect of their family member's challenging behaviour. Most carers were dissatisfied with support and services received. Almost half reported receiving no professional input or none that was helpful. Over two-thirds reported receiving respite care but, in a third of these, the child had been excluded because of challenging behaviour. Families of children with challenging behaviour often do not receive services and supports that they find helpful. Treatments provided are not always evidence based. The 'rationing' of services creates a danger of inequality of access. We need a more proactive approach to identifying and meeting the need for family support.
Ensuring access to short breaks by black disabled children and their families
- Authors:
- FLYNN Ronny, PATEL Pratima
- Journal article citation:
- Journal of Integrated Care, 11(1), February 2003, pp.16-21.
- Publisher:
- Emerald
Discusses the results of two research studies highlighting the barriers preventing Black disabled children and families from accessing short break services. The first study was a review of literature and practice funded by the Joseph Rowntree Foundation and conducted by a team based in the School of Health and Social Welfare at the Open University. The second study, funded by Barnardo's Midland region, explored the low take up of short breaks by Bangladeshi and Pakistani families.