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Children's hospices: a lifeline for families?
- Authors:
- ROBINSON Carol, JACKSON Pat
- Publisher:
- National Children's Bureau
- Publication year:
- 1999
- Pagination:
- 94p.,tables,bibliog.
- Place of publication:
- London
Examines the role of children's hospices in the provision of care for disabled children who are medically frail and who require some element of nursing care. The majority of admissions in the study are short term to provide parents with a break. Looks at: the children who use hospices and what kind of care they receive; why families use the services, their views and experiences; and the impact of hospice care on professionals supporting them. Also examines how hospices are regulated. Illustrated throughout with case studies. Concludes with recommendations for future policy and good practice.
Short breaks for families caring for a disabled child with complex health needs
- Authors:
- ROBINSON Carol, et al
- Journal article citation:
- Child and Family Social Work, 6(1), February 2001, pp.67-75.
- Publisher:
- Wiley
Analyses data from two research studies concerned with disabled children who have complex health needs in relation to families' experiences of assessing short breaks (respite) services. This article highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.