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My home, your workplace: people with physical disability negotiate their sexual health without crossing professional boundaries
- Authors:
- BROWNE Jan, RUSSELL Sarah
- Journal article citation:
- Disability and Society, 20(4), June 2005, pp.375-388.
- Publisher:
- Taylor and Francis
This paper aims to describe research that examined the views of people with physical disability, living in Australia, of their sexual well-being needs from their own perspective. The study explored the impact their sexual well-being needs had on their relationships with professional carers. A social model of disability was used to understand how sexual well-being is facilitated or denied in community care. It also explored whether clients’ sexual well-being needs could be met without carers or clients ‘crossing the line’. The findings indicate the multiple ways that ‘professional boundaries’ were negotiated between clients and professional carers. The data show that the location of the ‘line’ changed, depending on a range of personal, social, economic and environmental factors. The data also show a gap between the sexual well-being needs of people living with a physical disability and the level of support provided at the social and organisational levels. Suggestions are made for research and practice directions.
'Just when you think you got it all sorted...': parental dilemmas in relation to the developing sexuality of young profoundly disabled people
- Authors:
- SWAIN John, THIRLAWAY Carole
- Journal article citation:
- British Journal of Learning Disabilities, 24(2), 1996, pp.58-64.
- Publisher:
- Wiley
Sexuality is a neglected topic in the literature focusing on young profoundly disabled people. For parents and formal carers who work with parents and young people themselves, however, sexual development and identity pose fraught and complex challenges in understanding and addressing young people's needs. This paper is based on qualitative research which explored parents' experiences, feelings and understandings and the responses of formal carers to parents' perspectives. The parents faced contradictory pressures to deny and not to deny sexuality. Formal carers drew on beliefs about 'good parenting' in reactions to the position of parents. Both groups confronted real dilemmas with young people who are incapable, and may never be capable, of informed consent of self-determination in sexual relationships.
If only I'd known that a year ago: a guide for newly disabled people, their families and friends
- Author:
- ROYAL ASSOCIATION FOR DISABILITY AND REHABILITATION
- Publisher:
- Royal Association for Disability and Rehabilitation
- Publication year:
- 1993
- Pagination:
- 13p.,lists of orgs.,bibliogs.
- Place of publication:
- London
Contains information sheets on: community care; housing; daily living; mobility; education; employment; community health services; support for carers; social security; personal relationships; and holidays, leisure and sports.
Subversive political praxis: supporting choice, power and control for people with learning difficulties
- Author:
- THOMPSON S. A.
- Journal article citation:
- Disability and Society, 18(6), October 2003, pp.719-736.
- Publisher:
- Taylor and Francis
This paper is drawn from research conducted with gay and bisexual men with learning difficulties, a project that included participants' various struggles to self-identify within these alternative sexualities. Significant parts of this identity work were mitigated by participation in what is referred to here as 'politically radical support groups'. Three facilitators of these groups, professionals in the areas of sex education, were interviewed and a common itinerary was uncovered, namely a subversive and political praxis. At its heart, such praxis argues that educational endeavours for people with learning difficulties must not only account for disabling practices, but more importantly, maximally prioritise the mitigation of such prejudice within educational activities. Furthermore, it is argued that political praxis is not merely theoretical; six practical strategies are offered. In these ways, caregivers are offered concrete approaches to (genuinely) support the choice, power and control for people with learning difficulties.
Proud child, safer child: a handbook for parents and carers of disabled children
- Author:
- CROSS Merry
- Publisher:
- Women's Press
- Publication year:
- 1998
- Pagination:
- 206p.,list of orgs.,bibliog.
- Place of publication:
- London
Looks at the abuse of disabled children and provides parents and carers with the skills they need to protect their children. Looks at: the particular vulnerabilities of some disabled children to all types of abuse; the social, economic and political reasons why some disabled children are not as well protected as they need to be; effective strategies to reduce risk of abuse; advice on building a child's self esteem; ways of communicating with children with a range of disabilities; clear guidance on how to recognise and assess the signs and indicators of abuse; information on the pros and cons of medical intervention; safer policies and procedures for organisations; and strategies for creating the best possible context for recovery from abuse.
Social and personal relationships: policy and good practice guidelines for staff working with adults with learning disabilities
- Author:
- BRITISH INSTITUTE OF LEARNING DISABILITIES
- Publisher:
- British Institute of Learning Disabilities,|West Midlands Learning Disability Fo
- Publication year:
- 2001
- Pagination:
- 72p.bibliog.
- Place of publication:
- Kidderminster
Sets out a policy framework which outlines the rights and responsibilities of staff, carers, relatives and adults with learning disabilities. Good practice guidelines are provided on how the policy can be used by staff in various settings, in supporting adults with learning difficulties in their social and personal relationships. Topics discussed include: the law; consent; risk; advocacy; staff support; equal opportunities; confidentiality; whistle blowing; parental/carer involvement; personal and sexual relationships; sexual orientation; self stimulation; sexual health; contraception; pregnancy and unwanted pregnancy; sterilisation and vascectomy; marriage and other partnerships; divorce and separation; sexually stimulating material; sexual abuse; service standards