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Factors associated with the amount of public home care received by elderly and intellectually disabled individuals in a large Norwegian municipality
- Authors:
- DOHL Oystein, et al
- Journal article citation:
- Health and Social Care in the Community, 24(3), 2016, pp.297-308.
- Publisher:
- Wiley
This study reports an analysis of factors associated with home care use in a setting in which long-term care services are provided within a publicly financed welfare system. The study considered two groups of home care recipients: elderly individuals and intellectually disabled individuals. Routinely collected data on users of public home care in the municipality of Trondheim in October 2012, including 2493 people aged 67 years or older and 270 intellectually disabled people, were used. Multivariate regression analysis was used to analyse the relationship between the time spent in direct contact with recipients by public healthcare personnel and perceived individual determinants of home care use (i.e. physical disability, cognitive impairment, diagnoses, age and gender, as well as socioeconomic characteristics). Physical disability and cognitive impairment are routinely registered for long-term care users through a standardised instrument that is used in all Norwegian municipalities. Factor analysis was used to aggregate the individual items into composite variables that were included as need variables. Both physical disability and cognitive impairment were strong predictors of the amount of received care for both elderly and intellectually disabled individuals. The study identified a negative interaction effect between physical disability and cognitive impairment for elderly home care users. For elderly individuals, results also found significant positive associations between weekly hours of home care and having comorbidity, living alone, living in a service flat and having a safety alarm. The reduction in the amount of care for elderly individuals living with a cohabitant was substantially greater for males than for females. For intellectually disabled individuals, receiving services involuntarily due to severe behavioural problems was a strong predictor of the amount of care received. The analysis showed that routinely collected data capture important predictors of home care use and thus facilitate both short-term budgeting and long-term planning of home care services. (Edited publisher abstract)
Evaluation of residential training provision
- Authors:
- GRIFFITHS Rita, DURKIN Stuart, MITCHELL Alison
- Publisher:
- Corporate Document Services; Great Britain. Department for Work and Pensions
- Publication year:
- 2007
- Pagination:
- 117p.
- Place of publication:
- Leeds
Residential training is an employment programme designed to help long-term unemployed adults with disabilities and serious health conditions who are unable to access suitable local training to move off benefits into sustained employment or self-employment. This evaluation looks at the effectiveness of the programme.
Young, disabled and forgotten: report of the John Grooms inquiry into the needs of young disabled people
- Author:
- CHRISTOPHIDES Rachael
- Publisher:
- John Grooms
- Publication year:
- 2006
- Pagination:
- 134p.
- Place of publication:
- London
Young disabled people, often with severe and complex conditions, are being denied a real choice about how and where they live. Lack of government funding, a postcode lottery of services, a chronic lack of data and negative attitudes about "residential care" among some policy-makers and professionals are to blame. More than a third of young disabled adults living in care homes are housed inappropriately, the report shows. According to the best available data, at least 9,000 are living in settings designed for a different client group - often in homes for older people.
Young, disabled and forgotten: report of the John Grooms inquiry into the needs of young disabled people: summary findings and recommendations
- Author:
- CHRISTOPHIDES Rachael
- Publisher:
- John Grooms
- Publication year:
- 2006
- Pagination:
- 9p.
- Place of publication:
- London
Young disabled people, often with severe and complex conditions, are being denied a real choice about how and where they live. Lack of government funding, a postcode lottery of services, a chronic lack of data and negative attitudes about "residential care" among some policy-makers and professionals are to blame. More than a third of young disabled adults living in care homes are housed inappropriately, the report shows. According to the best available data, at least 9,000 are living in settings designed for a different client group - often in homes for older people.
Disabled children in residential placements
- Author:
- PINNEY Anne
- Publisher:
- Great Britain. Department for Education and Skills
- Publication year:
- 2005
- Pagination:
- 68p.
- Place of publication:
- London
This report draws together available information about the numbers, circumstances and outcomes of disabled children in residential placements provided by Social Services, Education and Health. There are around 13,300 disabled children in long-term residential placements, mainly in special schools, children's homes and hospitals. The report provides the most comprehensive picture yet of these children, drawing on education, health and social care data.
Should the CSCI review its own standards?
- Author:
- WILLIAMS Paul
- Journal article citation:
- Community Living, 19(1), August 2005, pp.18-19.
- Publisher:
- Hexagon Publishing
The author summarises key points from research carried out by the Tizard Centre and the University of Kent which confirmed criticisms that have been made of the Care Standards and inspection of them by the Commission for Social Care Inspection (CSCI). The studies findings suggest that the assessment of services using the national minimum standards does not yet reflect important user outcomes.
Neighbors' perceptions of group homes
- Author:
- COOK James R.
- Journal article citation:
- Community Mental Health Journal, 33(4), August 1997, pp.287-299.
- Publisher:
- Springer
Neighbours often presume that group homes (GHs) have negative effects on their neighbourhoods, but it is unclear how often GHs actually have adverse affects. Reports on a survey of neighbours and "non-neighbours" of group homes for people with disabilities in the USA. Neighbours were asked about their experiences and non-neighbours were asked about their expectations of what it would be like to live near a group home, both positive and negative. The research supports prior findings that expectations of negative effects are much greater than what is actually experienced by neighbours. It also suggests that GH operators might wish to capitalise on the positive expectations that may be overshadowed by the more commonly voiced negative expectations.
Who said dialogue conversations are easy? The communication between communication vulnerable people and health‐care professionals: a qualitative study
- Authors:
- STANS Steffy E.A., et al
- Journal article citation:
- Health Expectations, 21(5), 2018, pp.848-857. Online only
- Publisher:
- Wiley
Objective: To gain insight into how communication vulnerable people and health‐care professionals experience the communication in dialogue conversations, and how they adjust their conversation using augmentative and alternative communication (AAC) or other communication strategies. Methods: Communication vulnerable clients and health‐care professionals in a long‐term care institution were observed during a dialogue conversation (n = 11) and subsequently interviewed (n = 22) about their experiences with the conversation. The clients had various communication difficulties due to different underlying aetiologies, such as acquired brain injury or learning disorder. Results from the observations and interviews were analysed using conventional content analysis.Results: Seven key themes emerged regarding the experiences of clients and professionals: clients blame themselves for miscommunications; the relevance of both parties preparing the conversation; a quiet and familiar environment benefitting communication; giving clients enough time; the importance and complexity of nonverbal communication; the need to tailor communication to the client; prejudices and inexperience regarding AAC. The observations showed that some professionals had difficulties using appropriate communication strategies and all professionals relied mostly on verbal or nonverbal communication strategies. Conclusion: Professionals were aware of the importance of preparation, sufficient time, a suitable environment and considering nonverbal communication in dialogue conversations. However, they struggled with adequate use of communication strategies, such as verbal communication and AAC. There is a lack of knowledge about AAC, and professionals and clients need to be informed about the potential of AAC and how this can help them achieve equal participation in dialogue conversations in addition to other communication strategies. (Publisher abstract)
Not your average childhood: lived experience of children with physical disabilities raised in Bloorview hospital, home and school from 1960 to 1989
- Author:
- ODELL Tracy
- Journal article citation:
- Disability and Society, 26(1), January 2011, pp.49-63.
- Publisher:
- Taylor and Francis
Eight women and eight men with physical disabilities were interviewed to document their recollection of institutionalisation in Toronto’s Bloorview Hospital, Home and School between 1960 and 1989. The author lived at Bloorview from 1965 at age seven, until 1976. The diagnoses of participants included cerebral palsy, spina bifida, muscular dystrophy, and spinal cord injury/paraplegia. Respondents were aged 30 to 50 years; average length of stay in Bloorview was 7 years; the majority resided at Bloorview from age 10 to 18. Generally, those who lived at Bloorview prior to 1975 had a more negative experience and those who lived there after 1975 had a more positive experience. Residents operated a hierarchy among themselves, with those best able to speak and move themselves at the top. They experienced emotional, physical and sexual abuse. Punishment was often carried out in ways that took unfair advantage of their disability. Residents found creative ways to be rebellious. Respondents did not think that the schooling or therapy they got was useful, but felt that friends, family and recreation programs gave them self esteem and a positive future. Respondents, in retrospect, supported an ongoing role for institutions as a resource for technology and for fostering independence.
The best place to be? Residential school placements for disabled children
- Authors:
- ABBOTT David, WARD Linda, MORRIS Jenny
- Journal article citation:
- Children Now, 13, Summer 2002, pp.7-8.
- Publisher:
- Haymarket
Reports on recent research from the Joseph Rowntree Foundation which examined residential school placements for disabled children. Focuses on the experiences of the children, parents attitudes, and whether placements are monitored by local authorities.