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Statistics of Japanese with disabilities
- Author:
- SATO Hisao
- Journal article citation:
- Journal of Social Policy and Social Work, 6, March 2002, pp.61-75.
- Publisher:
- Japan College of Social Work
Although current statistics offer valuable insights, there is the need to discover cross disability and cross life stage prevalence of persons with disabilities. This paper offers an evaluation of current statistics and offers suggestions for further research.
Disabled by design
- Author:
- BENNETT Una
- Journal article citation:
- Disability and Society, 17(7), December 2002, pp.809-823.
- Publisher:
- Taylor and Francis
This paper describes and analyses the author's attempts to engage in a user-led design/research process.
The Multidimensional Observation Scale for Elderly Subjects (MOSES): studies in adults with intellectual disability
- Authors:
- DALTON Arthur J., et al
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.310-324.
- Publisher:
- Taylor and Francis
Describes the results of five studies aimed at evaluating the usefulness, reliability, and validity of the Multidimensional Observation Scale for Elderly Subjects (MOSES) in the assessment of change in ageing persons with intellectual disability. Three hundred and thirty-six individuals with an average age of 49.8 years, including an equal number of men and women, were participants in one or more of the five studies. There were 220 participants with Down syndrome, 81 persons without Down syndrome with intellectual disability, and 35 persons from the general ageing population who were clinically diagnosed with Alzheimer's disease. Results concluded that the MOSES is a behavioural observation scale that can provide useful information in clinical settings as well as in research.
Development of an instrument for early detection of dementia in people with Down syndrome
- Authors:
- JOHANSSON Per Erik, TERENIUS Olle
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.325-345.
- Publisher:
- Taylor and Francis
The successful detection of early signs of dementia in people with Down syndrome could form a basis for useful early support and for drug treatment. This report describes the development and preliminary application of an interview and test instrument for the assessment of dementia among people with intellectual disability, as well as a framework for diagnosis. Reported are the assumptions for the items used, descriptions of the process and items used, and the associations of test items with predicting the presence of dementia. The authors conclude that a protocol combining testing and interview has promise and potential for detecting early signs of dementia in this population and could prove feasible for use in practice.
Comparison of instruments for the diagnosis of dementia in individuals with intellectual disability
- Authors:
- HOEKMAN Joop, MAASKANT Marian A.
- Journal article citation:
- Journal of Intellectual and Developmental Disability, 27(4), December 2002, pp.296-309.
- Publisher:
- Taylor and Francis
This article describes the agreement among the results (dementia/no dementia) of three instruments used for the potential diagnosis of dementia in persons with intellectual disability. The instruments are: the Dementia Questionnaire for Mentally Retarded Persons (DMR), the Checklist with Symptoms of Dementia (CLD) and the Delayed Match-to-Sample Test (DMTS). The results were compared with the expert opinion of a physician/educational specialist/psychologist. The participants were 329 adults affiliated with centres for people with intellectual disability in The Netherlands. It was found that the agreement among the three instruments was low. The agreement between the expert opinion and the results of the tests was also found to be low. It was concluded that the instruments do not mutually agree upon which of the adults can be regarded as dementing or not dementing and they also provide inconsistent agreement with the expert opinion when dementia is present. It was further concluded that it is not advisable to use a single instrument when attempting to diagnose dementia in people with intellectual disability.
Reporting and validating research findings through reconstructed stories
- Authors:
- PAPADOPOULOS Irena, SCANLON Karen, LEES Shelly
- Journal article citation:
- Disability and Society, 17(3), May 2002, pp.269-281.
- Publisher:
- Taylor and Francis
This article describes the use of and reasons why reconstructed stories were used as a method of presenting and validating the findings from the interview data with visually impaired people obtained from Enfield Vision Research Project, into the needs of visually impaired people resident in the London Borough of Enfield. In order to present and validate the findings of the first 20 interviews the researchers organised a group respondent validation event. The researchers orally presented the findings in the form of reconstructed stories. These stories encompassed a number of theme and sub-themes that had emerged from the analysis. The attendees were separated into two groups to discuss the stories. Concludes that the use of reconstructed stories is a novel, user friendly and effective method of presenting and validating qualitative research data, and is particularly suitable method when the respondents have visual difficulties.
Qualitative research in practice: stories from the field
- Authors:
- DARLINGTON Yvonne, SCOTT Dorothy
- Publisher:
- Open University Press
- Publication year:
- 2002
- Pagination:
- 208p.,bibliog.
- Place of publication:
- Maidenhead
This book provides an introduction to qualitative research through actual research projects that illustrate key stages in the research process. They draw on experiences of research undertaken in a variety of human service areas by researchers in Australia, the UK, New Zealand and Hong Kong. These 'stories from the field' are framed by broader discussions by the authors of the research process. The researchers' stories reveal the human face of research undertaken in often difficult contexts: with homeless people, with disabled people, in nursing homes, with victims of domestic violence, and with adopted children. The focus is on 'doing' research and 'being' a researcher, rather than on 'how to do' research.
Social work practice with disabled children
- Author:
- GRIFFITHS Elisabeth
- Publisher:
- University of East Anglia
- Publication year:
- 2002
- Pagination:
- 50p.bibliog.
- Place of publication:
- Norwich
This book aims to explore the experiences of five families who have received social work input because their child or children are disabled. It aims to establish whether they found the input a help or a hindrance, empowering or further disabling for themselves and their children. Contents: literature review; method and methodology; presentation, discussion and analysis of results; conclusions, recommendations and suggestions for future research.
A poorly understood condition: disability living allowance and people with CFS/ME
- Author:
- HAMMOND Cathie
- Journal article citation:
- Social Policy and Administration, 36(3), June 2002, pp.254-274.
- Publisher:
- Wiley
This paper questions the adequacy of administrative responses to poorly understood disabling conditions in the UK. It examines the administration of the Disability Living Allowance (DLA) to people with chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME). The history of DLA are outlined, and research evaluating its administration and impact is reviewed. Quantitative data from the DSS are combined with qualitative data obtained from interviews with claimants and non-claimants of DLA with CFS/ME and with benefits advisers. Additional data from a national survey of people with CFS/ME are incorporated into the analysis. The findings show how the adjudication of DLA is particularly problematic in relation to people with CFS/ME. Decisions are likely to be based on inadequate evidence. These and other relevant findings are discussed in the context of the stigma attached to CFS/ME and other poorly understood disabling conditions, and socio-legal research and theory.