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Rehabilitation information system for people with disabilities
- Authors:
- SHOSHMIN Alexander, MARTYNOVA Natalie, RIABOKON Anna
- Journal article citation:
- New Technology in the Human Services, 12(1/2), 1999, pp.39-46.
- Publisher:
- Centre for Human Service Technology
Russian government policy is to organise services for disabled people, but these intentions are not enough. Implementation depends on organisational, financial and legal aspects. It is possible to change the present system of assistance now. For this purpose it is necessary to create a uniform information environment for and about disabled people. The authors present a clear and constructive program for practical realisation of an information system in one social sphere - rehabilitation of disabled people.
A qualitative study of adult AAC users’ experiences communicating with medical providers
- Authors:
- MORRIS Megan A., DUDGEON Brian J., YORKSTON Kathryn
- Journal article citation:
- Disability and Rehabilitation: Assistive Technology, 8(6), 2013, pp.472-481.
- Publisher:
- Taylor and Francis
- Place of publication:
- London
Purpose: To study the experiences of adults who use augmentative and alternative communication (AAC) systems and methods when interacting with medical providers, specifically primary care providers. Method: Individual face-to-face interviews were conducted with 12 participants, four of whom also participated in an online focus group. Diagnoses of the participants included cerebral palsy, undifferentiated developmental disability, head and neck cancer, amyotrophic lateral sclerosis and primary lateral sclerosis. Transcripts from the interviews and the focus group were analysed to create a list of codes. From these codes themes that captured particular concepts discussed were identified. Results: Participants described multiple frustrations in communicating with medical care providers. Themes that arose included: planning and preparing for the appointment, time barriers, inappropriate assumptions, relationship building and establishing rapport, medical decision making and implementing the plan. All but one participant reported bringing a caregiver with them to their appointments and this person, whether a family member, friend or paid aide, had a substantial role throughout the appointment. Conclusions: The participants’ stories highlight important barriers they experience when communicating with medical providers. These barriers bring attention to the need for education for physicians, caregivers and patients with communication disabilities, along with increased research to improve patient--provider communication. Implications for Rehabilitation: a) Patients with communication disabilities face multiple barriers to communicating with medical care providers.; b) Patients, caregivers, and medical care providers all play a role in effective and ineffective communication during appointments; c) Education for medical care providers, caregivers, and patients with communication disabilities, along with increased research is needed to improve patient-provider communication. (Publisher abstract)
Rehabilitation of the older person: a handbook for the interdisciplinary team
- Editors:
- SQUIRES Amanda, HASTINGS Margaret
- Publisher:
- Nelson Thornes
- Publication year:
- 2002
- Pagination:
- 412p.,bibliog.
- Place of publication:
- Cheltenham
- Edition:
- 3rd.
Issues concerning rehabilitation of the elderly and considered from a multi-faceted team management approach. A shift in emphasis from people to person and from multidisciplinary to interdisciplinary reflects changes in the rehabilitation of older people. The book is divided into three sections dealing with the opportunity for, and theory and practice of, rehabilitation.