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Living with impairment: learning from disabled young people's biographies
- Authors:
- CURTIN Michael, CLARKE Gill
- Journal article citation:
- British Journal of Occupational Therapy, 68(9), September 2005, pp.401-408.
- Publisher:
- Sage
This study investigates the life stories of a small number of disabled young people through their biographies. Nine young people who had a motor impairment, three girls and six boys aged between 10 and 14 years, were recruited through two segregated special schools. Each young person participated in several open interviews and was encouraged to tell his or her life story, collaborating in the co-construction of his or her own biography. Once the biographies were completed, they were thematically analysed. Four themes emerged from the analysis: family, friends, education and living with an impairment. The focus of this article is on the last theme. The findings indicate that the young people were positive about their lives even though they implied that it was a struggle at times, primarily due to the negative perceptions that the general public had of disabled people. They did not consider that their medical and therapy interventions contributed to their feeling different, but saw these interventions as important to maintaining and improving their function. They accepted that they had an impairment, but did not see this as a reason for not getting on with their lives.
Impact of surgical and orthotic intervention on the quality of life of people with profound intellectual and multiple disabilities and their carers
- Authors:
- NEILSON Aileen, et al
- Journal article citation:
- Journal of Applied Research in Intellectual Disabilities, 13(4), 2000, pp.216-238.
- Publisher:
- Wiley
The increasing analysis of quality of life issues for people with disabilities has not been paralleled in relation to people with profound intellectual and multiple disabilities (PIMDs). This is nowhere more the case than with regard to the impact of health status on their quality of life. In addition, people with PIMDs, and the interventions which they require, have not been included within wider considerations of the economics of healthcare and its relation to rational decision-making regarding medical provision. The present exploratory study considered the impact of a wide range of surgical and orthotic interventions on the quality of life of 27 children and adults with PIMDs. The results are presented with respect to these individual areas and the extent to which the findings are congruent. The need for the development of these measures to meet the specific requirements of this population and the development of a more formal model integrating these steps are considered.
Not even in the queue
- Author:
- WELLARD Sarah
- Journal article citation:
- Community Care, 26.8.99, 1999, pp.24-25.
- Publisher:
- Reed Business Information
As donor organs become more scarce, doctors are increasingly selective with the result that those with Down's syndrome are not chosen for surgery.