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Is parental coping associated with the level of function in children with physical disabilities?
- Authors:
- CAVALLO S., et al
- Journal article citation:
- Child: Care, Health and Development, 35(1), January 2009, pp.33-40.
- Publisher:
- Wiley
The objectives of this study are: (1) to describe parental coping in a cohort of children with physical disabilities (PDs); (2) to determine whether the child's level of function is associated with parental coping; and (3) to explore whether socio-demographic factors such as child's age, maternal education and family structure are associated with parental coping. Parents of 150 children with PDs were interviewed after being referred to community rehabilitation services in a Canadian hospital. They answered the following: the Coping Health Inventory for Parents, the Functional Independence Measure for children (WeeFIM) and a study questionnaire that addressed socio-demographic characteristics. Multiple linear regression models were used to determine the association between level of function and other factors and parental coping. Parental coping scores, measured by the Coping Health Inventory for Parents, indicated that the parents in the study found seeking out social support from community resources useful. Parents of children with moderate to severe dysfunction in mobility (WeeFIM) found coping behaviours related to communicating with the healthcare professionals regarding their child's condition useful. Greater perceived usefulness of maintaining social support through community resources was associated with lower maternal education, working parents and two-parent families. These findings underscore the importance of helping parents of children with PDs maintain social support. It is important to help parents understand their child's medical situation, especially those whose children have more severe mobility dysfunction.
MS: challenges and strategies
- Authors:
- EVERINGTON Shanta, BLOOMFIELD Jo
- Journal article citation:
- Disability, Pregnancy and Parenthood International, 67, Winter 2009, pp.4-5.
- Publisher:
- National Centre for Disabled Parents
Jo Bloomfield, a mother with MS, from Bedford, UK talks about some of the challenges of parenting with multiple sclerosis (MS) and about her experiences of accessing her sons’ school as a disabled parent.
Short breaks tracking: interim report April 2009
- Author:
- EVERY DISABLED CHILD MATTERS
- Publisher:
- Every Disabled Child Matters
- Publication year:
- 2009
- Pagination:
- 20p.
- Place of publication:
- London
An interim report on a research project evaluating the impact of the Aiming High for Disabled Children short breaks programme on the lives of disabled children and their families. It covers: aims of the project; state of short breaks services in 2008; short breaks tracking 2008-9; information and transparency; assessment; participation and feedback. Findings indicate that evidence of good practice is emerging but there is still a long way to go before a consistent, sustainable service is available for all disabled children.
Supporting disabled parents: a family or a fragmented approach?
- Author:
- COMMISSION FOR SOCIAL CARE INSPECTION
- Publisher:
- Commission for Social Care Inspection
- Publication year:
- 2009
- Pagination:
- 55p.
- Place of publication:
- London
This CSCI report seeks to examine the experiences of disabled parents and their families and to see how far council policies, services and practice are providing appropriate support. The findings in this report are taken from a national survey of 50 councils; of the 70 interviews, 36 were conducted with representatives of adults’ services and 32 of children’s services, and two were conducted with a representative from each service jointly. To supplement the national picture, in-depth study workshops of services were conducted in four council areas. The report finds that many councils do not fully support disabled parents and their children.
What the future holds: older people caring for adult sons and daughters with disabilities
- Authors:
- DILLENBURGER Karola, MCKERR Lyn
- Publisher:
- Changing Ageing Partnership
- Publication year:
- 2009
- Pagination:
- 150p., bibliog.
- Place of publication:
- Belfast
This report is based on interviews with 29 parents reporting on 27 adult sons and daughters with disabilities in which issues were explored in relation to present life circumstances, support from family and service providers, levels of health and impairment, and futures planning. Findings expose high levels of commitment and love for sons and daughters in the face of, at times, severe disabilities and carers’ ill health. Carers also experienced twice the level of psychological stress than the general population. They faced worry and loneliness, experienced severe lack of statutory support, and reported near non-existence of futures planning, especially in cases with highest levels of impairment.