Search results for ‘Subject term:"physical disabilities"’ Sort:
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Housing: choice is the key
- Author:
- -
- Journal article citation:
- Disability, Pregnancy and Parenthood International, 51, Autumn 2005, pp.12-13.
- Publisher:
- National Centre for Disabled Parents
This article explores ways to achieve long-term inclusive solutions for housing of disabled parents. The article draws on evidence from several housing studies which indicate that disabled people wont to choose whether or not to move home, and if they do wish to move they want choice.
Childcare products for all?
- Author:
- ETCHELL Lindsey
- Journal article citation:
- Disability, Pregnancy and Parenthood International, 49, Spring 2005, pp.12-13.
- Publisher:
- National Centre for Disabled Parents
The author describes some of the findings of Ricabilitiy's three-year project to assess a range of mainstream childcare products for ease of use by disabled parents.
Equal opportunity and inclusion
- Author:
- SMITH Maria
- Journal article citation:
- Disability, Pregnancy and Parenthood International, 47, Summer 2004, pp.12-13.
- Publisher:
- National Centre for Disabled Parents
Describes the development of a self-assessment toolkit by the Cheshire Parents Advisory Group, which was set up in March 2003 and identified the need for a project to develop good practice on the theme of fair access to services. Five disabled parents joined the project which had the starting points equal opportunity and inclusion.
Use of mental health and support services among families of children with disabilities: discrepant views of parents and paediatricians
- Authors:
- UREY Jon R., VIAR Vicki
- Journal article citation:
- Mental Handicap Research, 3(1), 1990, pp.81-88.
- Publisher:
- BIMH Publications
Reports on research carried out in the USA.
Is parental coping associated with the level of function in children with physical disabilities?
- Authors:
- CAVALLO S., et al
- Journal article citation:
- Child: Care, Health and Development, 35(1), January 2009, pp.33-40.
- Publisher:
- Wiley
The objectives of this study are: (1) to describe parental coping in a cohort of children with physical disabilities (PDs); (2) to determine whether the child's level of function is associated with parental coping; and (3) to explore whether socio-demographic factors such as child's age, maternal education and family structure are associated with parental coping. Parents of 150 children with PDs were interviewed after being referred to community rehabilitation services in a Canadian hospital. They answered the following: the Coping Health Inventory for Parents, the Functional Independence Measure for children (WeeFIM) and a study questionnaire that addressed socio-demographic characteristics. Multiple linear regression models were used to determine the association between level of function and other factors and parental coping. Parental coping scores, measured by the Coping Health Inventory for Parents, indicated that the parents in the study found seeking out social support from community resources useful. Parents of children with moderate to severe dysfunction in mobility (WeeFIM) found coping behaviours related to communicating with the healthcare professionals regarding their child's condition useful. Greater perceived usefulness of maintaining social support through community resources was associated with lower maternal education, working parents and two-parent families. These findings underscore the importance of helping parents of children with PDs maintain social support. It is important to help parents understand their child's medical situation, especially those whose children have more severe mobility dysfunction.
Using the Internet? The experiences of parents of disabled children
- Authors:
- BLACKBURN C., READ J.
- Journal article citation:
- Child: Care, Health and Development, 31(5), September 2005, pp.507-515.
- Publisher:
- Wiley
This paper looks at parents of disabled children's experience of using the Internet. The study draws on a subset of data from the 'Carers Online' project, which took place between 2001 and 2003 in the UK. A cross-sectional survey of 3014 adult carers, of which 788 were carers of disabled children aged 0-17, was used. Data were collected using a postal questionnaire. A high proportion (75%) had previously used the Internet. Of these, 63% were frequent users and 91% were using it at home. Popular uses were emailing, obtaining information about caring, ordering equipment and shopping online. Despite positive benefits, users experienced problems relating to technical issues and equipment and system design. Lack of time owing to caring and other circumstances was an issue for over half of all users. Those who did not use the Internet were more likely to be living in rented accommodation, be unemployed and not have a PC at home. Reasons for not using the Internet included lack of access to equipment, cost and lack of skill. The authors conclude that for some parents the Internet is a viable and flexible medium for accessing useful information and services. However, caution about the extent to which it becomes the primary means for delivering information is needed. The 'digital divide' between users and non-users makes it crucial that issues of cost, lack of equipment and skill be addressed. Information needs to be made available in other forms to ensure that those who cannot or do not wish to use the Internet are not socially excluded.
Make it mainstream
- Author:
- WATES Michele
- Journal article citation:
- Community Care, 25.9.03, 2003, pp.40-41.
- Publisher:
- Reed Business Information
Reports on a study which highlights how disabled parents want more access to formal support and services. The Disabled Parents Network surveyed existing groups and networks supporting parents with chronic illness, physical and sensory impairments, those with learning difficulties or with mental health needs. The consultation included 120 returned questionnaires, nine focus group meetings and informal interviews. Over 150 disabled parents were involved. The research highlighted the need for a more coordinated approach to provide holistic provision for families.
Quality in services for disabled children and their families: what can theory, policy and research on children's and parents' views tell us?
- Authors:
- MITCHELL Wendy, SLOPER Patricia
- Journal article citation:
- Children and Society, 15(4), September 2001, pp.237-252.
- Publisher:
- Wiley
This article seeks to define 'quality' in services for disabled children and their families. Theoretical models are initially reviewed and then considered in relation to key policy guidelines, empirical data drawing upon parents' and children's experiences of 'quality' in services are presented. Demonstrates the many different levels within the concept of 'quality' and highlights the importance of recognising and respecting that children and parents frequently value different aspects of 'quality'.
Stress in parenting a disabled child
- Author:
- MUTCH Elizabeth
- Publisher:
- University of East Anglia
- Publication year:
- 1997
- Pagination:
- 34p.,bibliog.
- Place of publication:
- Norwich
Research report looking at the stresses on parents who have a disabled child living at home. Emphasises throughout the need for social workers to work in a way which is sensitive to individual cases, recognising the particular strengths and needs within each family. Contains sections on: sources of stress; coping mechanisms/resources; and formal and informal support networks.
Parents with physical disabilities and perinatal services: defining parents’ needs and their access to services
- Authors:
- MERCERAT Coralie, SAIAS Thomas
- Journal article citation:
- Disability and Society, 36(8), 2021, pp.1261-1284.
- Publisher:
- Taylor and Francis
Parents with physical disabilities face challenges in their relationships with perinatal and early childhood services. This paper aims to better understand the experiences and needs of parents with physical disabilities regarding perinatal and early childhood services in the public healthcare system in Quebec, Canada. This paper also describes how adequately current services meet the needs of these individuals. Thirteen interviews were conducted with ten mothers and three fathers with physical disabilities. Results indicate challenges in various phases of the parental experience: the decision to have a child and conception; pregnancy follow-up; delivery; postnatal care and parental practices. The main issues reported by participants involved access to information and professionals’ attitudes. Participants also emphasized the importance of keeping control over the parenting process. As there is a growing interest in the questions surrounding parents with disabilities in Quebec, this study can provide useful insights for community organizations and political stakeholders. (Edited publisher abstract)