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Empowerment of parents of children with disabilities: the effect of community and personal variables
- Authors:
- ITZHAKY Haya, SCHWARTZ Chaya
- Journal article citation:
- Journal of Family Social Work, 5(1), 2000, pp.21-36.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
This article explores empowerment among parents of children with disabilities. Specifically, it deals with how changes in parents' patterns of involvement and participation lead to empowerment. Parents of children with disabilities in Israel who are involved in voluntary organisations for the disabled were surveyed in relation to three components of empowerment: family; services; and community. Four community variables-patterns of activity in organisation, representation of the disabled and their families, participation in decision-making, and sense of belonging to the community-and two personal variables-self-esteem and mastery-were each found to affect at least one of the components of empowerment. The article includes some recommendations for social workers with regard to the empowerment of parents of disabled children.
A family affair
- Author:
- GINN June
- Journal article citation:
- Community Care, 10.4.97, 1997, pp.28-29.
- Publisher:
- Reed Business Information
Reports on how the parents of disabled children want a bigger say in how services are designed and developed to help them. The author describes a visit to a family resource centre, in the USA, which is staffed by the parents of disabled children.
'I value what you have to say'. seeking the perspective of children with a disability, not just their parents
- Authors:
- GARTH Belinda, ARONI Rosalie
- Journal article citation:
- Disability and Society, 18(5), August 2003, pp.561-576.
- Publisher:
- Taylor and Francis
The UN Convention on the Rights of the Child acknowledges the right for children to express opinions about issues affecting them and the right to have these views heard. There has been an increase in the number of international studies including children as informants in research, but there is noticeably less published research including children as informants in Australia if they have a disability. Rather, there has been a reliance on parents/carers for insight into their child's experiences. In this article the authors present the results of a qualitative pilot study where they interviewed parents and their children who have cerebral palsy about their perceptions and experiences of communication in the medical consultation. The authors found that the views of children and parents were different, further reiterating the need to seek the perceptions of children as well as their parents.
Special Education Needs Code of Practice
- Author:
- -
- Journal article citation:
- Childright, 184, March 2002, pp.11-13.
- Publisher:
- Children's Legal Centre
Summarises the main provisions of the new code which came into effect on 1 January 2002. It replaces the 1994 Code of Practice, and includes new rights and duties introduced by the Special Education Needs and Disability Act 2001.
Working with parents of SEN children after the Code of Practice
- Editor:
- WOLFENDALE Sheila
- Publisher:
- David Fulton
- Publication year:
- 1997
- Pagination:
- 148p.,tables,bibliogs.
- Place of publication:
- London
Looks at the Code of Practice on provision of education for children with special educational needs, a key element of which is effective cooperative working relationships with parents. Contains chapters on: delivering services for children with special needs - the place of parents; a review of the influence and effects of Portage; a parental perspective on partnership; implementing partnerships with parents in schools; a review of parent partnership schemes; promoting the effective practice of partnership; supporting parents at the Special Educational Needs Tribunal; and integrating services.
Supporting disabled adults in their parenting role
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2003
- Pagination:
- 4p.
- Place of publication:
- York
A Task Force on Supporting Disabled Adults in their Parenting Role received evidence that people with physical impairments, sensory impairments, learning difficulties, mental health difficulties, long-term illness or HIV/AIDS experience common barriers to receiving appropriate support in their parenting role. The Task Force consisted of representatives from government, social services, voluntary organisations and disabled parents' organisations. It took evidence from parents, professionals and researchers.
Parent-professional power relations: parent and professional perspectives
- Authors:
- SWAIN John, WALKER Caron
- Journal article citation:
- Disability and Society, 18(5), August 2003, pp.547-560.
- Publisher:
- Taylor and Francis
This paper reflects on a small-scale qualitative research study around the establishment of a conductive education centre in a city in the north of England. From the outset, the centre's existence presented a challenge to existing services because the monopoly control of existing professional practice and policy was under question. The research does not offer an evaluation of the effectiveness of conductive education. The task was to examine the centre's provision in relation to existing statutory services, and provide a forum for informed discussion relating to the provision and organisation of multi-professional services for disabled children. The paper suggests that, although there was a mutual tension between the centre and professionals, a number of pointers could become a starting point for a more equitable partnership between parents and existing service providers. The authors also argue, however, that such a notion of partnership is limited without the voices of disabled people.
Forging an alliance
- Author:
- DICKINS Mary
- Journal article citation:
- Coordinate, 67, September 1998, p.4.
- Publisher:
- National Early Years Network
The government has put a great emphasis on the importance of partnership with parents of disabled children in the early years and on the value of early diagnosis and intervention for children with special educational needs. The author explores the emotional and political context of partnership for families, and suggests that the relationship between parents and professionals can be even more positive if they are allies as well as partners.
Ambiguity and user involvement: issues arising in assessments for young people and their carers
- Author:
- DAY Peter R.
- Journal article citation:
- British Journal of Social Work, 24(5), October 1994, pp.577-596.
- Publisher:
- Oxford University Press
Reviews issues for service users and professional staff arising from contemporary community care policies emphasizing user involvement. Against the background of a key expression of these policies, the Disabled Persons' Act of 1986, methods of providing assessments involving young people with learning disabilities are analysed. Problems identified for further study included difficulties arising for young people due to lack of experience and immaturity, the low expectations of their parents or carers, problems arising from the culture of services and how assessments may be developed which provide seriously disabled users themselves with ways of expressing their wants and needs.