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Parental health and stress in families with a child who has multiple disabilities
- Authors:
- TRUESDALE Maria, McCONKEY Roy
- Journal article citation:
- Child Care in Practice, 7(2), June 2001, pp.141-152.
- Publisher:
- Taylor and Francis
The presence of a disabled child is known to increase family stress and parental ill-health. However, it is unclear the extent to which support services can alleviate this. In this study families using two short-break services - both residential and domiciliary - formed the study population. Measures were taken using standardised instruments of children's development and maladaptive behaviours, parental stress, parental health and the supports that the families received from services, professionals and relatives and friends. The findings reinforced the complexity of disentangling the relationships between family needs and service supports. They also suggest that existing presumptions about more services reducing family stress are too simplistic. It is argued that the meaning of support for families needs to be critically reviewed along with an examination of the coping strategies used by families. This should result in better matching of support services to individual family needs.
Children, poverty and disability
- Author:
- REITH Lorna
- Journal article citation:
- Poverty, 109, Summer 2001, pp.10-13.
- Publisher:
- Child Poverty Action Group
The Government has made an ambitious commitment to eradicating child poverty within a target of 20 years and has introduced a range of policy initiatives and increases in benefits. Asks whether these improvements will reach disabled children or children in families where a parent is long term sick or disabled, and looks at what the Government is doing to address their needs.
Some of the implications on caring for a child or adult with cerebral palsy
- Author:
- PIMM Paul L.
- Journal article citation:
- British Journal of Occupational Therapy, 59(7), July 1996, pp.335-341.
- Publisher:
- Sage
Many studies have suggested that the presence of a child or adult with a disability in a family can have a significant impact upon family members, in particular the primary caregiver. Research findings have indicated that there may be social isolation, lack of awareness of services, poor service delivery and psychiatric disorders among parents. This article, part of a larger research undertaking, presents some key survey findings from a study of mothers and fathers of children and adults with cerebral palsy. The parents evaluated the caring process and their satisfaction with the professionals involved in service delivery. The prevalence of psychiatric morbidity among the parents is also reported. The findings indicate that the mental well-being of many fathers and even more mothers was severely affected by the caring process. High levels of parental dissatisfaction with some professionals are reported.
Children with fragile X syndrome: a parents' guide
- Author:
- DIXON Webber Jayne
- Publisher:
- Woodbine House
- Publication year:
- 2000
- Pagination:
- 470p.,bibliog.
- Place of publication:
- Bethesda, MD
Guide for parents of children with fragile X syndrome, a genetic condition which can cause physical and learning disabilities. Describes the syndrome, then looks at topics including the emotions of parents; genetics and genetic counselling; health of children with the syndrome; daily care; family life; child development; education; legal issues; and advocacy.
Disabled in Britain: behind closed doors: the carers' experience
- Authors:
- LAMB Brian, LAYZELL Sarah
- Publisher:
- SCOPE
- Publication year:
- 1995
- Pagination:
- 58p.
- Place of publication:
- London
Presents findings from a study of the parents and carers of disabled people. Describes how carers feel about their lives, as well as describing the tasks they undertake. Includes sections on: everyday life; the effects of caring; parents and disabled children; information and support. Points to ways in which the problems facing carers can be overcome.
ASK information service for parents of children with special needs
- Editors:
- BRICKLEY Pat, CATCHPOLE Jane
- Publisher:
- ASK
- Publication year:
- 1994
- Pagination:
- 197p.
- Place of publication:
- Norwich
Handbook and directory of information for parents of children with special needs living in Norfolk. Includes sections on: health; under 5's; education; social services; social security; information and advice; holiday and travel; play and leisure; and voluntary organisations.
NCH Action for Children: factfile '94
- Author:
- NCH ACTION FOR CHILDREN
- Publisher:
- NCH Action for Children
- Publication year:
- 1994
- Pagination:
- 93p.
- Place of publication:
- London
Contains statistical and other information on: population characteristics; family costs, income and poverty; children, housing and homelessness; children and disability; education and health; children at risk; crime; and children in care.
Children in danger: NCH factfile
- Author:
- NATIONAL CHILDREN'S HOME
- Publisher:
- National Children's Home
- Publication year:
- 1991
- Pagination:
- 64p.,tables,illus.
- Place of publication:
- London
Contains statistical and other information on: population characteristics; family costs, income and poverty; children, housing and homelessness; children and disability; education and health; nutrition; abuse; addiction; crime; children in care; and children and parents.