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SCIE research briefing 18: being a father to a child with disabilities: issues and what helps
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Place of publication:
- London
SCIE research briefings summarise the knowledge base in a particular area and act as signpost to more in-depth material. The topic of this briefing is the fathers of children with disabilities, impairments or chronic illness. The children's disabilities include physical or sensory impairments, learning disability, and chronic conditions such as asthma, arthritis, diabetes and congenital heart disease. This briefing focuses on fathers' experiences of their child's disability and their resulting needs. The briefing is divided into sections: what does the research show; organisational knowledge; policy community knowledge; practitioner knowledge; research knowledge; user and carer knowledge; and useful links.
Parenting stress in mothers and fathers of a child with a hemiparesis: sources of stress, intervening factors and long-term expressions of stress
- Authors:
- BUTCHER P. R., WIND T., BOUMA A.
- Journal article citation:
- Child: Care, Health and Development, 34(4), July 2008, pp.530-541.
- Publisher:
- Wiley
A hemiparesis is a disorder in the control of muscle activity in one side of the body secondary to a non-progressive defect in the developing brain. In a substantial minority of children with a hemiparesis, motor impairments are accompanied by behavioural problems. This combination confronts parents with several persistent, frequently intense, sources of stress. At the same time, it is likely to reduce the effectiveness of psychosocial resources, such as feelings of competence, which would normally buffer the impact of the stressors. This study aimed to investigate the association between motor and behavioural problems in children with a hemiparesis and symptoms of stress in their parents, with particular attention to psychosocial factors which may mediate between the child's problems and parents' symptoms of stress. Questionnaires assessing the medical, functional and behaviour problems of the child, and the parents' experience of stress were completed by the mothers and fathers of 108 children with a hemiparesis who were members of the Association for the Motor Handicapped in the Netherlands. Both parents reported (extremely) high levels of long-term stress significantly more frequently than parents in a normative sample. Indices of long-term stress were associated with the child's behavioural problems and, less strongly, with dysfunctionality in daily life. However, behavioural problems and dysfunctionality also reduced parents' feelings of competence and social support. A mediation analysis showed that feelings of incompetence and social isolation mediated between the child's problems and the parents' symptoms of stress. Fathers and mothers did not differ in level of reported stress, or in the associations between the child's problems and degree of experienced stress. Findings suggests that one focus of intervention should be the alleviation of parenting stress with particular attention to increasing perceived competence in the parenting role and reducing feelings of social isolation.
The disabled child, the family and the professional
- Authors:
- POLLACK Gloria, STEWART June
- Publisher:
- Whiting and Birch
- Publication year:
- 1997
- Pagination:
- 106p.
- Place of publication:
- London
Designed to help professionals improve their understanding of the needs of parents with disabled children and to develop the counselling skills necessary in this field of work. Covers: basic counselling skills; the role of the professional; stages in the counselling process; problems with family relationships; work with fathers; work with siblings; helping with practical issues; and handling the end of the professional/user relationship.
Ordinary families, special children: a systems approach to childhood disability
- Authors:
- SELIGMAN Milton, DARLING Rosalyn Benjamin
- Publisher:
- Guilford Press
- Publication year:
- 1997
- Pagination:
- 335p.,bibliog.
- Place of publication:
- New York
Offers a multisystems perspective on childhood disability and its effects on family life. Integrates theory and research with personal accounts from family members in order to examine the many variables that shape a family's response to childhood disability and its ability to overcome the physical, cultural, and social barriers to a satisfactory lifestyle.
Who's fit to be a parent?
- Author:
- CAMPION Mukti Jain
- Publisher:
- Routledge
- Publication year:
- 1995
- Pagination:
- 319p.,bibliog.
- Place of publication:
- London
Looks at how society currently judges parents by looking at the professionals who assess parenting and by examining the charges made against so called 'unfit' groups. Challenges traditional views of how to assess parenting and examines the role of the media in guiding public opinion. Includes sections on: disabled parents; mentally handicapped parents; drug addicted mothers; gay parents; older mothers; single parents; lone fathers; and working mothers.
Growing up with a chronic disease: the impact on children and their families
- Author:
- EISER Christine
- Publisher:
- Jessica Kingsley
- Publication year:
- 1993
- Pagination:
- 255p.,bibliog.
- Place of publication:
- London
Looks at the effects of caring for a chronically sick or disabled child on parents, siblings and the extended family. Includes case studies.
Unshared care: parents and their disabled children
- Author:
- GLENDINNING Caroline
- Publisher:
- Routledge and Kegan Paul
- Publication year:
- 1983
- Pagination:
- 266p.
- Place of publication:
- London