Search results for ‘Subject term:"physical disabilities"’ Sort:
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It's time to accept help
- Author:
- -
- Journal article citation:
- Community Care, 2.3.06, 2006, pp.42-43.
- Publisher:
- Reed Business Information
A panel of practitioners give their opinions on the case of a young disabled women who is being looked after at home by her elderly parents. The case highlights the importance of providing support to carers.
Combining work and care: working parents of disabled children
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1998
- Pagination:
- 4p.
- Place of publication:
- York
The pressures and challenges associated with the care of disabled children are well documented but little is known about how these parents combine paid work with caring. Summarises a study which analysed detailed accounts of parents from 40 families who are combining employment with care of disabled children.
The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers
- Authors:
- DAVIS E., et al
- Journal article citation:
- Child: Care, Health and Development, 36(1), January 2010, pp.63-73.
- Publisher:
- Wiley
Although caring for a child with cerebral palsy (CP) can impact on the caregivers’ quality of life (QOL) this has yet to be adequately examined. The aims of this study were to explore the QOL of mothers and fathers of children with CP aged 3–18 years, and examine whether the impact of caring for a child with CP changes from childhood to adolescence. A qualitative study was conducted utilising a grounded theory framework. 24 mothers and 13 fathers of children and adolescents with CP and with varying levels of impairment participated in semi-structured interviews about their QOL. The transcripts were analysed to identify issues affecting parental QOL. Results revealed there were no differences in parental QOL among subgroups - mothers and fathers, age groups, GMFCS levels. Parental QOL ranged across a wide spectrum. Caring for a child with CP affects a parent's physical well-being, social well-being, freedom and independence, family well-being and financial stability. Parents indicated that they often feel unsupported by the services they access. The authors conclude that caring for a child with CP can both positively and negatively impact on a parent's life. If parental concerns and determinants of QOL are considered in overall programme planning and service delivery for children and their families, both parents and children benefit.
Parents of children with chronic disabilities: the gratification of caregiving
- Author:
- SCHWARTZ Chaya
- Journal article citation:
- Families in Society, 84(4), October 2003, pp.576-584.
- Publisher:
- The Alliance for Children and Families
A sample of 167 parents of children with a mental illness or physical disability from Israel participated in this study. Parents reported receiving gratification from fulfilling their parental duties and from learning about themselves. The child's and parent's personal characteristics were significant predictors of gratification. Physical disability and younger age of the child were associated with higher level of gratification, as were the younger age of the parent, unemployment, and parental poor health. When parents perceived caregiving as causing less emotional strain (low subjective burden), they were more likely to express gratification. The amount of assistance that the parent gave the child (objective burden) did not have a unique contribution to parental gratification.
Voice of experience
- Author:
- THOMPSON Audrey
- Journal article citation:
- Community Care, 27.7.00, 2000, p.16.
- Publisher:
- Reed Business Information
The author talks to Francine Bates, Contact a Family's new chief executive, about why supporting families is vital.
Disability rights and the denial of young carers
- Authors:
- ALDRIDGE Jo, BECKER Saul
- Journal article citation:
- Critical Social Policy, 16(3), August 1996, pp.55-76.
- Publisher:
- Sage
Research, debate and policy on young carers has been welcomed by the carers movement and children's rights practitioners alike, but challenged by some disability rights authors who suggest defining the children of disabled parents as 'young carers' serves to undermine both the rights of disabled people and the rights of children. Here the authors respond to the disability rights critique on behalf of academics working in the field of young carers, policy-makers and practitioners and, more importantly, on behalf of children who care.
Young carers: challenging the facts and politics of research into children and caring
- Author:
- OLSEN Richard
- Journal article citation:
- Disability and Society, 11(1), March 1996, pp.41-54.
- Publisher:
- Taylor and Francis
Argues that our knowledge of what young carers do and how they differ from other children, is extremely limited. Without this information, practice recommendations will be base on guesswork and prejudice. Argues that the existing literature pays lip service to the support, or lack of it, that disabled people need to empower them as parents. Also reviews research into the relationship between disability and parenting. Research has tended to involve the search for the negative impact of an adult's disability on a child's growth, intelligence and adjustment. This has therefore told us little about how parental disability affects the domestic and caring tasks of children. Sees that there is a conceptual hole in the middle of our existing awareness about caring and childhood, with which future research must attempt to grapple.
Campaign: cut out and collect
- Author:
- -
- Journal article citation:
- Community Care, 14.9.95, 1995, pp.21-23.
- Publisher:
- Reed Business Information
The fourth of the cut and collect sections looks at the children of disabled parents - should they be labelled automatically as 'young carers'?.
Easy targets: a disability rights perspective on the 'children as carers' debate
- Authors:
- MORRIS Jenny, KEITH Lois
- Journal article citation:
- Critical Social Policy, 44/45, Autumn 1995, pp.36-57.
- Publisher:
- Sage
Looks at how the children of disabled parents are being defined as 'young carers', arguing that the way in which this is happening undermines both the rights of children and the rights of disabled people. Analysis of the social construction of 'children as carers' illustrate that researchers and pressure groups are colluding with the government's insistence that 'care in the community' must mean 'care by the community'.
The price of caring
- Authors:
- BECKER Saul, ALDRIDGE Jo
- Journal article citation:
- Community Care, 20.1.94, 1994, pp.18-19.
- Publisher:
- Reed Business Information
Through talking to long-term sick and disabled people the authors found out how much the parents depended on their children for their physical and, in many respects, psychological well-being. The research also showed a complex matrix of relationships within the family and between the family and professionals. What was clear is that child carers were neglected both from within the family and from outside. Suggests how professionals must address this issue.