Search results for ‘Subject term:"physical disabilities"’ Sort:
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Disability rights and the denial of young carers
- Authors:
- ALDRIDGE Jo, BECKER Saul
- Journal article citation:
- Critical Social Policy, 16(3), August 1996, pp.55-76.
- Publisher:
- Sage
Research, debate and policy on young carers has been welcomed by the carers movement and children's rights practitioners alike, but challenged by some disability rights authors who suggest defining the children of disabled parents as 'young carers' serves to undermine both the rights of disabled people and the rights of children. Here the authors respond to the disability rights critique on behalf of academics working in the field of young carers, policy-makers and practitioners and, more importantly, on behalf of children who care.
Young carers: challenging the facts and politics of research into children and caring
- Author:
- OLSEN Richard
- Journal article citation:
- Disability and Society, 11(1), March 1996, pp.41-54.
- Publisher:
- Taylor and Francis
Argues that our knowledge of what young carers do and how they differ from other children, is extremely limited. Without this information, practice recommendations will be base on guesswork and prejudice. Argues that the existing literature pays lip service to the support, or lack of it, that disabled people need to empower them as parents. Also reviews research into the relationship between disability and parenting. Research has tended to involve the search for the negative impact of an adult's disability on a child's growth, intelligence and adjustment. This has therefore told us little about how parental disability affects the domestic and caring tasks of children. Sees that there is a conceptual hole in the middle of our existing awareness about caring and childhood, with which future research must attempt to grapple.
Friendly faces
- Author:
- WHITE Caroline
- Journal article citation:
- Community Care, 29.2.96, 1996, p.28.
- Publisher:
- Reed Business Information
The lack of support for parents coming to terms with a disabled child is being redressed by a group of mothers and fathers. They have set up a new service, with help from Scope and MENCAP, called Face to Face and operate all over the south east of England.
The impact of major events in the lives of family caregivers of children with disabilities
- Authors:
- MCDONALD Thomas P., COUCHONNAL Graciela, EARLY Theresa
- Journal article citation:
- Families in Society, 77(8), October 1996, pp.502-514.
- Publisher:
- The Alliance for Children and Families
Examines the family caregiving experience among families with children with severe emotional disabilities from a perspective that recognises the importance of the family's views and feeling. This viewpoint anticipates the occurrence of both positive and negative experiences and seeks to illuminate the caregiving process from the outcomes achieved. Family caregivers of children with severe emotional disorders were asked to identify major pleasant and stressful events that had occurred in the past 12 months. The impact of these events was examined with respect to caregivers' perceived well-being: overall stress, the ability to fulfil responsibilities, and pleasure experienced in various life domains. Implications of the study findings for supporting family caregivers in their roles are discussed.
Scope for change
- Author:
- COHEN Phil
- Journal article citation:
- Community Care, 24.10.96, 1996, p.23.
- Publisher:
- Reed Business Information
Reports on parent power, as parents of service users set up their own voluntary group to manage services previously run by Kent social services
Some of the implications on caring for a child or adult with cerebral palsy
- Author:
- PIMM Paul L.
- Journal article citation:
- British Journal of Occupational Therapy, 59(7), July 1996, pp.335-341.
- Publisher:
- Sage
Many studies have suggested that the presence of a child or adult with a disability in a family can have a significant impact upon family members, in particular the primary caregiver. Research findings have indicated that there may be social isolation, lack of awareness of services, poor service delivery and psychiatric disorders among parents. This article, part of a larger research undertaking, presents some key survey findings from a study of mothers and fathers of children and adults with cerebral palsy. The parents evaluated the caring process and their satisfaction with the professionals involved in service delivery. The prevalence of psychiatric morbidity among the parents is also reported. The findings indicate that the mental well-being of many fathers and even more mothers was severely affected by the caring process. High levels of parental dissatisfaction with some professionals are reported.
Together we can plan my future: the needs of school leavers with a visual impairment and additional disabilities
- Author:
- SeeABILITY
- Publisher:
- SeeABILITY
- Publication year:
- 1996
- Pagination:
- 79p.,bibliog.
- Place of publication:
- Leatherhead
Report focusing on the needs of young people with a visual impairment who also have additional disabilities and who are about to leave school in the West Country. Includes sections on: a profile of the West of England; the young people's disabilities; their future needs; the needs of parents; and summary of key findings.
'Just when you think you got it all sorted...': parental dilemmas in relation to the developing sexuality of young profoundly disabled people
- Authors:
- SWAIN John, THIRLAWAY Carole
- Journal article citation:
- British Journal of Learning Disabilities, 24(2), 1996, pp.58-64.
- Publisher:
- Wiley
Sexuality is a neglected topic in the literature focusing on young profoundly disabled people. For parents and formal carers who work with parents and young people themselves, however, sexual development and identity pose fraught and complex challenges in understanding and addressing young people's needs. This paper is based on qualitative research which explored parents' experiences, feelings and understandings and the responses of formal carers to parents' perspectives. The parents faced contradictory pressures to deny and not to deny sexuality. Formal carers drew on beliefs about 'good parenting' in reactions to the position of parents. Both groups confronted real dilemmas with young people who are incapable, and may never be capable, of informed consent of self-determination in sexual relationships.
Coping with the care of a severely disabled child
- Author:
- BERESFORD Bryony
- Journal article citation:
- Health and Social Care in the Community, 4(1), January 1996, pp.30-40.
- Publisher:
- Wiley
The unrelenting, and often overwhelming, stresses experienced by parents caring for a disabled child have been well charted, as have their impact on personal and family well-being. This paper reports on a study which took such research a step further by focusing on the ways parents cope with the stresses and strains of care. Reports on the way in which the negative aspects of caring for a disabled child were balanced by two positive factors: the parent-child relationship and the ways parents coped with the problems they encountered and the emotional distress they felt. Discusses parents different coping strategies and the role of services in supporting parents in the ways they chose to cope.
Working with families of children with special needs: partnership and practice
- Author:
- DALE Naomi
- Publisher:
- Routledge
- Publication year:
- 1996
- Pagination:
- 346p.,bibliog.
- Place of publication:
- London
Draws on case studies and other material to consider important issues in working with families of children with special needs such as: delivering diagnoses; assessment of family needs; negotiating partnerships in child assessment and remediation; and interprofessional communication. Also gives a wide systems analysis of the British situation, highlighting the impact of recent legislation and changes in the structure and process of the professional team and organisation. Makes links between theory, research and practice to provide useful ideas and methods for engaging in partnerships with parents and family members. Includes exercises at the end of each chapter.