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Working partnerships? A critique of the process of multi-agency working in services to disabled children with complex health care needs
- Authors:
- TOWNSLEY Ruth, WATSON Debby, ABBOTT David
- Journal article citation:
- Journal of Integrated Care, 12(2), April 2004, pp.24-34.
- Publisher:
- Emerald
Recent government policies in relation to children stress the importance of service integration and partnership working, with particular emphasis on combating social exclusion. With reference to findings from a three year empirical study, this article examines some key elements of the process of multi-agency working in services for disabled children with complex health care needs. Highlights some of the barriers to effective partnerships and lists some pointers for policy and practice.
Mind and body together
- Author:
- MORRIS Jenny
- Journal article citation:
- Community Care, 30.09.04, 2004, pp.38-39.
- Publisher:
- Reed Business Information
Reports on the findings of a research which looked at the support needs of people with physical impairments who also have mental health and their experiences of both types of services. The study was carried out by Jenny Morris in partnership with Mind for the Joseph Rowntree Foundation. The research found that people experienced significant barriers to getting their needs met and that there was little communication between mental health and physical disability services. Individual workers could make a difference, but they were struggling against barriers themselves.
Disability, social exclusion and the consequential experience of justiciable problems
- Authors:
- O'GRADY A., et al
- Journal article citation:
- Disability and Society, 19(3), May 2004, pp.259-271.
- Publisher:
- Taylor and Francis
In this article, the authors examine the situation of disabled people in England and Wales with regard to one specific aspect of social exclusion--experience of justiciable problems, and the potential effects such problems can have on their lives. Having defined 'disability', they examine how this fits within the wider dialogue on social exclusion issues. By analysing the results of the Legal Services Research Centre's (LSRC) periodic survey of justiciable problems, they find that disabled respondents were not only more likely to experience a problem, but also experienced more problems. Increased likelihood of a problem was observed in the majority of problem categories and particularly those relating to issues of social exclusion, such as housing and welfare benefits. This propensity to experience multiple problems can lead to a negative impact on the lives of long-term ill and disabled people.
Making a difference
- Author:
- GEORGE Mike
- Journal article citation:
- Care and Health Magazine, 55, 2004, pp.16-18.
- Publisher:
- Care and Health
Reports on new research from the Norah Fry Centre, 'Making a difference', which highlights the key role of multi-agency working in addressing the complex healthcare needs of disabled children. In the study a total of 115 professionals, 25 families, and 18 children or young people were interviewed.
National service framework for children, young people and maternity services: disabled children and young people and those with complex health needs
- Authors:
- GREAT BRITAIN. Department of Health, GREAT BRITAIN. Department for Education and Skills
- Publisher:
- Great Britain. Department of Health
- Publication year:
- 2004
- Pagination:
- 44p.
- Place of publication:
- London
This standard relates to children and young people who are disabled and/or those with complex health needs, including children and young people with learning disabilities, autistic spectrum disorders, sensory impairments, physical impairments and emotional/behavioural disorders. Many disabled children have no need for ongoing health interventions; others require ongoing treatment and/or nursing care and help with the everyday activities. Some disabled children will also be children in special circumstances. Children and young people who are disabled or who have complex health needs receive co-ordinated, high-quality child and family-centred services which are based on assessed needs, which promote social inclusion and, where possible, which enable them and their families to live ordinary lives.
Services for people with physical impairments and mental health support needs
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2004
- Pagination:
- 4p.
- Place of publication:
- York
People with physical impairments who also have mental health support needs have tended to be overlooked by both policy-makers and those commissioning services. The majority of respondents said they had difficulty accessing mental health services because of their physical impairments. The majority also had difficulty using physical disability services because of inadequate recognition of mental health needs and negative attitudes amongst staff towards mental health issues. In-patient experiences were often characterised by inaccessible physical environments and a lack of assistance for even simple things. There was a lack of understanding of the assistance that people needed, and staff were often too busy to provide it. Medication required for a physical condition was commonly withdrawn on admission to a psychiatric ward and was not always available when needed. This caused considerable distress, particularly when the medication was required for the control of pain. Community mental health services were appreciated when needs relating to physical impairment as well as mental health were addressed. However, this was unusual. Staff were often unfamiliar with needs relating to physical impairment and this could be associated with unhelpful attitudes. There was commonly poor or no communication between mental health and physical disability services. Many respondents found that services accessed because of physical impairment ignored mental health issues; some staff had negative reactions to such needs. Medication given for mental health needs often had an impact on physical impairment, but most people said they had not been warned about these potential effects. 'Talking treatments' received the highest rating of any service, but it was often difficult to find an accessible and, within the private sector, affordable therapist or counsellor. When people were asked what they wanted from mental health and physical disability services, they said they wanted to be seen as "a whole person", with attention paid to both mental health needs and those relating to physical impairment. They wanted services and professionals to communicate and work together, and easy access to flexible services which could address individual needs. Above all, they wanted to be listened to and treated with respect.