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Occupational disruption: living with motor neurone disease
- Authors:
- BROTT Tamzin, HOCKING Clare, PADDY Ann
- Journal article citation:
- British Journal of Occupational Therapy, 70(1), January 2007, pp.24-31.
- Publisher:
- Sage
In this study, which was informed by phenomenology, seven people living in an urban setting in New Zealand were asked to describe their experiences of living with motor neurone disease. This article focuses on the findings that related specifically to disruption to occupation. It describes how early changes in occupational performance alerted the participants to the fact that something was wrong. The findings also showed the pervasive impact of an awkward and unreliable body on participation in occupations that gave meaning to life, expressed identity and filled time. Issues of how the family's world was changed, the introduction of assistive devices into their homes and the betrayal of trust were also powerfully evident in participants' stories. Although the findings are broadly consistent with those of previous studies, the disruption to occupation and the consequent role losses are new findings. Further research into the impact of the loss of participation in occupation, the ways in which people are perceived when occupations are disrupted and the experience of having occupations taken away prematurely is recommended.
What are the care needs for people with motor neurone disease and how can occupational therapists respond to meet these needs?
- Author:
- FOLEY Geraldine
- Journal article citation:
- British Journal of Occupational Therapy, 70(1), January 2007, pp.32-34.
- Publisher:
- Sage
Motor neurone disease is a fatal neurodegenerative disorder and from disease onset health care intervention is palliative in nature. Numerous studies on wellbeing in motor neurone disease are consistent with the palliative care literature, where the values assigned to non-physical life domains increase with disease progression. Occupational therapists should consider all components of wellbeing for people with motor neurone disease and not physical disability alone. It is argued that a better understanding of motor neurone disease and an awareness of the service needs important to this client group are necessary to improve the quality of care and to assist occupational therapists in meeting care needs.