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CASP-19 special section: how does chronic disease status affect CASP quality of life at older ages? examining the WHO ICF disability domains as mediators of this relationship
- Authors:
- SEXTON E., et al
- Journal article citation:
- Aging and Mental Health, 19(7), 2015, pp.622-633.
- Publisher:
- Taylor and Francis
Objectives: The effect of chronic disease status on quality of life (QoL) has been well established. However, less is known about how chronic diseases affect QoL. This article examines impairment in three domains of the WHO International Classification of Functioning, Health and Disability (ICF) – body function, activity and participation, as well as affective well-being, – as potential mediators of the relationship between chronic disease and QoL. Method: A cross-sectional sample (n = 4961) of the general Irish community-dwelling population aged 50+ years was obtained from the Irish Longitudinal Study of Ageing (TILDA). The CASP measure of QoL was examined as two dimensions – control/autonomy and self-realisation/pleasure. Structural equation modelling was used to test the direct and indirect effects of chronic disease on QoL, via variables capturing body function, activity, participation and positive affect. Results: A factor analysis showed that indicators of body function and activity loaded onto a single overall physical impairment factor. This physical impairment factor fully mediated the effect of chronic disease on positive affect and QoL. The total effect of chronic disease on control/autonomy (−0.160) was primarily composed of an indirect effect via physical impairment (−0.86), and via physical impairment and positive affect (−0.45). The decomposition of effects on self-realisation/pleasure was similar, although the direct effect of physical impairment was weaker. The model fitted the data well (RMSEA = 0.02, TLI = 0.96, CFI = 0.96). Conclusion: Chronic disease affects QoL through increased deficits in physical body function and activity. This overall physical impairment affects QoL both directly and indirectly via reduced positive affect. (Publisher abstract)
Quality of life for children and adolescents with developmental disabilities: review of conceptual and methodological issues relevant to public policy
- Authors:
- ZEKOVIC Buga, RENWICK Rebecca
- Journal article citation:
- Disability and Society, 18(1), January 2003, pp.19-34.
- Publisher:
- Taylor and Francis
The construct of quality of life has great potential for guiding development and evaluation of policies for children with developmental disabilities. However, there are many different definitions and models of quality of life, and not all of them are equally appropriate for developing policies that would meaningfully address the needs of children with develop mental disabilities. Accordingly, the purpose of this article is to review major approaches to quality of life and discuss three models specific to children with respect to their relevance to public policy for children with developmental disabilities. Review of these models includes a discussion of quality of life definitions and conceptual issues, as well as analysis of major measurement characteristics of the instrument(s) associated with each model. Potential of each model for guiding development and evaluation of policy is also considered.
Quality of life and quality of services relationships: experiences of people with disabilities
- Authors:
- MARQUIS Ruth, JACKSON Robert
- Journal article citation:
- Disability and Society, 15(3), May 2000, pp.411-425.
- Publisher:
- Taylor and Francis
'Quality of life' experiences for people with disabilities who are highly dependent on services that are delivered in home-based environments are strongly influenced by the nature of their interactions with service workers. This paper discusses findings of a study involving 14 agencies in Western Australia, which provide living environment services for young people with disabilities and older adults, to gain insight into service users' daily experiences and their perceptions of quality in receiving services.
Keeping consumers at the centre of planning
- Authors:
- BRANDON David, HAWKES Annie
- Journal article citation:
- Care Plan, 6(1), September 1999, pp.8-14.
- Publisher:
- Positive Publications/ Anglia Polytechnic University, Faculty of Health and Social Work
The authors suggest that assessment and care planning needs a system which can be understood by services users as well as by professionals. They show how the 'four magnets' - control, skills, pain and contact - can be unifying and holistic.
Quality of life for persons with disabilities: international perspectives and issues
- Editor:
- GOODE David
- Publisher:
- Brookline Books
- Publication year:
- 1994
- Pagination:
- 218p.,bibliog.
- Place of publication:
- Cambridge, MA
Comparative study of the quality of life of people with learning difficulties. Includes papers on: quality of life in the Danish context; a six year study of a quality of life model; Australian legislation, service delivery and quality of life; overview of theory and practice in Germany; quality of life and unemployment among people with disabilities in Hungary; the National Quality of Life for Persons with Disabilities Project in the USA; the California quality of life project; towards an understanding of quality of life in people with profound intellectual and multiple disabilities; quality of life and ageing; quality of life at school; training staff in quality of life issues; and the concept of quality of life and its current applications in the field of developmental disabilities.