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Exploring occupational adaptation through the lives of women with multiple sclerosis
- Authors:
- CAHILL Mairead, CONNOLLY Deirdre, STAPLETON Tadhg
- Journal article citation:
- British Journal of Occupational Therapy, 73(3), March 2010, pp.106-115.
- Publisher:
- Sage
Multiple sclerosis (MS) affects people's physical capabilities and the lives of people with MS are constantly changing (Finlayson et al 2005), yet how people adapt to the disease from an occupational perspective has received little attention. This study explored the occupational adaptation of women with MS. Seven women with MS were recruited from the Multiple Sclerosis Society of Ireland. Each participant completed the Modified Interest Checklist (Kielhofner and Neville 1983), the Role Checklist (Oakley et al 1985) and the Occupational Questionnaire (Smith et al 1986). Qualitative data were also collected, using the Occupational Performance History Interview - II (Kielhofner et al 2004). Three main themes emerged: the impact of MS on (i) performance capacity, (ii) roles and (iii) interests. The participants adapted by performing interests and roles differently and developing new meaningful interests and roles that were congruent with their performance capacity. The findings highlight the importance of having an understanding of the impact of different types of MS on the occupational adaptation process. A greater understanding will facilitate occupational therapists in enabling people with MS to adapt to their condition by engaging in meaningful occupations throughout the lifespan.
Jointly funded care package
- Author:
- EVERINGTON Shanta
- Journal article citation:
- Disability, Pregnancy and Parenthood International, 68, Spring 2010, pp.6-7.
- Publisher:
- National Centre for Disabled Parents
Charlotte Foulkes, a single parent with arthritis living in London, talks about her experience of social services needs assessments from both adult, and children and families teams. As a disabled parent with a one-year old daughter she has been assessed by both these teams but with mixed results. She describes the consultation process, the delays, the stress, manner and accuracy of some assessments and the way in which she was bounced between services. After being turned down for support by adult services, she contacted Disabled Parents Network and complained. Eventually, the adult team got the children and families team involved which provided a much better experience of assessment with the outcome of a jointly funded direct payment package. Charlotte’s advice to other disabled parents seeking support from social services is not to be afraid of making a complaint; in her case she believes it was the only way that things moved forward.
Employment change and the role of the medical home for married and single-mother families with children with special health care needs
- Authors:
- DERIGNE Leaanne, PORTERFIELD Shirley
- Journal article citation:
- Social Science and Medicine, 70(4), February 2010, pp.631-641.
- Publisher:
- Elsevier
The authors hypothesised that whether or not a child with special health care needs usual source of care meets the criteria for a “medical home” influences parents’ employment decisions. This study included 38,569 children with special health care needs from birth to age 17 surveyed in the 2005-2006 US National Survey of Children with Special Health Care Needs. The employment model is estimated using multinomial logistic regression with the choice of a parent to maintain current employment, reduce hours, or stop working as the dependent variable. Independent variables were those characterising the needs of the child, the resources of the family, and the socio-demographic characteristics of the family. Components of the medical home variable included: having a usual source of care; family centred care; care coordination services; and receipt of needed referrals. Half of the children met criteria in all four facets. The relative risk of a parent choosing to cut their hours rather than maintain them decreased by 51% if the child had a medical home. The relative risk of choosing to stop work rather than not change decreased by about 64%. Care coordination services in particular reduced the odds of changing employment status. The authors conclude that the medical home is a moderating factor in parental decisions concerning change in employment status.
Report of the task and finish group on care pathways for long term neurological conditions
- Author:
- WALES. Welsh Assembly Government. Task and Finish Group on Care Pathways for Long Term Neurological Conditions
- Publisher:
- Wales. Welsh Assembly Government
- Publication year:
- 2010
- Pagination:
- 11p.
- Place of publication:
- Cardiff
This report by the Welsh Neuroscience Expert Group Care Pathways sub-group outlines a process for the development of care pathways to support children, young people and adults with long term neurological conditions. The aim of these pathways is to help people with long term neurological conditions manage their condition, maintain independence and achieve the best possible quality of life through an integrated process of education, information sharing, assessment, care planning and service delivery. It is suggested that this would be as delineated in the National Service Framework for Long Term Conditions for England. Areas addressed are: early recognition, diagnosis and treatment; acute care; early specialist rehabilitation; community and longer term rehabilitation; transitions; vocational and educational rehabilitation; equipment and accommodation; personal care and support for the sufferer, their families and carers; palliative care, care within hospital and other health or social care settings; quality assurance, audit and development.
Telecare and physical disability: using telecare effectively in the support of people with severe physical disabilities and long-term chronic conditions
- Editors:
- KERR Brian, et al, (eds.)
- Publisher:
- University of Stirling. Dementia Services Development Centre; Joint Improvement Team
- Publication year:
- 2010
- Pagination:
- 40p.
- Place of publication:
- Stirling
This booklet provides practical guidance on how telecare can contribute to improved outcomes and enhance the support, protection, and quality of life of people with complex physical disabilities and disabling long-term conditions. It also considers the importance of telecare in providing support and reassurance to carers. Sections in the booklet include: definitions of telecare and related concepts; the importance of good needs and risk assessment if telecare is to help meet those needs and manage risk; ethical dilemmas and how they can be resolved; how telecare can form part of a package of care and support, and issue particular to carers. Illustrative case studies are include throughout. Suggested content and a timetable for a one-day training programme are included to help trainers design both awareness raising and skill-development programmes. Examples of equipment which might contribute to the safety and quality of life of the telecare user are featured. A reference list and additional resources are included at the end of the book. This is one of four publications funded by the Scottish Government’s National Telecare Development Programme. The books are primarily aimed at assessors, care and support staff and their managers, telecare service managers and development staff.
Valuing older people: positive psychological practice
- Author:
- STIRLING Elspeth
- Publisher:
- Wiley-Blackwell
- Publication year:
- 2010
- Pagination:
- 213p., bibliog.
- Place of publication:
- Chichester
A global guide to positive psychological practice when dealing with older and very old people. The author, previously a clinical psychologist, champions social role valorisation (SRV) in relation to older people and ageing. SRV theory is based on opposing society’s tendency to devalue particular groups of people because they are ‘different. The author applies it, not only to counteract stereotyped attitudes that older people are valueless, but to promote beneficial effects of having our elders active in society and observing and learning from, for example, their coping behaviour. Chapters cover: the psychology and ecology of ageing; preventive psychology in later life; assessment in the new paradigm; new paradigm principles for intervention; older people and cognitive disabilities; new paradigm principles of service design; and psychological therapies with older people.