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SCIE research briefing 4: transition of young people with physical disabilities or chronic illnesses from children's to adults' services
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Place of publication:
- London
- Edition:
- Rev. ed.
A web-based briefing providing a concise summary of the current knowledge base on transition of young people with physical disabilities or chronic illnesses from children's to adults' services. Coverage includes ethical considerations, views of service users and carers, innovative practice examples and implications for practice. Also highlights additional contacts and resources. The briefing was commissioned by the Social Care Institute for Excellence (SCIE). The latest edition of this Briefing was produced in April 2005 and the next updated is due in April 2006.
The legal relevance of resources - or a lack of resources - in community
- Author:
- SCHWEHR Belinda
- Journal article citation:
- Journal of Social Welfare and Family Law, 17(2), 1995, pp.179-198.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
Considers the likely approach of the courts to community care litigation in which the availability of resources in an issue. It explores the way in which the forum chosen for the dispute - private or public law - might inform this approach, and examines existing case law from the general welfare law field which has largely skirted around the issue of rationing and resource allocation. Article focuses on the difference between duty and discretion, particularly in the context of the Chronically Sick and Disabled Persons Act 1970, and the potential significance of the distinction, so far as an authority's lack of resources is concerned. The writer concludes, first, that a shortage of resources is a factor which is lawful to take into account in the exercise of most welfare functions under this Act and other statutory duty in this field. Most controversially, perhaps, it is contended that s.2 of the 1970 Act does not give rise to an automatic, nor an absolute, duty to meet needs within the Act, even after a local authority has accepted that an individual for whom it is responsible has needs coming within the authority's definition of what constitutes 'need'.
Jointly funded care package
- Author:
- EVERINGTON Shanta
- Journal article citation:
- Disability, Pregnancy and Parenthood International, 68, Spring 2010, pp.6-7.
- Publisher:
- National Centre for Disabled Parents
Charlotte Foulkes, a single parent with arthritis living in London, talks about her experience of social services needs assessments from both adult, and children and families teams. As a disabled parent with a one-year old daughter she has been assessed by both these teams but with mixed results. She describes the consultation process, the delays, the stress, manner and accuracy of some assessments and the way in which she was bounced between services. After being turned down for support by adult services, she contacted Disabled Parents Network and complained. Eventually, the adult team got the children and families team involved which provided a much better experience of assessment with the outcome of a jointly funded direct payment package. Charlotte’s advice to other disabled parents seeking support from social services is not to be afraid of making a complaint; in her case she believes it was the only way that things moved forward.
Quality services for disabled children
- Author:
- SOCIAL POLICY RESEARCH UNIT
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2002
- Pagination:
- 4p.
- Place of publication:
- York
Summaries findings of a study exploring the concept of quality in services as defined by disabled or chronically sick children and young people and their families. The project, Sharing Value, was funded by the Community Fund and carried out in partnership with the Family Fund Trust and Barnardo's. Quality in services was discussed in four groups of parents (21 parents in total) and three groups of disabled children (27 children in total) over a series of meetings. The groups then drew up key quality service indicators. A database of quality services was one of the outcomes of the project.
Ethnicity, disability and chronic illness
- Editor:
- AHMAD Waqar I. U.
- Publisher:
- Open University Press
- Publication year:
- 2000
- Pagination:
- 154p.,bibliog.
- Place of publication:
- Buckingham
Brings together work on ethnicity, disability, chronic illness and caring. Examines the conceptualisation of disability or chronic illness and the implications of particular definitions; looks at everyday living with a disability or chronic ill health; and examines the role of services in providing support to disabled people and carers. Highlights the continued problems experienced by minority ethnic disabled and chronically ill people and their families.
Services for young people with chronic disorders in their transition from childhood to adult life
- Editors:
- KURTZ Zarrina, HOPKINS Anthony
- Publisher:
- Royal College of Physicians
- Publication year:
- 1996
- Pagination:
- 179p.,bibliogs.
- Place of publication:
- London
Looks at what happens to young people with chronic illness or disability as they make the transition from paediatric to adult services. Uses as examples conditions such as cystic fibrosis, epilepsy and diabetes. The need for multidisciplinary involvement is stressed as is the need to base actions on the wishes and the special needs of the young person. Includes guidelines for good practice in the transfer between services.
Report of the task and finish group on care pathways for long term neurological conditions
- Author:
- WALES. Welsh Assembly Government. Task and Finish Group on Care Pathways for Long Term Neurological Conditions
- Publisher:
- Wales. Welsh Assembly Government
- Publication year:
- 2010
- Pagination:
- 11p.
- Place of publication:
- Cardiff
This report by the Welsh Neuroscience Expert Group Care Pathways sub-group outlines a process for the development of care pathways to support children, young people and adults with long term neurological conditions. The aim of these pathways is to help people with long term neurological conditions manage their condition, maintain independence and achieve the best possible quality of life through an integrated process of education, information sharing, assessment, care planning and service delivery. It is suggested that this would be as delineated in the National Service Framework for Long Term Conditions for England. Areas addressed are: early recognition, diagnosis and treatment; acute care; early specialist rehabilitation; community and longer term rehabilitation; transitions; vocational and educational rehabilitation; equipment and accommodation; personal care and support for the sufferer, their families and carers; palliative care, care within hospital and other health or social care settings; quality assurance, audit and development.
Working on the boundaries of community care
- Author:
- ROBINSON Janice
- Journal article citation:
- King's Fund News, 21(3), Autumn 1998, p.2.
- Publisher:
- King's Fund
People with chronic illness and long-term disability need integrated care and support to enable them to live an independent life in the community. The author highlights a programme they are working on.
Community care law update
- Author:
- COLLINS Simon
- Journal article citation:
- SCOLAG Journal, 233, April 1996, pp.59-62.
- Publisher:
- ScoLAG(Scottish Legal Action Group)
Community care is a new and rapidly expanding area of law. The author, examines some important recent developments by using recent case examples covering the assessment of need; assessment of special educational needs; closure of local authority residential homes; homelessness and community care; and contracting out care services.
Treating the changing family: handling normative and unusual events
- Editor:
- HARWAY Michele
- Publisher:
- Wiley
- Publication year:
- 1996
- Pagination:
- 384p.,bibliogs.
- Place of publication:
- London
Looks at contemporary family life and the stresses and problems that changing social and family structures impose. Includes sections on: non-traditional family constellations (including gay and lesbian families); challenges to the family life cycle (including ageing problems and families with adopted children);and the impact of unusual life events on families (including mental health problems, domestic violence, the problems of living in urban areas, HIV, and addictions). Concludes with a section on the role of the clinician. Aimed at family therapists, counsellors, psychologists, social workers and mental health professionals.