Search results for ‘Subject term:"physical disabilities"’ Sort:
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The price of caring
- Authors:
- BECKER Saul, ALDRIDGE Jo
- Journal article citation:
- Community Care, 20.1.94, 1994, pp.18-19.
- Publisher:
- Reed Business Information
Through talking to long-term sick and disabled people the authors found out how much the parents depended on their children for their physical and, in many respects, psychological well-being. The research also showed a complex matrix of relationships within the family and between the family and professionals. What was clear is that child carers were neglected both from within the family and from outside. Suggests how professionals must address this issue.
Counselling parents of children with chronic illness or disability
- Author:
- DAVIS Hilton
- Publisher:
- British Psychological Society
- Publication year:
- 1993
- Pagination:
- 144p.,bibliog.
- Place of publication:
- Leicester
Aims to help medical staff, other professionals, and carers relate to parents in ways that facilitate their adaptation to their child's illness, via establishing partnerships with parents, exploring with them difficulties encountered in all aspects of their lives, setting goals, establishing problem-solving strategies and evaluating the effects.
SCIE research briefing 13: helping parents with a physical or sensory impairment in their role as parents
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Place of publication:
- London
SCIE research briefings summarise the knowledge base in a particular area and act as signpost to more in-depth material. The topic of this briefing is parents with physical or sensory impairments and ways of addressing any perceived barriers to their parenting. This briefing does not consider any supposed impact of a parent’s disability on their children, but only describes some of the specialist requirements of parents with physical or sensory impairments. The briefing is divided into sections: what does the research show; organisational knowledge; policy community knowledge; practitioner knowledge; research knowledge; user and carer knowledge; and useful links.
SCIE research briefing 18: being a father to a child with disabilities: issues and what helps
- Author:
- SOCIAL CARE INSTITUTE FOR EXCELLENCE
- Publisher:
- Social Care Institute for Excellence
- Publication year:
- 2005
- Place of publication:
- London
SCIE research briefings summarise the knowledge base in a particular area and act as signpost to more in-depth material. The topic of this briefing is the fathers of children with disabilities, impairments or chronic illness. The children's disabilities include physical or sensory impairments, learning disability, and chronic conditions such as asthma, arthritis, diabetes and congenital heart disease. This briefing focuses on fathers' experiences of their child's disability and their resulting needs. The briefing is divided into sections: what does the research show; organisational knowledge; policy community knowledge; practitioner knowledge; research knowledge; user and carer knowledge; and useful links.
Employment change and the role of the medical home for married and single-mother families with children with special health care needs
- Authors:
- DERIGNE Leaanne, PORTERFIELD Shirley
- Journal article citation:
- Social Science and Medicine, 70(4), February 2010, pp.631-641.
- Publisher:
- Elsevier
The authors hypothesised that whether or not a child with special health care needs usual source of care meets the criteria for a “medical home” influences parents’ employment decisions. This study included 38,569 children with special health care needs from birth to age 17 surveyed in the 2005-2006 US National Survey of Children with Special Health Care Needs. The employment model is estimated using multinomial logistic regression with the choice of a parent to maintain current employment, reduce hours, or stop working as the dependent variable. Independent variables were those characterising the needs of the child, the resources of the family, and the socio-demographic characteristics of the family. Components of the medical home variable included: having a usual source of care; family centred care; care coordination services; and receipt of needed referrals. Half of the children met criteria in all four facets. The relative risk of a parent choosing to cut their hours rather than maintain them decreased by 51% if the child had a medical home. The relative risk of choosing to stop work rather than not change decreased by about 64%. Care coordination services in particular reduced the odds of changing employment status. The authors conclude that the medical home is a moderating factor in parental decisions concerning change in employment status.
Quality services for disabled children
- Author:
- SOCIAL POLICY RESEARCH UNIT
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2002
- Pagination:
- 4p.
- Place of publication:
- York
Summaries findings of a study exploring the concept of quality in services as defined by disabled or chronically sick children and young people and their families. The project, Sharing Value, was funded by the Community Fund and carried out in partnership with the Family Fund Trust and Barnardo's. Quality in services was discussed in four groups of parents (21 parents in total) and three groups of disabled children (27 children in total) over a series of meetings. The groups then drew up key quality service indicators. A database of quality services was one of the outcomes of the project.
Children, poverty and disability
- Author:
- REITH Lorna
- Journal article citation:
- Poverty, 109, Summer 2001, pp.10-13.
- Publisher:
- Child Poverty Action Group
The Government has made an ambitious commitment to eradicating child poverty within a target of 20 years and has introduced a range of policy initiatives and increases in benefits. Asks whether these improvements will reach disabled children or children in families where a parent is long term sick or disabled, and looks at what the Government is doing to address their needs.
Improving communication between health and education for children with chronic illness or physical disability
- Authors:
- MUKHERJEE Suzanne, LIGHTFOOT Jane, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 2000
- Pagination:
- 164p.
- Place of publication:
- York
Report of project based in York intended to improve communication between health and education staff about children with a chronic illness and physical disability. Health and education staff, parents and children were surveyed and an action plan for creating better systems for communication drawn up.
A special child in the family: living with your sick or disabled child
- Author:
- KIMPTON Diana
- Publisher:
- Sheldon Press
- Publication year:
- 1990
- Pagination:
- 169p.,list of orgs.
- Place of publication:
- London
Written for parents. Looks at coping with the shock of being told there is something seriously wrong with a child, and at dealing with the professionals who will be involved, including social workers, doctors, psychologists, health visitors and therapists. Part 3 deals with caring for the child and coping with problems, and part 4 with death and dying.
Disabled parents and schools: barriers to parental involvement in children's education
- Author:
- MORRIS Jenny
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 2004
- Pagination:
- 43p.
- Place of publication:
- York
This book deals with barriers experienced in terms of dealing with/relationship with schools (physical barriers, attitudinal barriers, inaccessible information etc) . It gives examples of good practice: where e.g. a school or education professional had facilitated a disabled parent to play the role that any parent would expect to play in their child's education. The term 'disabled parents' includes those with physical and/or sensory impairments, learning disabilities, mental health support needs, long-term illness, HIV/AIDs.