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The appointment
- Authors:
- DISABILITY RIGHTS COMMISSION, (Producer)
- Publisher:
- Disability Rights Commission
- Publication year:
- 2005
- Pagination:
- DVD
- Place of publication:
- London
This 10 minute comedy drama introduces us to Alan, a hotel manager, on the day he finds out that he has a common but life-altering health condition. The film explores how attitudes to disability and long-term health conditions can affect people's chances of getting and keeping a job - irrespective of their actual impact on work. And how the reactions of those around us - family, friends and work colleagues - can make us fearful of revealing important aspects of our lives.
Supporting pupils with special health needs in mainstream schools: policy and practice
- Authors:
- LIGHTFOOT Jane, et al
- Journal article citation:
- Children and Society, 15(2), April 2001, pp.57-69.
- Publisher:
- Wiley
A growing number of pupils in mainstream schools may have health-related support needs in respect of a chronic illness or physical disability. Data from research study investigating these needs and carried out between 1996 and 1998 are used to reflect on the position of this group of pupils within policy guidance on special educational needs and medical needs. Evidence of confusion and ambiguity, both in the guidance and its interpretation, suggests that the needs of this group remain somewhat hidden. More recent developments in special needs policy guidance are discussed in terms of the prospect for strengthening support for this group of pupils.
Employment change and the role of the medical home for married and single-mother families with children with special health care needs
- Authors:
- DERIGNE Leaanne, PORTERFIELD Shirley
- Journal article citation:
- Social Science and Medicine, 70(4), February 2010, pp.631-641.
- Publisher:
- Elsevier
The authors hypothesised that whether or not a child with special health care needs usual source of care meets the criteria for a “medical home” influences parents’ employment decisions. This study included 38,569 children with special health care needs from birth to age 17 surveyed in the 2005-2006 US National Survey of Children with Special Health Care Needs. The employment model is estimated using multinomial logistic regression with the choice of a parent to maintain current employment, reduce hours, or stop working as the dependent variable. Independent variables were those characterising the needs of the child, the resources of the family, and the socio-demographic characteristics of the family. Components of the medical home variable included: having a usual source of care; family centred care; care coordination services; and receipt of needed referrals. Half of the children met criteria in all four facets. The relative risk of a parent choosing to cut their hours rather than maintain them decreased by 51% if the child had a medical home. The relative risk of choosing to stop work rather than not change decreased by about 64%. Care coordination services in particular reduced the odds of changing employment status. The authors conclude that the medical home is a moderating factor in parental decisions concerning change in employment status.
Neither seen nor heard: children and homecare policy in Canada
- Authors:
- PETER Elizabeth, et al
- Journal article citation:
- Social Science and Medicine, 64(8), April 2007, pp.1624-1635.
- Publisher:
- Elsevier
Changes in public policy have led to increasing numbers of children with disabilities and complex medical needs being cared for in the homes of Canadians. Little work, however, has explored the ethical implications of these policies. This paper focuses on some of the shortcomings of current policy and describes a developing method for policy analysis with an explicit focus on ethics that could be adopted in other nations. Three forms of analyses—descriptive, conceptual and normative—conducted on Canadian homecare policy documents describe various dimensions of Canadian homecare policy. The descriptive analysis demonstrated that the jurisdiction of homecare services is dispersed across numerous programs and ministries with no single structure for policy implementation and accountability. The needs of children and youth are rarely mentioned in home healthcare policies, but instead are addressed under broader social policies that are focused upon children and family. The conceptual analysis revealed four over-arching themes that represent the predominant elements of a value-structure that underlie homecare policy. They include: (1) home and community care as ideal; (2) the importance of independence and self-care of citizens; (3) family as primary care provider; and (4) citizenship as entitlement to rights and justice. Overall, these themes tend to reflect a neoliberal ideology that shifts the responsibility of care from the state to the individual and his/her family. A normative framework based on critical healthcare ethics is used in the paper to make recommendations to redress the current imbalance between state and family support. For example, including homecare services within the Canada Health Act (CHA) or the development of separate legislation consistent with the principles of the CHA would make it possible to ensure that the principles of universality, accessibility, portability and public administration, as opposed to principles that reinforce competitive individualism, direct the provision of homecare services in Canada.
Service support for children with a chronic illness or physical disability attending mainstreams schools
- Authors:
- LIGHTFOOT Jane, MUKHERJEE Suzanne, SLOPER Patricia
- Publisher:
- University of York. Social Policy Research Unit
- Publication year:
- 1998
- Pagination:
- 183p.,bibliog.
- Place of publication:
- York
Aims to identify needs for NHS support for schools as expressed by children with special health needs, their parents and teachers, and to make recommendations for good practice. Commences with a review of relevant literature. Examines results of focus group discussions, which raised issues relating to school absence, exclusion from school life, support from peers and teachers, and medical care. Finally reports on conclusions arising from workshops with managers and professionals from education and health care.
Chemical sensitivity in the workplace
- Authors:
- DECKER James T., et al
- Journal article citation:
- Journal of Social Work in Disability and Rehabilitation, 1(4), 2002, pp.45-61.
- Publisher:
- Taylor and Francis
- Place of publication:
- Philadelphia, USA
The debate continues to rage in the medical community and amongst policy makers. This debate centers on a new disease mechanism commonly known as Multiple Chemical Sensitivity (MCS). Researchers have grouped the theories of etiology of MCS into four broad categories: physical, stress, misdiagnosis, and illness belief. A new name for this illness has recently been advanced as well, toxininduced loss of tolerance (TILT). Problems with chemical sensitivity are especially troubling for workers and their employers. Employees seeking relief under the Americans With Disabilities Act of 1990 (ADA) are requesting accommodations based on their reactions to chemicals. Employers are beset with claims for accommodations in the workplace, disability claims, and worker's compensation claims. Courts are trying to make sense of chemical sensitivity with respect to accommodations in the workplace. Court decisions regarding MCS issues are varied and of tentimes highly controversial. Primary social problems and mental health issues associated with chemical sensitivities are economic costs and loss of enjoyment of life by MCS sufferers. Economic costs are spread throughout the system; however, their major manifestations are lost worker production, increased demands on services, and the long-term costs associated with supporting a growing disabled subset of the population comprised of chemically injured workers. Social and mental health costs are seen in escalating cases of depression, divorces, behavioural acting out, isolation, anxiety attacks, and chronic medical problems. Social workers are particularly well suited to advocate for accommodations in the workplace and for social policy change on behalf of those suffering from chemical sensitivity. Their training in systems and ecosystems theory makes them well aware of the importance of the environment on the individual. That training includes knowledge of utilizing strengths based approach to problem solving, and clinical training in mental health, which leads to empowerment for the client. (Copies of this article are available from: Haworth Document Delivery Centre Haworth Press Inc., 10 Alice Street Binghamton, NY 13904-1580)
Short breaks for families caring for a disabled child with complex health needs
- Authors:
- ROBINSON Carol, et al
- Journal article citation:
- Child and Family Social Work, 6(1), February 2001, pp.67-75.
- Publisher:
- Wiley
Analyses data from two research studies concerned with disabled children who have complex health needs in relation to families' experiences of assessing short breaks (respite) services. This article highlights which services families were using and the difficulties of obtaining a coherent and consistent package of support. Regulatory concerns relating to the piece-meal provision of services and use of children's hospices are raised along with recommendations for improving policy and practice.
Transition to adulthood for young disabled people with 'complex health and support needs'
- Author:
- JOSEPH ROWNTREE FOUNDATION
- Publisher:
- Joseph Rowntree Foundation
- Publication year:
- 1999
- Pagination:
- 4p.
- Place of publication:
- York
Although the term 'complex health and support needs' covers a wide range of impairments and conditions, young people with high levels of health and/or support needs experience some common difficulties in their access to services during their transition to adulthood. Outlines the findings of a review of research, consultation with six local authorities and interviews with young people themselves.